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Latest Celiac Disease News & Research:
Everything posted by weluvgators
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ARCHIVED Gluten In Breast Milk
weluvgators replied to Heather-707's topic in Parents, Friends and Loved Ones of Celiacs
Please consider getting yourself tested before going gluten free or gluten free light for your nursing baby. I went gluten free for my nursing baby for similar reasons as others listed above - chiefly my sanity for caring for such a sick, fussy, miserable baby when exposed to gluten! I NEVER suspected that *I* had a gluten problem. And given your history...- 23 replies
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ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
I found a Twizzler sub - CLIF Kid Organic Fruit Rope. It is labelled "Gluten Free". -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
This is a "free-range" eating school district. Best we can tell, common practice in schools throughout this district is one where kids can eat anything, anywhere, anytime. Exceptions to this standard practice are few and far between (only know of one current exception, and the school has pushed hard to get that exception dismissed). This particular class... -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
And the history of the graham cracker, according to wiki, is intriguing! Open Original Shared Link -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
And this is a great math story! So 15 boxes / class are needed, and there are four classes. I searched online to find that 20 graham crackers per box might be right . . . not like I have or will get a box to find out. Anyway, the math goes: 15 x 4 x 20 = 1,200 graham crackers. Right? -
ARCHIVED Apparently I need support
weluvgators replied to Sick, Tired, and Broken's topic in Coping with Celiac Disease
You are not alone! Gluten intolerance and celiac disease can affect us each in different ways, but there are many similarities amongst groups of us - maybe genetic similarities? The fact that it is known to attack organs, and many have been implicated in different people, is just astounding to me - yet getting people to relate to its severity can be so... -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
King Soopers / aka Kroger was able to be an easy stop to knock out gluten free icing (not certified gluten-free - boo!) and candies (not certified, but varying degrees of gluten free certainty). The candy canes we found are from a dedicated facility free of several allergens. They are manufactured on dedicated equipment free from peanuts, tree nuts, milk... -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
Please find gluten free graham crackers that are the same size and shape that are needed because this is an actual math activity that deals with surface area, volume, perimeter, fractions (graham crackers can be divided into fourths). After looking at graham cracker options (Kinnikinnik and Pamela's), the cardboard idea for a graham cracker sounds PERFECT... -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
Thank you! All of the information has been so helpful for both myself and my daughter. There is a nut allergy in the class, so that will now shape how we move forward. We have no idea what other allergies are managed in the classroom, as they have not discussed or disclosed that information. In general, allergies are not managed at a classroom and... -
ARCHIVED Gingerbread House School Project
weluvgators replied to weluvgators's topic in Gluten-Free Foods, Products, Shopping & Medications
Assume there are no other allergy or medical issues to accommodate. Last I checked we were only aware of another gluten free child in her class. I have confirmation that bartfull is correct in that wafer cookie interpretation. Saw Kinnikinnik has those - any opinions or other options? Thank you! -
ARCHIVED Gingerbread House School Project
weluvgators posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I would appreciate help identifying appropriate gluten free ingredients for the following gingerbread house school project items. In particular, I need a great gluten free graham cracker that everyone will not complain about . . . lack of stability/rigidity is my assumption of a suspected difference between "regular" and gluten free graham crackers,... -
ARCHIVED Ritz Crackers
weluvgators replied to pnltbox27's topic in Gluten-Free Foods, Products, Shopping & Medications
In Australia Schar has a "Salti" cracker that reminded me of what I remember about Ritz crackers. I don't understand why this cracker is not sold in USA. Please let me know if anyone can find a source in USA. Packaging looks updated from when we were last in Australia, but I assume this is still the same cracker. Open Original Shared Link -
We find a cutting board important too. We also travel with a small kid type plate (non-breakable) for each of us and find a fork for each of us is helpful. We travelled a lot this summer and really missed having non-disposable forks! I also travel with cleaning stuff, including a couple of dish towels and dish cloths.
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ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
Yes, the CDC guidelines specify their exclusion of celiac disease. But should immediately life threatening medical conditions be treated substantially different from chronically life threatening ones? -
ARCHIVED Rheumatoid Arthritis Or Something Else?
weluvgators replied to LookingforAnswers15's topic in Related Issues & Disorders
I just wanted to say that I appreciate your posts and sharing your experiences. Thank you! We have found rheumatology to be one of the more helpful disciplines when sorting through some of our more complex issues. And the rheumatologists for us were not all bad news, but they have seemed better able to understand and help us cope with some of our symptoms... -
ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
I am enjoying the information available in this link, 10 essential school resources for food allergy parents. Open Original Shared Link It is disappointing that the CDC recommendations do not address celiac disease, as I think the principles of inclusive and safe schooling should apply. -
ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
That first article I linked to has a follow up post to it as well. I think it is interesting to consider the different views. Open Original Shared Link Some considerations that come up in a school district with free range eating practices include: 3rd grade - snack time encouraged at a specific time. My son makes sure to wash hands before snack... -
ARCHIVED Feeling Afraid To Eat
weluvgators replied to learningtobreathe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
We have found that it has gotten much easier to navigate this over time. You meet more people that can relate and share what worked for them. And all of the "new" things to learn after diagnosis become your normal routine. Family can also get better over time and with some practice. Time helps with the physical healing, and it gives you different perspectives... -
ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
I have found the following to be helpful in understanding viewpoints when considering these issues. 12 reasons why peanut free schools are not okay by Nicolette Brink Open Original Shared Link and from Canada (the mother comments further in the first link from allergic living) Open Original Shared Link Open Original Shared Link Open Original... -
Welcome to the board! We have navigated schools with three children that each have their own issues with gluten. We do have written protocols for the schools to best handle our children through pain and symptoms of gluten exposure should they present. Our plan includes a phone call to us so that we can help evaluate needed actions, but your plan may be...
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Paper Plates?
weluvgators replied to albauer94's topic in Gluten-Free Foods, Products, Shopping & Medications
I don't recall play-doh getting mention in this discussion. Is standard play-doh being used at daycare? If so, are there processes in place to reduce the chance of your child's exposure? You may also want to scan through the kids section of the forum and search for daycare discussions. Play-doh is a big one, but other art, science or play materials could... -
Paper Plates?
weluvgators replied to albauer94's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Amalthea, I just wanted to share that I understand where you are coming from in your posts. I also have wheat allergy and celiac issues, so I understand how difficult it can be for more standard, typical celiacs to relate to the more complicated challenges with a compounding immunological response to wheat and gluten. As well, I am managing a household... -
ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
There is great information in this thread. And I am doing the work. Lots of work. To transition healthcare and schools between countries is something I am still learning about. We have been to multiple allergists in different states and different countries, and we have gotten the same care and instruction over many years. And I am still recovering from... -
ARCHIVED Daily Free Eating In Classroom?
weluvgators replied to weluvgators's topic in Parents, Friends and Loved Ones of Celiacs
The first day my son's lunch box came home covered in an unknown crumby substance. I am not so sure that the free range eating is the worst of my problems at this point. -
ARCHIVED Frequent Bone Fractures In 4-Year-Old Celiac Girl
weluvgators replied to HollyGolightly2's topic in Related Issues & Disorders
Hi! I posted in the other thread as well, but thought I would share some additional information. Our daughter has since broken some additional bones, and our Australian rheumatologist was not terribly surprised. We are dealing with joint hypermobility which can also contribute to this phenomena of accident/injury proneness. I assume this is related to...