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StephanieM

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by StephanieM

  1. StephanieM
    I don't know about the UK.. I used "KIMBALL GENETICS" based in Colorado, US, and I live in Canada.. I did a cheek swab sample and tested positive for 2 alleles.. Genetic testing will let you know if he's a carrier only, or if he has 2 copies of the gene.. It's fast and comprehensive.. It cost me around $400 for it, but i feel it was worth it as they were...
  2. StephanieM
    I had been gluten free for a year before getting tested, and my antibody came back negative, so I decided to do the genetic test, as I KNEW I had celiac based on how much a gluten-free diet improved my entire body, head to toe. I used "KIMBALL GENETICS" based in Colorado. I live in Canada.. I ordered the saliva kit online and it arrived within a few days...
  3. StephanieM
    Jennifer, do you mean "dextrin".. i was under the impression that dextrose is gluten free as it is a sugar, derived from corn. Dextrin on the other hand does contain gluten. Please let me know. I am asking because I want to make sure dextrose is safe if you know otherwise! thanks, Steph
  4. StephanieM
    SOme of the things I've used for myself as well as my kids (6 and 4) are as follows: - peaches .. One peach a day keeps my son regular.. I don't care how he wants it, sometimes it's cut up plain, other times in yoghurt, or with a little sugar sprinkled, sometimes even with a little nutella spread on top.. As long as they eat fruit, I accomodate how they...
  5. StephanieM
    Everyone is different in terms of their ability to tolerate minute amounts of gluten... My tolerance has decreased over time, so I am insanely sensitive now.. and get sick off the tiniest amount from cross-contamination. The challenge, is even if you don't have symtpoms, gluten can be damaging your system if there is gluten in the product.. I don't eat anything...
  6. StephanieM
    Jillian, I completely agree with you. We are completely colour-free in our house, and my 6 and 4 year old know to say no thank you when they are offered things. At friends' houses, (they both read), they read labels and even when I'm not there, they both listen and don't eat anything they shouldn't. But I agree with you, you have to go cold turkey, and the...
  7. StephanieM
    Sounds like food dyes/ preservatives to me. my kids react to food colouring as well as 'artificial flavour' and I limit the benzoates, etc.. and all other preservatives. Check your cupboards.. When I first discovered my kids react to food dyes, I was disgusted at where I found them. Pickles, crackers, popcorn, chips, cookies, some juices, even vanilla ice...
  8. StephanieM
    one more thing... I am wondering about the whole 'maltodextrin' issue. I too eat peanut butter, but find myself wondering if I'm reacting to it. I know that maltodextrin is supposed to be safe, and that's the only ingredient in my pb that it could be, but I'm starting to wonder about the differing things i've read about that additive..
  9. StephanieM
    I have the same reaction when I eat gluten.. It's like it knocks me out sometimes.. I have such an overwhelmingly desire to sleep that I cannot ignore.. I have 2 kids, and cannot physically stay awake, almost narcoleptic. I have no idea what the physiology is behind it... Are your oats gluten free? I tried eating oats once, and my reaction was so volatile...
  10. StephanieM

    ARCHIVED Glutened

    StephanieM replied to Googles's topic in Coping with Celiac Disease

    Are your symptoms limited to emotions, or are you experiencing physical symptoms as well?? I know you describe the emotional side when I get glutened as well, so I agree, keep a food diary.. and post it here... I've been glutened SO many times where I had to search and search for what was doing it... If your symptoms are limited to emotion and no physical...
  11. StephanieM
    Thank you so very much for these links. These are great! I really hope others see these links as they will help my cause... Right now, they think, when I explain the very same things, that it is just me.. So if I show them that this is standard Celiac info, perhaps it will be more effective! Thank you again, Stephanie
  12. StephanieM
    Well put eveyone! I ditto everything that was said.. Focus on fresh fruits and veggies, meats, eggs.. etc.. take out the processed/canned foods for awhile.. It takes time, put perseverance will do you well! Steph
  13. StephanieM
    Thanks so much for your message... Maybe that's just it, get hubbie to talk to them when I am not there. I am much more outspoken than him, so he tends to sit back while I defend myself alone... We went there yesterday, as we do every SUnday, once again I brought my own food. However, they didn't know I had my own food. On the BBQ, they cooked the meat...
  14. StephanieM
    Me too. It's only happened once at a restaurant, where I was told as soon as I swallowed the bite, that my server was wrong and there was gluten in it. I drank lots of water to almost 'dilute' the food, and in its tiny amount, I avoided the stomache bloating and discomfort.. I think even the dh if I remember correctly. However, all the water in the world...
  15. StephanieM
    OMG, you've given me the perfect analogy to use tonight!! I will take it one step further, and ask them if they cooked dog turd on the BBQ, would they use the same tongs to touch their food, and use the grill without washing it?? LOVE IT! Thank you everyone for your input and support and advice! IT means so much to me as that is what I lack in my family...
  16. StephanieM
    The links between Celiac and Depression are greatly linked.. You have to think, that if someone feels bad all the time, tired, bloated, headachy, they are bound to get depressed.. I know I did. I was always feeling off, and I didn't know why.. Not just depression either, I always characterized myself as an 'anxious' person, and even this basal level of anxiety...
  17. StephanieM
    Point well put! I haven't read the quote yet (just read the two posts), am going to read it now, but I agree with what you say.. I don't expect others to be gluten free, in fact I don't even expect them to cook gluten free for me.. I offer to bring my food EVERYWHERE, and I don't have a problem with that.. My sole challenge was that hubbies parents take offense...
  18. StephanieM
    I think it could best be described as 'weeks of symptoms' rather than pain for some. For me, the "pain" is acute, only lasting that night, at max one day.. HOwever, the disruption to my digestive system does last anywhere from 5 days to weeks.. Every symptom is different in every person.. My hair even falls out in clumps now.. But I wouldn't use the word...
  19. StephanieM
    I'm learning that it's just that generation. DO you know that my own father (I"m 34, he's 69) STILL offers me toast in the morning, and asks why when they are eating pasta/lasagna, I have my own food. STILL.. After, oh maybe 20 explanation sessions.. No joke, my 6 year old daughter knows better.. she'll tell him that the breadcrumbs that fly everywhere...
  20. StephanieM
    So true.. I"m actually embarrassed to say this, but this summer I've been glutened WEEKLY without exception. I have felt more sick this summer than I have in 2 years. ALl from CC issues because we eat at my parents' cottage, in laws, and just in general eating at others' houses... I am embarrassed to say it because I know how bad that is for me.. Hubbie...
  21. StephanieM
    My kitchen is mixed as well, and to date, I have never glutened myself. HOwever, I don't eat gluten free bread ever because I can't be bothered to buy butter, jam, pb that is kept without crumbs, as I always get breadcrumbs in our condiments from the kids.. I use separate muffin tins for my muffins, and never cook the gluten muffins in them.. When I bake...
  22. StephanieM
    When I first went gluten free, I didn't react to CC either, I thought it was a joke.. Separate toasters, separate condiments, I honestly didn't believe it.. THe longer you are gluten-free, the more sensitive your body becomes to gluten. I actually believe that this means I'm healthier.. Before, our bodies were semi-immune to gluten in the way that we were...
  23. StephanieM
    OMG hilarious! And yes, as much as I laughed when I read it, I, honest to God, think that that would be the only way.. I used to think they didn't believe it because I didn't show overt signs of being sick right away.. But now I do. NOw within an hour of being glutened, my belly expands to 4 times its size, I get the body chills, pale, the works.. So, letting...
  24. StephanieM
    OMG, i hate to depress you further.. But I glutened myself by accident in a big way with oats, that I thought were gluten free. This was back in Feb.. my immediate reaction was SOOO bad, I thought I had the stomache flu, I PUKED that same night in the middle of a registered massage.. IT was sooo bad.. ANyway, no word of a lie, in terms of my bowels, it took...
  25. StephanieM
    One of my friends is a dietician, and she said to buy one of those B-complex multivitamins as those grains offer alot of those vitamins... I really worry about that as well, but I eat cereal daily to get different grains in... I do take a multi in hopes that that will make up for any missing vitamins...
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