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Leper Messiah

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Everything posted by Leper Messiah

  1. Leper Messiah
    Yes I think this was the problem for me notkuroda, a lot of sensitivies to other foods, namely corn, soy, dairy, nightshades. As you can imagine this limits my food options considerably. The good thing is that once I eliminated them all, I felt better within 1-3 days as opposed to 2 weeks with gluten. Best of luck.
  2. Leper Messiah
    No it wasn't the water per se, it was the fact there was likely to be gluten on my sleeve which was then transferred onto my mouth and then swallowed by drinking the water. I stopped cleaning so hard at home, and instead rely on plastic plates, cups, disposable everything basically as I tried the cleaning route but I was getting glutenned on average twice...
  3. Leper Messiah

    ARCHIVED Argh

    Leper Messiah posted a topic in Super Sensitive People

    Oh man, I must have the most sensitive reaction to gluten ever. I went to work today in a positive frame of mind, it's been two weeks since my last glutenning so this is when improvements start, and continue dramatically over the following week. So of course I was anticipating this and walking to work with a . It was a cold day so wrapped up and...
  4. Leper Messiah
    I agree, they're pretentious know-it-alls!! Experienced or not...you're are very lucky indeed if you've not experienced the inadequacy of modern medicine. Otherwise I would suggest your symptoms can't be that bad! Mine make me feel like death and not one doctor has eased that, in fact they have prolonged mine substantially. If I had been accurately...
  5. Leper Messiah
    I think this depends on how long you went between it starting (for some very difficult to pinpoint) and beginning a strict gluten free diet. After a long period my theory is that your GI tract tries to work out what's causing the inflammation itself and wrongly identifies a selection or one (if you're lucky) of the common allergens such as dairy, soy etc...
  6. Leper Messiah
    Same issue for me. I stick to bottles and only drink from the bottle, magners, etc. No bottles = no drinking for me. It's fine if you're at home because it's likely unless you live in a really small place that you'll find a pub with at least one bottled cider option. I've risked cider in a glass and got away with it but I would only do this if absolutely...
  7. Leper Messiah
    Depression is a tough one exactly because of this. It is a separate serious illness in its own right from which I have no experience as I have never had depression as a standalone illness. I only have asymptomatic depression symptoms when I get glutened because I know what this means for me. Just as an aside I've went to the docs and been giving the...
  8. Leper Messiah
    I'm exactly the same. The only way I get through it is tell myself it's just 2-3 weeks. And ok that's not great but from a background of having been diagnosed with ME/CFS, 2-3 weeks is a drop in the ocean. I'm not downplaying it at all though, you need a lot of mental strength and an ability to focus on the positives that you are going to achieve when...
  9. Leper Messiah
    Absolutely no. Separate all the way.
  10. Leper Messiah
    I agree this completely limits your options - I have to avoid dairy, soy, gluten obviously and bloody corn too which is even worse than dairy at limiting your food options as almost all gluten free foods contain at least some 'maize' or other corn derivative and that includes multivitamins. So in essence, I empathise entirely!! Just out of interest how...
  11. Leper Messiah

    ARCHIVED Ironic

    Leper Messiah replied to jswog's topic in Coping with Celiac Disease

    In all seriousness though, I think it's difficult for anyone without celiac/gluten intolerance of any kind to fully understand just how meticulous you need to be when cooking food for us. One misplaced sticky gluten protein and it's game over. I would only ever eat something from someone else I wholly, totally trust. I often watch Masterchef (UK) - yes...
  12. Leper Messiah
    Initial reaction with brain fog, feeling spacey etc. This lasts max 24 hours then brief respite for a day or so before the fatigue sets in and doesn't leave me for 2 weeks, almost exactly to the day.
  13. Leper Messiah
    Think it's all up to the individual both in terms of what they believe and how they react. It's widely reported that the gluten protein is too large to be absorbed through the skin and secondly, if you had broken patches of skin and rubbed a weetabix into it then it's unlikely to cause an atypical autoimmune reaction, however this is not to say you won...
  14. Leper Messiah
    Thyroid ok?
  15. Leper Messiah
    Slow onset of gradually worse fatigue to the point of not being able to go into work for me.
  16. Leper Messiah
    I respectively disagree and appear to be super sensitive, water doesn't always get rid of it for me but I live in a gluten warzone in that my flatmate eats tons of it and isn't great at de-glutening, no in fact apart from hoover up the crumbs he doesn't do anything. And for me a glutening means 2.5 weeks of complete and utter misery not 2-3 days so it's...
  17. Leper Messiah
    Yeah standard 'I have celiac.' should do the trick as it's fairly well known nowadays but normally I like to turn their question on its head by saying 'oh that's right make me feel bad about it why don't you!!' etc etc, shoving it right back at them. They never ask again and you makes them as opposed to you feel socially awkward. Bout time shoe was on...
  18. Leper Messiah
    The gluten protein is too large to penetrate your skin but you may, distinct from a GI reaction, also have a skin rash brought on by wheat or the gluten protein. If the latter then avoid toiletries with G in, otherwise you can use as long as you rinse away any that brushes over your mouth / lips.
  19. Leper Messiah
    Nice post, always good to see progress I'm in the undiagnosed bracket so be interesting if this becomes widely available, although it won't affect me that much, I'll still be avoiding gluten, it'd be nice to have some certainty.
  20. Leper Messiah
    Yeah brain fog and fatigue are my worst symptoms by far. By the way I correlate brain fog with the day I've been glutened, this normally lasts 24 hours so if you are constantly being hit by the fog then if you are like me you are constantly being glutened. It is then 2-2.5 weeks before the fatigue goes away for me but brain fog only 24 hours max.
  21. Leper Messiah
    Interesting, will check out this GAPS diet, one thing I noticed, nightshades seem to be ok for me when I'm clear of gluten for 2 weeks. I wonder if cortisol masks the symptoms to a large extent, I guess it probably does as this would explain why we can drink alcohol, smoke tobacco/drugs without feeling like s$#&. Obviously with reduced cortisol, which...
  22. Leper Messiah
    Great news!! Docs are rubbish with most chronic medical conditions just be thankful that if you avoid gluten you are ok whereas people with other chronic medical conditions such as MS etc can't. Also be glad that it appears you are able to go gluten free relatively easily, I struggle with my flat as I have someone who eats tons of toasties and sandwiches...
  23. Leper Messiah
    Skylark, just reading your post and thought something I did a while ago might be of help. Before diagnosing gluten issues I looked at a load of other things that I thought might be what was causing my issues. I looked at thyroid, leaky gut, CFS (an associated treatments) etc etc. One of the things I looked at was candida and took a course of threelac for...
  24. Leper Messiah
    I have similar sensitivities, namely to dairy, soy, nightshades and corn. Usually leave me tired for a day or two on their own. Hoping over time they will resolve but I recall something I read earlier stating that your GI tract has, essentially, a brain of it's own, which due to the gluten reaction will over time identify other foods it thinks are causing...
  25. Leper Messiah
    Exactly the same although I've had a few blood tests which all came back negative, a few because I was so sure it was celiac. However 2-3 weeks of gluten free and I'm back to normal Sam so that's as good a diagnosis as I need, even though it looks like I have an intolerance as opposed to celiac I still tell everyone I have celiac, it's much easier that way...
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