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elle's mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by elle's mom

  1. elle's mom
    As for breads, they do take more time. If you can afford them, Joan's Gluten Free Bakery has fabulous english muffins and bagels. Quick breads (no yeast) make nice additions to meals. We've been eating zucchini bread around here the last two weeks because it's in season. Banana bread is another of our favorites. We make blueberry muffins that are out...
  2. elle's mom
    As far as I know it's partially undigested gluten-molecule/particles circulating in the bloodstream and accumulating in the brain............can anyone else expand on this into more detail?? I'm no expert. I recently read (skimmed) this is "Recongnizing Celiac Disease".
  3. elle's mom
    Yes, our dd was diagnosed by a pediatric gastroenterologist. I know there ARE some celiacs withOUT stomach issues. Neurological (such as anxiety) are commonly the only symptoms. My dd's MAIN one IS behavioral, although she did have constapation too, and low growth rate etc. We noticed behavioral differences within a week after beginning the gluten-free...
  4. elle's mom
    Thank you so much Gemini for this info. My dh and I are practically dancing a jig in our living room. We were so devastated when we got the ttg results; just because we've tried so hard to eliminate any traces of gluten; I'm sure you know how hard it is. It's almost worse when it's your child and they can't really communicate their symptoms. . . I soooooooo...
  5. elle's mom
    Our dr has NOT diagnosed him with celiac. He was concerned about the IgA-tTG result since the result was 3.25 and the reference range was 3.99. Does that mean if his number was 3.99 my son would have celiac disease? For what it's worth when my daughter was dx'd celiac her ttg was "over 1000". This may or may not mean anything in comparison...
  6. elle's mom
    First of all I would just like to say welcome and very well-written bio! As you can see from my profile, I am also relatively new here, so I am by no means any sort of expert. But I have been reading a LOT and I can say that what you're describing definately warrants at the very least further consideration for celiac disease. I'm glad you're getting...
  7. elle's mom
    That doesn't seem advisable as if the seasonings do contain gluten they may leech into the meat and cause a "glutening". I was not aware of the severity of the cross contamination issue when my daughter first introduced us to gluten-free either, but apparently it's a really big deal. I am NOT an expert, we've only been at this less than 2 years, and still...
  8. elle's mom
    This is sooooooo disappointing; double cheeseburger no bun was one of the only things keeping travel with 4 kids somewhat doable. Of course packing healthier food is always the goal, just very difficult sometimes. We're working on getting our celiac daughter to eat the side salad, but no dice as of yet-I wouldn't eat salad until well into my 20's, she's...
  9. elle's mom
    It' OK, I wish I could look in your eye and see the "smudge" you're talking about.......not that your doc isn't competent, I'm sure he is from the sounds of it. Has he dilated your pupils to rule out a retinal issue?
  10. elle's mom
    darlindeb- Actually, I am an optometrist and I may have NOT been as wordy I should have in my previous post but let me clarify....I just mean that a subconjunctival hemorrhage, as described by "Jack" (if he truly meant on the sclera-or more precisely between the conjuntival and scleral layers), although it COULD be associated with blood pressure is most...
  11. elle's mom
    OK gemini (or anyone else who is knowledgable)........I didn't pay attention to it on the lab report before because it wasn't flagged as abnormal like the ttg was but, I believe this is what you're talking about:? Gliadin ABS, IgG + IgA Gliadin AB, IgA 2 (normal <20) Gliadin AB, IgG 4 (normal <20) So this is good right!? I can't...
  12. elle's mom
    Do you mean a blood vessel burst like on the white part (sclera) of your eye? At first I thought you meant on your retina......that is definately due to blood pressure &/or atherosclerosis and is very serious not only to your vision, but also to your health in general. But if you meant on the sclera, it's really no big deal-looks worse than it is. ...
  13. elle's mom
    How old his he? I have heard of others taking their babies to an allergist to determine their sensitivities; I didn't but it may be worth considering if he's that miserable. Poor little thing
  14. elle's mom
    When I went gluten-free my infant dd improved within days......I can't remember exactly how many but it was for sure less than one week. I remember I set out to try it for 2 weeks, and it was apparent well before that. As a side note, I figured out she was dairy sensitive also, that was very apparent within a day or two. Then I wondered if gluten...
  15. elle's mom
    Thank you everyone for your replies! This is so interesting for me to hear........if you would, please keep them coming! What a great forum this is; my husband is making fun of me-he says I'm addicted because this is what I do every night now after the kids go to bed.
  16. elle's mom
    I am fairly new to all this & I've been reading a LOT of posts, so what I want to know is how often does the average celiac inadvertently get glutened? What I mean is purely accidentally by cc or by things labeled gluten-free that really aren't (less than 20ppm) etc. Also, what is the longest someone whose been diagnosed for a long time (over a...
  17. elle's mom
    I so feel your anguish; you want to do what's best for your daughter without cross contaminating her, but it seems the whole world is working against you! We have had several holiday gatherings since my daughter's diagnosis and you described the scenario almost perfectly. It's hard. I still haven't figured out exactly the best way to deal with it. I'm...
  18. elle's mom
    Thanks ravenwoodglass, I really appreciate your input. Can anyone tell me how long (or short) they've went between a high antibody level and a normal one?
  19. elle's mom
    Thanks for the info; I did NOT know that! My daughter is not (that we know of anyway allergic to wheat). We actuallly have been avoiding caramel color anyway, but I always thought maltodextrin was usually from corn (unless outside the US). I had no idea glucose syrup was an issue for some though. So-if you have the wheat allergy is it damaging to the...
  20. elle's mom
    Also, if you do want to use cornflakes, they have to be labeled "gluten-free" as the regular kind do contain gluten.
  21. elle's mom
    Gluten includes wheat so what you really need is a gluten free / dairy free recipe. The trick is not in finding the recipe, but rather in finding the ingredients you need and PREPARING the dish properly!! Gluten is a VERY severe sensitivity that involves strict control of cross-contamination. I'm not trying to scare you, but you do have to be very careful...
  22. elle's mom
    Well, I read the link the niacin deficiency and I definately don't think it's that....... Hypoglycemic is definately possible; I have been snacking more often the last few days and it seems to have helped. I actually didn't wake up feeling bad the last 2 mornings so I think I'm in the clear. OH!-that and I took a test, which was negative. ...
  23. elle's mom
    My daughter was diagnosed with celiac disease in nov 07 by IgAttG and endoscopy. At that time her ttg was over 1000 (I got this verbally from her pediatrician-I didn't actually see the report). Then, we had her antibodies rechecked in Jan 08 (about two and a half months after starting gluten-free diet)-they were then in the "300 range" (again verbal information...
  24. elle's mom
    pchick- I have been gluten free now for only 3 months but having a similar experience to you. I was always VERY tired and fatigued-needed naps every day-felt like I would die without. That feeling slowly began to get better after about two months of gluten-free, but came back again on & off. Til now I have chalked it up to female monthly issues...
  25. elle's mom
    OK-it's hard to know for sure without looking into your eyes myself.......BUT I doubt you have actual infections (ie viral or bacterial). From the sounds of it on your first post it is definately allergic only. The redness, puffiness, intense itchiness, white stringy discharge, watering etc. are blatently allergy. Sometimes you can even get crusties that...
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