pixiegirl

I was single when I found out I had Celiac and I'm still single (by choice but I do have a long time boyfriend). I'm over (over 45) so what was more scary to me after my divorce was just being single again.

I've never had any guy care one single bit about my gluten-free status. I've told them early on since picking restaurants can be tricky and they all have been fine with it. They just ask for help with it until they "get it". Maybe it depends on how you explain it but again I've dated a lot and not once have any of the men ever had a problem with it.

In my view umm guys are really different then girls, ya know? (duh) And often the things we think about are SO different then the things guys care about.

(slightly graphic alert below....)

Its like my gluten-free who held off from having "relations" with her BF because her belly wasn't as flat as it use to be. I finally convinced her to give a try that I could almost guarantee he either wouldn't notice or care. Guess who was right about that one? When having "relations" most guys are not looking at a little tummy roll.

But again, I think how one presents it makes a difference. I take control of my own health and so I explain it to the guys I've dated as not a big deal for me as long as I have some input as to where we go.

My current BF is wonderful about it. He made it a point to "get it" and now goes out of his way to find new restaurants we can eat at and such. He calls ahead or visits to speak to the chef about what I can eat.

Susan

Well we've had this discussion many times about the other drug and I fall somewhere in the middle.

Staying gluten free for me, after years isn't difficult at all however.. some of us are occasionally forced into situations where we have a greater risk of getting glutened then we usually do.

I travel for business, often days at a time and part of my job is dining with clients, its not a perk, its where business is done and so I often have to eat out. Over the years I've gotten good with that too and I'm rarely glutend in restaurants anymore. But on the occasion that I am, I'm terribly sick for days.... and when I'm doing a business trip I have a full schedule I can't spend a week in bed.

And so for me... being able to take a pill once in a while when I feel the risk of glutening might be high would be a terrific help. I'd never start eating gluten again intentionally.

My daughter went to Disney with her dad last week.. of course Disney is great but on a day trip to the beach she ate at Pizzeria Uno (ordered off their gluten-free menu) and got glutened and so for the rest of her vacation she was ill. She would have loved a pill.

So I personally am glad that it seems like we will have these options in a few years.

Susan

Seasons 52 is in Lauderdale too and its great, its at the Galleria which is on Sunrise Blvd, right near the beach. Also at the same mall is a PF Changs and a Capital Grill, I've eaten at all 3 with no problems.

The pizza at pizza Fusion is just ok.

I've had dinner in a lot of places in Lauderdale and most with no problems at all. 3030 which is in the Harbor Beach Marriott on the beach is fantastic and they understand gluten well. The Catalina is cuban on Federal Hwy is excellent and when I was there in January the manager listened to what I needed and said let me bring you a tasting of my choice tonight, wow we got about 10 small dishes, each one better then the last. Flemings on Los Olas was easy. Chima is brazillian and fab. Johnny V's on Los Olas is excellent. Canyon on Sunrise is southwestern.

Most of these are more on the expensive side but all wonderful.

Susan

Does anyone know if the Whole foods 365 stuff has a peanut or tree nut warning on it?? The closest Whole Foods is 45 minutes away and I hate to drive that far for something we can't eat.

If anyone has a box of it could they check?

Thanks, Susan

I read other posts about this specific Progresso Chowder and some of them said the thick and hearty is gluten-free but Traditional is not.

Others said Progresso labels what allergens are in it and on the Traditional Clam Chowder it lists only clam, milk, soy, lobster, shrimp, crab, tuna, cod, and fish ingredients.

So can I assume its gluten-free?

Others also said that Progresso is a Betty Crocker product but it says General Mills on the label (they may or may not own Betty Crocker I don't know).

Nothing sounds like wheat but there are a few chemical ingredients in it like: disodium guanylate, disodium inosinate... sounds awful but I have a huge yen for Clam Chowder and I don't have the ingredients to make t from scratch.

Thanks for any help... answer soon... I'm hungry!

Susan

I've been watching lost since the first episode but last season my attention drifted a bit so I might have missed some stuff. And I didn't go back and read all 14 pages of this thread, I hate then they get so long, I just don't have that much time.

I hope we find out more stuff this short season cuz I'm tired of being "Lost".

So because of the continual reference to the Oceanic 6 (or is it 8, LOL) not everyone makes it off the island, but we know now that Kate, Jack, Hurley and Aaron do. So who else do you think gets off.

My feeling is the others don't die, they choose to stay, certainly Sawyer does, he's already made that clear. Claire must die cuz she would never give up Aaron. And because in the court case last night Jack said that only 6 of them survived the crash and we know that's not true so I'm betting a whole lot of people elect to stay on the island.

What else do we know?

Susan

Since you've been gluten free for a while, of course you will test negative for it. A year after I went gluten free I tested negative for it and I had a biopsy (for other GI issues) and that was negative for Celiac. Of course my GI doctor knows I have celiac but she said I was doing really well with gluten-free since a year after all tests were good. So that's not surprising.

Many of us seem to have other food sensitivities, it took me a few years after I went gluten-free, with the help of an allergist and and elimination diet to figure out what I can't eat, some foods that I can eat in small amounts, and which are fine.

After being on this list for quite a while I've come to realize that Celiac is a journey and it usually takes a while. I just have been able to maintain the attitude that its a constantly interesting one and I keep getting more healthy with every day.

Good Luck, Susan

This doesn't happen to me but... to my daughter it does! She has been gluten free for about a month and the difference in her personality is like night and day. When she was a gluten eater she was always so down on herself, to the point of... well as her mom, it was scary to me.

Now she is just a typical teenager. Some good days. some not so good but nothing like she had before. Having other food allergies + now have to be gluten-free has been hard on her, she feels so "different" then other kids so I'm praying every day that she sticks to the gluten-free.

On another note... its early and I'm only on my first cup of tea but earlier in this post some were talking about being addicted to gluten, the say like smoking, its addicting to everyone. Is that what you were saying? I'm not sure thats true. BGF (before gluten free) I ate pizza or sour dough bread occasionally but I certainly didn't crave them and once I found out I had to be gluten-free it was ok - done. I didn't have any withdrawal symptoms, I didn't feel deprived or have personality changes (other then good ones cuz I felt so much better). So I'm not sure I'm buying its addicting.

Either way.... have a good one!

Susan

OK wait I'm confused... I thought someone above said nothing that uses the milk based blended stuff is gluten-free? Now its only frap's with chips. Has anyone called Starbucks this month to find out for sure?

Susan (very confused)

I'm sure some younger people will say hi, but I know there are a lot of people in your age group on this list. Take some time out and read a lot of the topics in this list, you'll learn a lot. I've been diagnosed for 5+ years now and if it were not for this list I couldn't have done it. Everyone has been very helpful.

My daughter is on this list too (she's younger then you at 16) and she's been gluten-free now for only a month and doing pretty well. There is a learning curve to figuring this all out so don't beat yourself up if it takes a while but after time (at least for me) I don't even think about it very often, its all just second nature to me when I go shopping and such.

Welcome to the group.

Susan

I had the same procedure that you are having, both at the same time and its a breeze. I'm not sure which aspect of the tests you are most worried about but:

You will be asleep for the entire test and when they woke me up I was fine an less then an hour later, I was a bit tired but thats all and I was able to go home and make dinner for my daughter and walk the dog.

If its the anesthesia your worried about... its quite safe and they do not put you under very deeply for this procedure, nor are you under for a long time.

By far the worst part for me was the "cleanse" you do the day before, the procedure its self is easy safe and quick.

You'll be fine.

Susan

Ok shoot, I don't really like these but my daughter counts the days until they appear in the stores! Wow is she going to be upset.

Here is my question... has anyone found maybe a place in canada or something where you can order the ones without wheat. I know it would probably cost a few $$$ in shipping but once a year I would spring for it for her!

Susan

I really need this list and ASAP. If someone has it can they send it to me? My daughter is going on vacation with her dad and he doesn't get gluten-free very well.

Susan

Why don't you call them and discuss it with them... ?

Susan

I read this topic with interest and I feel the same as many of you.. we got gypped!! I never liked Martha and never will (and I like her a whole lot less now).

However Martha owns the Martha Empire and so she will and can do whatever she wants. And we all know Martha is a big pet person. Do we need another pet mag? Nope but its her business and I tend to think from a financial standpoint she will do better with pets than sick people. I tend to think more of them buy magazines then we do.

Why do I say that, because for at least a few years (maybe more) Living Without magazine has been around and they still have a small circulation and they cover exactly what we thought Martha's mag would cover, various allergies, sensitivities and diseases that effect how we eat. I like the magazine and I wish it was a monthly and the only way its going to be a monthly is if they get more subscribers (subscribers cut way more mustard in a magazines financial plans then people who pick up a copy on the newsstands).

So why don't we all support the magazine that is already out there and trying to grow? Its a great magazine and they do a good job and it will publish more often, get larger, etc. as soon as more people with food issues step up to the plate and subscribe. (and I have no financial interest in Living Without I'm just a subscriber)

As far as Martha saying she will put more recipes in her mags that are food issue sensitive.. I think what that means is she will start labeling her recipes as: gluten free, milk free, soy free, nut free. I don't think she will change a thing. And whoever said "we don't need more recipes" is exactly right, I get them all over the place. If you subscribe online to the Whole Foods newsletter (or go to their website and check them out) every single recipe is labeled that way. I can open any regular recipe mag and easily pick out what is gluten-free and what isn't and it doesn't take a genius to modify a recipe.

What I wanted was the awareness that a Martha mag bring.

Anyhow I suggest that you all go subscribe to Living Without... lets help them grow! We have a lot of clout.

I agree with most said above but... its hard to say why didn't we do anything... in Brit's case and so many others... they are legally adults and its hard to force them. From what I've read they have had "interventions" with Brit (and so often with the other celebritys that do this sort of thing) and they didn't work.

Let's face it they put Brit in a mental ward for a while and then let her out and she was up to her old tricks just hours later. I think its very hard to do anything... which is why the friends and family of these sorts of people feel so helpless.

Certainly most of us probably feel Brit should have stayed in the hospital and gotten long term help for whatever her issues are but I guess the law regarding keeping one against their will is very involved and with a really high bar.

I'm not a Brit fan at all but feel so terrible when I see this happening to so much of young Hollywood. Very sad.

Susan

Well yep you're frustrated all right! The only saving grace is that over time you get it figured out...which things have gluten and which don't. I don't even much think about it any more.

Also each person has to make their own decisions on products. For example, I don't use a shampoo that has wheat in it because I think the transfer from hair to mouth could happen. But I personally would use a hair color that had it. It would get washed out when you shampoo after the hair color.

I've never even checked my anti perspirant and I don't think it would much matter to me. I can tell you that I never put my hands under my arm pits during the day. (I rarely even put my hands on my face once I'm out of the bathroom, I've convinced myself this is one of the major keys to NOT getting a cold or flu).

I am very sensitive to any gluten that I accidently ingest but I've not had any problem at all with products. So we all must decide how far we will go.

Susan

If you call disney food services ahead of time (and I think if you search you can find an email for the food service) they will send you a list of everything you can eat in all the parks (we were there in 10/07.

On top of that when you liaison with the food services you get put on a list as needing to be gluten free and when you make reservations at restaurants they know ahead of time. I had such a fantastic time. In the parks we ate on the go (a few times in restaurants) and never had any problems, they are all very allergy aware.

However we had made all our dinner reservations a couple of weeks ahead of time and every single restaurant we went to knew when I walked thru the door that I had to be gluten-free and they had gluten-free rolls and such for me. In all the sit down restaurants the chef comes out to talk to you about your choices and how he will change them to be gluten-free. Disney is fantastic.

My reoccurring dream is that all of the USA becomes just like Disney (ok, I said it was a dream).

But do let them know ahead of time and they will be totally prepared.

Susan

It didn't work correctly for me this morning. It use to show me the percentages, this morning it just said, thank you for voting.

I agree with the post above, there are a lot of great animal magazines out there already and the AKC breed organizations often have their own specific breed magazine. Also from a business standpoint I don't believe the number of dog and cat owners is growing in any great way, I tend to think its fairly steady. However the number of people with food issues is growing hugely, every single day (I'm sorry to say). So you'd have a growing audience with this one and if you look at the numbers for food issues, allergies, diseases involving special diets, wow its a huge market share.

Just my thoughts!

Susan

I agree with Patti, at home it never even enters my mind. In the grocery I'm reading labels and such. However just yesterday I went to the health food store to buy some biotin and asked the guy and he gave me a bottle and I started walking away when it dawned on me. I said to him "oh btw, it has to be gluten-free" and he gave me a funny look and said "why didn't you say so". And I said, "I just didn't think about it".

Its just part of who I am now and for the first time in years, I'm healthy!

Susan

I didn't get the long eyelashes..... waaaaa. I want them.

Susan

I wrote a long post a few years back on my yeast infections... I had them for like 6 months straight, no let up. I was even sent to a clinic in boston for Rx resistant yeast infections.. wow there were so many people there with them. Scary.

I was itchy and raw for months, really at my wits end when I started hunting for solutions to this in the online world (sometimes at the cutting edge of health and sometimes a bunch of baloney, so buyer beware). I found one web site where the woman's story was similar to mine (but she didn't have celiac) and she claimed she cured her yeast infections by douching with tea tree oil. I was skeptical but desperate.

So I bought organic tea tree (it can't be mixed with anything else) and followed her directions. Which really were this: get a d%$#@#$ kit (I didn't want a big huge contraption as I get yeast infections often and many times after sex (sorry to be so graphic) so I wanted something i could easily pack when I travel so I went to ebay and bought a "Tiny Kit" very small) fill it with warm water and stick 2 Q tips in the bottle of tea tree. Then take those Q tips and swish them around the warm water in the d%$#@#$ water. Use it 3x a day for a few days, then 2x per day then 1x per day until infection is gone. Once its gone, continue to use for a couple of days.

It cured my 6 month long yeast infection up in a week. No doctor was able to help at all. Since then, I now d%$#@#$ after sex and I don't get them at all any more.

I did mention this to my OB/Gyn and she said, "that little tea tree won't hurt you but I don't see how it can help" (doctors are so skeptical of anything that doesn't come on a prescription pad) but its worked for me like a charm.

For those of you really suffering it might be worth a try.

Susan

I'm a huge pet lover as well, but I totally agree, there are so many different pet publications. I voted for the allergy one of course and it was winning but not by a whole bunch so please go vote! There are so many different allergies/food sensitivites that I believe this would have a huge readership, especially if done by Martha Stewart.

Susan

Oh I've never even heard of strawberry lemonade but it sounds good and its flavors both my daughter and I like! Its blended? We'll have to try it. I always drink the same thing at the 'buck.... "grande vanilla latte with extra foam please"

I told my daughter about the blended vanilla bean and chocolate chip and she said we need to check out the stawberry lemonade and also find out about the blended Mocha because she likes that too!

Thanks for your help!

Susan

Vanilla bean and chocolate chip??? My daughter is going to be devastated! There is so much she can't have because of peanut, nut and now gluten allergies/celiac. She loves both of these flavors.

I'm not a huge frappachino fan but what other blended cold drinks do they have that a 16 year old might like... I need to be able to make suggestions.

Are we 100% sure about the vanilla bean and chocolate chip? It was a long time ago but I was told they were ok.

Susan