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Latest Celiac Disease News & Research:
Everything posted by pixiegirl
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I just want to sort of correct something that a poster sort of said above. It was about how people with nut allergies have the same problem as people with gluten issues in that some manufacturers put warning labels on their food to cover their butts. I don't think that any manufacturer does this unless they feel there is a slight chance, regardless...
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ARCHIVED Is Gluten Free Bread As Nutritious As Wheat?
pixiegirl replied to Californiamom's topic in Parents, Friends and Loved Ones of Celiacs
I think then, if you eat gluten-free flour and pop a multi vitamin you'd be all set. Susan -
ARCHIVED Is Gluten Free Bread As Nutritious As Wheat?
pixiegirl replied to Californiamom's topic in Parents, Friends and Loved Ones of Celiacs
Its just so hard to compare and I'm not sure what the point is... if you can't have gluten, then you can't have it regardless of if its a tad more nutritious then rice bread. Make a point of giving your kids healthy foods in other ways. I'm really made that Jerry Seinfeld's wife (and a few others) wrote those books about sneaking stuff in your kids foods... -
ARCHIVED Frustrated And Still Not Feeling Well!
pixiegirl replied to suzimarie06's topic in Coping with Celiac Disease
Like everyone else has said, its time for a new job. I know that can be a daunting thing to do, especially when your not feeling well, but I really think another sort of job will be better for your health. If you are a waitress or like food service you can probably work in another sort of restaurant, but I'd pick one that doesn't do a lot of on site baking... -
ARCHIVED Transitioning To Usa And Need Help With Meals
pixiegirl replied to mftnchn's topic in Coping with Celiac Disease
Yep I did miss you were dairy free... some of Annie's dressings are soy and dairy free as well as being gluten free. I have bought Drew's salad dressings and they clearly mark on each variety what it is free of. Seeds of change has some that are dairy and soy free too. Sorry for the mix up, its was I get for checking in her before 6 am! Susan -
Oh I'm sure you know this but this sort of guilt is just a waste of your good time and energy. It is what it is and there is nothing you can do to change it and having guilt doesn't change a thing other then your "energy". Its unproductive and hurts you and everyone around you. I gave up almost 100% on guilt in any form a long time ago. Instead put...
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ARCHIVED Another New Beer!
pixiegirl replied to mamaw's topic in Gluten-Free Foods, Products, Shopping & Medications
3rd in less then a week? What are the other 2 new ones? Susan -
Well I never went to Mayo but I bet a lot of us have similar stories to tell in how we arrived at being gluten-free. My personal journey took 11 years and if I eat gluten I have both physical and neurological symptoms, after being gluten-free for 6 or so years I'm also very sensitive to it and the slightest little bit makes me sick for weeks. I had a...
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ARCHIVED Transitioning To Usa And Need Help With Meals
pixiegirl replied to mftnchn's topic in Coping with Celiac Disease
My home is not gluten free (I have a teenager that eats gluten and is messy to boot). I don't have any trouble at home at all. Before I make myself a meal I clean the granite countertops really well and I do have my own cutting board. Although I do go to Whole Foods and other speciality stores I mostly buy most of my food at a regular grocery store... -
ARCHIVED Looking For A Tnt Fudge Recipe
pixiegirl replied to ebrbetty's topic in Gluten-Free Recipes & Cooking Tips
I love rachel ray's! We made some last week and are making some for gifts this weekend. You can use all chocolate or chocolate and butterscotch morsels (I think only hershey's butterscotch morsels are gluten-free). Then we add all sorts of stuff to it: dried cranberries, coconut, raisins, nuts, broken up peppermint sticks. Its fast and easy. I don... -
I've been away for a while and I see the forum has changed a bit... I use to be able to click on a topic and read all the posts on that topic right from that page, I didn't have to click on each post in a topic to see it. Now I have to do a lot of clicking.... is there a way to expand all the posts within a specific thread. I looked around but can't find...
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ARCHIVED Bruises Easily...anyone Else?
pixiegirl replied to Cat5's topic in Related Issues & Disorders
Well this is an interesting topic for me... I've been away from the forum for a while and every time I come back I learn something new! I am also lean but I'm not sure that has anything to do with my bruising. The bruises on my legs are often so dark purple and large that my doctor tested me for every disease that could cause this condition (some really... -
ARCHIVED Celiac Pill
pixiegirl replied to hit2win1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have no desire to eat gluten again, however; with all the travel I do... I'd welcome this pill... I very rarely get glutened, maybe once a year at most however my last glutening was LAST NIGHT and I'm so ill that if I had the ability to take a pill before I ate out, I would. I certainly hope the pill not only blocks the "sick" response but somehow makes... -
I have used the chebe stuff before and I like it, basically (if i remember) its tapoica, spices, milk, egg, some sort of gum i think. It tastes good and makes a very flat pizza crust. I don't have any right now but I have a lot of gluten-free baking ingredients and want to make some pizza. I searched the board and it seems all the pizza dough recipes...
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ARCHIVED Lab Test For Celiac
pixiegirl replied to pixiegirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks so much! Yeah this doctor use to be MY doctor but I changed after fighting with him for years about what was wrong with me. But my mom thinks he's the best - ugh! Also thanks Happy girl for remembering me, I've been so busy lately I haven't posted but I do come back and read posts now and then! Susan -
ARCHIVED Lab Test For Celiac
pixiegirl replied to pixiegirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes I understand that but my mother is 80 and was brought up to believe in her doctors, so what I am looking for is something from a website that says you have to be eating gluten for the test to be accurate so I can show her and her stupid doctor. Susan -
ARCHIVED Lab Test For Celiac
pixiegirl posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been on this list a few years, I have celiac disease. My mom has felt for some time now that she has it too (or some sort of issue with gluten). However she is still having GI issues and has been going to her doctor. He ran blood tests for Celiac (I think 4 of them) and they all came back negative. HOWEVER, my mom has not eaten any gluten for at... -
ARCHIVED Celiac Cure.... A Possible Pill To Cure Celiac
pixiegirl replied to PizzaGuy's topic in Gluten-Free Foods, Products, Shopping & Medications
Well we all have our own opionions on this issues thats for sure, I can't make any decision about it until its a reality, I mean until then we are just guessing. However someone said (maybe Deb) that we have an autoimmune disease and there will never be a cure for it. Again this is my opinion but I believe you are completely wrong... think of how many... -
Hi! First of all don't be embarrassed, I honestly don't think there is anything wrong with wanting to look our best. I've had a bit of cosmetic surgery (my nose when I was younger and recently my upper eye lids) and my goal is not to try and look 35 but just to look darn good for my age. I can tell you a bit about lipo because my 2 closest friends...
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ARCHIVED Struggling For A Diagnosis
pixiegirl replied to aussiegirl17's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It took me just over 11 years to get diagnosed. Your lucky it was only 3 years! I kept marching back and forth from doctor to doctor, and first it was IBS, then I was "crazy". Finally someone of thought to test for Celiac. Just be grateful you know. Susan -
I think you must be dating my boyfriend.... Susan
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ARCHIVED The Christmas/ New Year Period
pixiegirl replied to Saz's topic in Coping with Celiac Disease
Yep both times and both at my moms house. And I hate to say but its almost intentional.. I swear she is passive aggressive about this...(I really do love my mom but this is turning into a huge issue with us) she has Celiac and should be gluten-free but won't do it, she "can't give up bread". and chips, and tortillas, and pancakes, and ....... you get the... -
ARCHIVED How Do People Cope With The Frustration Of Celiac Disease?
pixiegirl replied to dagreen's topic in Coping with Celiac Disease
You know what... I've noticed this before but it often seems like a lot of "young" people have more of that difficulty coping.. Now please don't get me wrong, I'm not bashing younger people at all... but I do think that maybe when your older you have more perspective on life and value good health in a different way so perhaps its easier for us. I wasn... -
ARCHIVED Reaction To Amy's Gluten-free Pizza
pixiegirl replied to Laurad-'s topic in Gluten-Free Foods, Products, Shopping & Medications
First of all, as we all know, putting "tone" or inflection in an internet posting is impossible! But when I read PennyGs' note I didn't think she was saying the original poster was narrow minded but that the doctor defination was. I'm sure she didn't mean the poster who clearly stated that it was a/her doctor that gave her that info. So no harm on foul... -
I use to answer these sorts of threads in a "just buck up" way and then stopped answering them at all because I knew I wasn't being helpful. Now after 2 glutenings at my mom's house, (in a 2 week time frame) I can totally relate. I'm not sure what your parents issue is, certainly its a difficult diet to understand when it's YOU that has to be gluten...