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pixiegirl

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Latest Celiac Disease News & Research:

Everything posted by pixiegirl

  1. pixiegirl
    I come at this from the same direction as April, my daughter has a life threatening allergy to peanuts. And I did eat peanut butter not only thru my pregnancy but all my life, I use to love the stuff (needless to say we now don't have any in our home nor do I ever eat it). In my family there are no food allergies. However my daughter was born with...
  2. pixiegirl
    I just went back to Outback for the first time in ages... the gluten-free menu was different from the last time I was there and the Blue Cheese dressing is no longer gluten-free. Bummer! I had ranch but it tasted like mayo to be honest. Next time I go I'm going to bring my own Boar's Head blue cheese to mix in the ranch dressing! Susan
  3. pixiegirl
    I have celiac and food allergies, I'm very sensitive to gluten. I go out to eat often and I travel a lot for both work and play and I almost never have a problem. Just like you virtually the only place I ever get glutened is at other peoples homes! Now for me even considering buying an RV to avoid glutening would be a crazy idea (totally hates anything...
  4. pixiegirl
    I've been following this thread and ordered just a few days ago, so I won't get this new special - bummer. I'm a Bare Minerals user and if EM works as well I'll be saving a whole bunch of money with them. However when I read the new special a few posts above I have to tell you the name "New Car Smell" turns me off! Yeah I know its nice to actually own...
  5. pixiegirl
    Actually the answer is really no, most drugs that we use on kids were never tested on children. A drug gets approved and rarely are they approved for an age group only. Antidepressants are an example, tested and initially used on adults but then doctors began to use them on younger and younger patients. After they were used a while on teenagers and...
  6. pixiegirl
    Well its been said in this thread a number of times that we each have to find our own way and what works for each of us, and that is so true. I said that I watch my weight constantly and don't go over my 5 pound limit, which is true, however at one point in time I did gain weight. I was at the end of my marriage and very unhappy at the time. I gained...
  7. pixiegirl
    I eat out a lot too and if I'm not trying to lose weight I order what I want to, but I rarely finish it all I often bring some of it home. If I am in the weight loss mode I stick with fish and salad and veggies, or chicken, much plainer food. But we still enjoy going out (no cooking, no clean up, etc.). I usually splurge when we are out to dinner and have...
  8. pixiegirl
    Yes I didn't mean to sound argumentative and just like you I didn't want anyone to think that I thought taking in only 900 calories a day was a good way to lose weight. In my book its a good way to ruin your health. I am very "into" being healthy... exercise, eating right, maintaining my weight, being positive and centered. For the most part I eat...
  9. pixiegirl
    Well I'd like to add those are general guidelines and everyone's metabolism isn't exactly the same. I also want to make it clear that I wasn't implying she should eat 900 calories a day, that isn't healthy at all. I was just making the point that if one was eating 900 calories a day for weeks at a time, and they have no metabolic disorders, the bottom...
  10. pixiegirl
    Chocolate is big with me, so is Ben and Jerry's Cherry Garcia ice cream (ok its got dairy but these are some of the things I eat). I love Enjoy Life snickerdoodles. Enjoy life has a lot of good snacks. I've been eating those gluten-free candy canes (bought after Christmas at half price!) Susan
  11. pixiegirl
    Hmm.... I'm not sure what direction to approach this so I guess I'll hit all the stops... If you are gluten-free and feeling healthy again and you really are eating only 900 calories for say a couple weeks at a time and not losing a pound then there is something wrong and you need a doctor to evaluate your situation. I'm not sure but you might ask your...
  12. pixiegirl
    Yes I did and he insisted that I still didn't have celiac. Needless to say I changed doctors. Some people just can't admit they are wrong. Susan
  13. pixiegirl
    Yes I think a whole lot more research on Celiac is sorely needed. I have celiac (with double DQ2) and so does my mom (who is back to eating gluten as her doctor insists that she has IBS and that at her "age" its not necessary to be totally gluten-free and she chooses to believe him because she can't "live" without bread). My dad died of a stroke 6 years...
  14. pixiegirl
    Hmmm well let me say I'd be happy with a pill that would help with accidental glutenings! As I've said many times I travel often and it does happen occasionally to me when I'm on the road. Over all I've had very very good luck (not to mention how careful I am) eating in restaurants all over the country, in canada, mexico and the caribbean. But I thought...
  15. pixiegirl
    I'm not sure I'd buy the statistic if I saw one! There are so many undiagnosed Celiac's that I'm not sure a % of current celiac's would be representative and probably won't be until doctors are more open to making a celiac diagnosis. I will say that from reading this list and talking to other celiac's it sure seems like a lot of us have other issues going...
  16. pixiegirl
    I hope they don't start consolidating manufacturing... GFP has products that are gluten-free and peanut/tree nut free and I think think Glutino does. Its very difficult to find flours, mixes, and gluten-free products that are both. Thanks for the address I'll write to him and ask him to keep them nut free. Susan
  17. pixiegirl
    Add me to the list of people that get drunk on a single glass of wine. I was never a big drinker but I certainly, over the course of an evening that included dinner drink more then a single glass. Now after a small glass of wine I'm actually tipsy and if I have even 1.5 I'm a goner! My boyfriend calls me a cheap drunk (he's teasing me of course he...
  18. pixiegirl
    For what its worth I didn't have any symptoms of Celiac until I was pregnant, that was my trigger I guess. It took me 11 years to figure out what was wrong with me. I went gluten-free on my own too and felt far better (not 100% but 80% better maybe) after just a few days. I ended up doing an entrolab test and found out I have both of the main celiac genes...
  19. pixiegirl
    I'm on Cape Cod. When I went gluten-free about 6 years ago that made most of my symptoms go away. I had a good GI dr. and did have blood tests for EOS disease and they were really in the ok range. Then I was scoped and I had tons of areas that tested positive for EGID (eosinophilic gastroenteritis intestinal disease). So I don't think a blood test...
  20. pixiegirl
    Good for you! Its never been hard for me to be gluten-free, I don't even think of eating gluten because i get so ill. I'm actually to the point where I don't much miss bread or cookies, I've found gluten-free alternatives. I love chocolate and ice cream so when others are having gluten desserts I'm able to still eat sweet things that I love. ...
  21. pixiegirl
    I couldn't live without my iPod, iPhone, iMac.... for a non Apple mp3 player try Amazon. Actually Walmart has online music too. Open Original Shared Link Enjoy! Susan
  22. pixiegirl
    I have a few friends that are doctors and I think that most go into medicine with good intentions, so why do so many end up being not as warm and fuzzy as we patients would like? From some of the stories I hear from my md friends... its because doctors and police fall into the exact same thing with their "clients". They all lie. And after years of...
  23. pixiegirl
    I never had DH diagnosed either but I do think I had it, for years I had dark purple spots on my skin, it didn't look like classic DH but it did go away (slowly) after I went gluten-free. On top of the dark purple rashes I also had small red bumps and other various rashes, some itchy, some not. And for the most part they are all gone too. I think when...
  24. pixiegirl
    i know its hard to do but mom's often have to be meanies, comes with the territory! Again this is about good health so its so important. Good luck!
  25. pixiegirl
    Boy do I agree with the above poster. Its your house, I'm assuming your doing them a favor by letting them move in... I'd tell them the house is gluten free - period the end. When they want gluten they can go to the grocery store and eat the junk in their car. Or go to a restaurant and have it. This disease could permanently effect your daughters health...
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