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captaincrab55

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Everything posted by captaincrab55

  1. captaincrab55
    Witchy Woman, Whats your Doctor's name from Hopkins ???
  2. captaincrab55
    bllamb47, I don't have a medical back round, but is your husband getting the required blood labs that go with taking Dapsone??? My Dermatologist directed me to take Dapsone daily in the morning and that a smaller dose daily was much more effective then a higher dose every other day... Removing Gluten from his diet for 5 years should have relieved...
  3. captaincrab55
    Please share the name of the product with us....
  4. captaincrab55
    Working on our third box, Great product.....
  5. captaincrab55
    Gluten Free for 18 months and the Big D returned about 6 months ago... It started gradual along with some minor gut pain... I saw my GI early in Jan and discussed options... I was thinking I had issues with corn or even another food/foods... The plan was to see a food Allergists and if I tested negative, the Butt & Gut Scopes were next... ...
  6. captaincrab55
    I'll get the scope results Thursday... I live between Baltimore and Bel Air, Maryland ... jlee2, Where did you have your testing done???
  7. captaincrab55
    jlee2, Have you tried an Environmental Allergist ??? I'm working through some issues currently.. Just this month, I've been to the GI, Food Allergy Testing (negative to all 27 foods tested for) and the Butt & Gut Scopes.. Waiting for the biopsy report... The Food Allergist did warn me to beware of the Snake Oil Salesmen out there, but did mention...
  8. captaincrab55
    My Dr started me on 25mg for the first month, now I'm allowed to double that as needed.. I try to keep it @ 25mg, knowing that it may cause some nasty side effects..
  9. captaincrab55
    Before my Dermatologist would prescribe Dapsone, he wanted to see a base line blood lab... Only after reviewing my Lab results did he call in a prescription.. Than it was weekly labs for the first month and now every 3 months
  10. captaincrab55
    Thanks for the Bump... I got an email that there was a reply to this topic... This must be a Pet Forum or I need to find the Ignore Button.....
  11. captaincrab55
    Wow, that was a fast diagnoses of DH... In my case it was 56-1/2 years(lifetime @ the time for me), 4 Dermatologists in the last 30 years and lost count of the many Doctors my parents took me see... Dapsone was a wonder drug for me, but there were many blood tests involved... I always get a copy of the lab work and share it with my other Doctors...
  12. captaincrab55
    Jack, Tell us about your milk allergy??? Do you use milk on your ceral?? If so, what kind???
  13. captaincrab55
    I'll try it... I'm use to pain, I'm married....
  14. captaincrab55
    If One thinks it's a pain to check Meds for possible Gluten contents, start checking for corn content... Hydrolyzed wheat may offer an option for the Pharmaceutical companies... I'm sure people with corn allergies or sensitivities will be keeping tuned in to see if corn can be hydrolyzed...
  15. captaincrab55
    Roda, I'm sure it's not a big deal for some, but it could be a BIG DEAL for those that have issues with corn... What does it mean?? Somebody out there is really doing research... It doesn't mean that it's meant to suite us all... If it helps some, that's Great in my book.... Many years back when I was growing up, the great debate was still going...
  16. captaincrab55
    I Posted last month that my Doctor said there was a big break with Micronized Gluten... I'll check with him on my next visit, but I think he meant hydrolyzed... He claimed it was going to be a Big Break Through for many with celiac disease....
  17. captaincrab55
    Distilled white vinegar works too....
  18. captaincrab55
    Check out the Supper WALMARTS for a Gluten Free section... I found Annie's Rice Pasta & Cheddar (gluten-free) @ the Supper WALMART in Aberdeen Maryland.. It was less than $3, but @ the Health Food Store it was a $1 more... Most prices there were the best I could find...
  19. captaincrab55
    Great Advice, but keep in mind there may be some other food that can cause issues too... It may be almost impossible to live with someone else and eat Gluten Free 24/7, if they aren't into seeing your health improve... Once Gluten Free for a while, you may find some or even all of your problems resolve themself... You may even discover some other...
  20. captaincrab55
    shezatrip, Welcome to the Group... Looks like I had Celiac all my life (over 56 1/2 years), along with Dermatitus Herpetiformis.. I'm still looking for answers.. I ran into some Issues with Enterolab, they can't do business in Maryland... Keep in mind that they are adding corn and other foods to their Food Testing Menu... Not sure about...
  21. captaincrab55
    Just wondering if anyone heard or knows about, "Micronized Gluten" ??? I saw my Dermatologist late Wed 12/22/10, for my DH and he claims it will make it possible to eat gluten after that process... He thinks the new process is about a year or so away from putting safe food on the shelf.. I did a search here and didn't see anything Posted here about Micronized...
  22. captaincrab55
    I thought "hydrogen peroxide " was old school and may do some harm to healthy cells..????
  23. captaincrab55
    My Doctor sent me there telling me that this Allergist was one of the best in his field.. There wasn't any chance to ask a question... It took several days of calling just to leave a message.. They called back when I wasn't available, and my wife was able to make the first available appointment for me (4 months away).. It was almost another month...
  24. captaincrab55
    Lisa, Some read with blurry eyes.. I'll re-read it in the morning with clear eyes.. Thanks
  25. captaincrab55
    As far as FedEX, Enterolab won't cross State Line in Md with any paper trail, but they will email (go figure)... As far as an Allergist, I saw one @ Johns Hopkins last February... For the $$$ I spent there and losing a days wage, I could of paid Enterolab full out of pocket.. It took 4 months to get the appointment, I showed up and he didn't...
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