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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    So glad the steroids worked for you! I have pretty much the same stuff, dizziness and mental stuff, but I react to stuff in the steroid brands the doctor has tried with me, so I'm out of luck, sadly. At this point, with no other recourse that I can think of, if I am the sole adult responsible for my kids and we're out of the house, I don't take any...
  2. T.H.
    I think I'm going to hell for snickering over this one as loudly as I did.
  3. T.H.
    Honestly, I do not know how something like this might affect a Celiac, although I know it does a number on those with wheat allergies. The Bridge-Gate Alliance Group makes compostable Serving Ware and containers from wheat pulp ( Open Original Shared Link ) Most of their products seem geared to the food industry, with take-out boxes of all shapes...
  4. T.H.
    While I didn't perform the tests myself, I do have an acquaintance who has tested some wines for gluten with the ELIZA test. 2 out of 7 wines did test positive. Probably don't wanna offer that $500 just yet. The test had a detection level of 10ppm, so all I can say is that it had more gluten than that. Probably still less than 20ppm, I'd imagine...
  5. T.H.

    ARCHIVED Having A Bad Day...

    T.H. replied to shayre's topic in Super Sensitive People

    Ah man, so sorry you've been zapped so badly! Yeah - I reacted to the Spectrum Avocado oil. I was so, so bummed about it. Same thing as you - the cc was low, and slowly, slowly building up, and it took me a while to figure it out. And I had that same moment of contacting the company and finding out it was a cc risk. I hope you have the same success...
  6. T.H.
    The one farmer I spoke to the most on this didn't sell the rye but rather dug it back into the soil. It's one of those things where I don't actually know what the risk level is, you know? I imagine that some of the grain is likely broken up when it is dug back in, and I don't know how long it takes for the outer coating of the grain to break down in the...
  7. T.H.
    It can definitely happen. Many of us find that we start reacting more to foods we are allergic to after going gluten free, as well as becoming more sensitive to gluten, too. For some people, this happens over the course of weeks or months, for some it's very quick. I started having problems at about day 2 of my gluten free diet. It might help...
  8. T.H.
    Couple quick questions: 1. Do you react to oats or legumes, do you know? 2. What brand of rice did you use? If you were using Lundberg, they have oats and vetch (a legume) as a cover crop, and so if you are an oat sensitive celiac or have problems with legumes, that could have been an issue. 3. Do you know if you have any problems with the grass family...
  9. T.H.
    I was diagnosed at 38, and I've likely had this disease since my mid-teens, if not earlier, judging by the symptoms that I've had my whole life that went away on this diet. Don't know how similar this may make the experience, but here goes! If you are like many of us, there's going to be some anger eventually cropping up. Years of suffering, and pain...
  10. T.H.
    Man, I envy your mom! I was kind of the same way. I didn't like it, but if there was something good to look forward to, I could get by. My kids are just like a freaking sitcom; I'm sure I'll laugh about it when they are older. We plan activities to do that they love afterward, snacks they love, some special thing...never helps. Last time, I...
  11. T.H.
    I'd agree, but with a caveat. When the dishwasher is doing a good job, and everything is washed off completely, then the dish is safe if it's got not crevices. But for things like, say, a plate with dried pasta residue, sometimes there is still some left on the plate, even in the dishwasher. We've had that issue at our relatives before, where we had to end...
  12. T.H.
    I think that may be the best explanation I've heard to illustrate why it's not an issue. :-)
  13. T.H.
    You can also get the mouth sores if you have an allergy rather than celiac disease. If it's an allergy, however, I understand that the sores will tend to show up more in the areas where the food touched - this according to my dentist, not an allergist. If it was an allergy, though, typically you'd get more on the roof of your mouth, your tongue, the back...
  14. T.H.
    Was the tapioca flour or the sorghum from a company that tests their products for gluten? If not, either one could have been contaminated with gluten. There's a little bit on a study here about contaminated gluten free grains: Open Original Shared Link It's entirely possible to get contaminated gluten-free grains, in other words. A couple other...
  15. T.H.
    Are you exceptionally sensitive to gluten? The good thing about Enjoy Life is that they are certified by the GFCO. Their products will be tested and they should be 10ppm or less. It's possible that a batch might not have been tested, but if you do well with food that is usually 10ppm or less, the gluten probably wasn't an issue, at least not with the...
  16. T.H.
    I couldn't have salt for a while without getting sick, and no processed food, but my dizziness didn't resolve for me, at least, until I went super, super gluten free. Even tiny bits of contamination make the vertigo recur within minutes, and then it slowly dissipates over a few hours to a couple weeks, depending on how bad it was. I think it took...
  17. T.H.
    We've had the best luck with Enjoy Life chocolate chips, too. Although I'm curious what peanutbutter chips you found that were dairy free - I could never find some when I was looking.
  18. T.H.
    Well, I know that I developed carpal tunnel as a celiac, and that's gone away now. Also had odd aches and pains in my hands and arms that went away, as well. Might not be the same, but I could see it happening.
  19. T.H.
    My advice, based on how it went in my family and a few I've spoken to: 1. I would highly recommend either testing him, or putting him on a gluten free diet as strict as yours for a few months to a year. Some people are sensitive enough to gluten contamination that their symptoms won't go away unless they are on a very strict diet, so if you just go the...
  20. T.H.
    Feels crummy at first, but seriously? If you're like a lot of us, you will be freaking STUNNED at what turns out to be gluten related. Me? My joints and back and neck stopped hurting, my carpal tunnel went away, my weight dropped like a stone (good thing for me), headaches went away, dizziness went away. And the mental stuff is just wild. Memory improved...
  21. T.H.
    Woah, I would never have thought about that as an issue, either! Ugh!
  22. T.H.
    Simona19 - thank you for that dumping info. - I've heard of that before, but never in such detail. There's a friend I know with these symptoms who has been stymied as to what's wrong. I'm going to pass that along! Re: ataxia I've got that too, oh heck yeah. Before diagnosis, I was at ear, nose, and throat doctors and neurologists. Neither of them had...
  23. T.H.
    Oh man, yes I have had that thought. It doesn't happen when I'm eating normal food and get gluten contamination, though. I just feel miserable, then. But a few times when I'm being very careful, often in a social situation, and I have blech food only and I STILL get sick - the urge hits me. For me, though, the urge usually involves wanting to eat foods...
  24. T.H.
    I'm wondering if anyone knows of any research into what glyco-proteins are in some of the wild varieties of wheat, rye, or barley, and whether these are similar enough to those in cultivated varieties to be an issue. I know (well, I know NOW) that wild barley all contain "polypeptides similar to the two major hordein groups of cultivated barley," B- and...
  25. T.H.
    I would suggest testing them at this point, while you they are still eating gluten. Otherwise, the one problem you will run into is that if they are eating gluten lite, they may not have enough of a reaction to test positive for celiac disease, even if it does develop. My two kids were tested, although they had no gut symptoms. It was just due to my...
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