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T.H.

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Everything posted by T.H.

  1. T.H.
    I wish I had a good answer, but I ran into the same problem as you - so much information that didn't agree with each other. Confusing, and frustrating, and time consuming and at times, a bit scary, yes? In the end, I kind of jury rigged my own solution, had it tweaked for better 'workability' by my dietician, and then tweaked all of that again when I tried...
  2. T.H.
    It might be worth checking with some of the people here who have suffered from 'gluten withdrawal.' I believe some of them felt exhausted, fuzzy headed, upset, etc... during that time period. Perhaps that might be contributing? If that's part of the problem, at least that definitely goes away! Also, when she has these huge tantrums, do they seem...
  3. T.H.
    Oh I'm so glad it's healing up nicely! Phew! I admit, I tend to worry some. We don't know when my celiac disease triggered, but during my last pregnancy, I vomited constantly, for the majority of the pregnancy, lost weight for the first half, all that good stuff. The only thing that made me stop vomiting as much was when i read some random study about...
  4. T.H.
    My kids are gluten, dairy, sugarcane, corn, and egg free, although aside from gluten, my family's reactions are not life threatening, so there's the possibility that some of our food might not work for you - might be something in them I'm missing, eh? Breakfast possibilities: A piece of fruit or two. "Simply orange' orange juice. A grain porridge with...
  5. T.H.
    Let's see. Do kids have good and bad days during recovery? I have never experienced it that way, no. Myself and my daughter were both diagnosed last fall, with my son being a pretty suspicious false negative, since he had so many symptoms and they all went away, going off of gluten. For all of us, we had gluten issues plus a few foods allergies. Once...
  6. T.H.
    I don't believe the allergies would cause vit D and iron issues, but then again, if your son's response is inflammation, then the gut is often inflamed, and that might affect absorption, so possibly? They don't affect IgA levels, to my knowledge. Plus, Matt was fine on breast milk and didn't start having problems until shortly after we started giving...
  7. T.H.
    We'd heard of a gluten free bakery in a nearby city, Phoenix, Arizona, called Gluten Free Creations. It's a dedicated gluten free bakery, and I always wanted to try it out except we never get over to this town. Well, I just found out that it takes orders on-line and it SHIPS the food out, woot! It will deliver pretty much anywhere in the Southwest, and to...
  8. T.H.
    I've heard that it can take some time to recover. Some people also notice something called 'gluten withdrawal,' which seems to have some similarity to your symptoms, but I haven't experienced it myself. Hopefully someone here will say what that was like for them. :-) As for me, when I went gluten free and immediately started feeling spacey, foggy headed...
  9. T.H.
    First - my doc mentioned that adult diagnosed celiacs can take up to 2 years to fully heal, so 3 months is just a drop in the bucket, eh? Crossing my fingers that all your body needs is time! I lost about a pound a day for the first month or so, and then slowly continued to lose up until about 5 months gluten free. Second - has he looked at Crohn's disease...
  10. T.H.
    You're pregnant? Well congratulations! But also - that's a WHOLE 'nother ballgame. Really and truly, you may want to consider making all food yourself or calling EVERY company to check on cross contamination, for the duration of the pregnancy. I haven't been pregnant while celiac positive, but I've read a few accounts from gals who have, and a number...
  11. T.H.
    I know, they do, don't they? I kind of wish they were, but I don't test positive on ANY prick tests, and I test positive for only a bare fraction of the foods I react to with blood tests. Things that make my throat swell up have nearly undetectable IgE levels. It's very, very weird.
  12. T.H.
    If the chicken says something like 'X% retained water' then that usually means it has been brined in something (usually salt, water, and sometimes other spices and ingredients), from what I read. If that includes wheat, I BELIEVE that has been covered in the newest allergen laws. If the brine included rye or barley, the label doesn't have to say a darn thing...
  13. T.H.
    I'd add that it depends on what country you are in, and what country you are buying the product from, as labeling laws differ, and preferred ingredients used to make maltodextrin differ from country to country
  14. T.H.
    I'll be honest, I never just go with the label. I don't think it's safe, especially after reading a couple studies. A Dr. Murray at Mayo Clinic said the following, after a study of celiac disease and symptoms: we were surprised to discover no correlation between extent of intestine damage and patient symptoms. Which means, best I can tell, that a slight...
  15. T.H.
    You could definitely have celiac disease with a false negative blood test, but what I've heard is you'll need to go on a gluten diet for 6 weeks before trying a biopsy, if you want one. If you have a cousin with celiac disease? You are in the group of folks where 1 in 56 have celiac disease. If you have symptoms? I'd say the odds are even greater. gluten...
  16. T.H.
    Question on how you make your coffee/tea. Do you use tea bags or those coffee equivalent ones, where they are in sealed pouches? Some of those can be sealed with gluten and could be glutening you. Have you double checked your coffee brand for gluten? I know some brands have gluten in them, like Teeccino brand has barley in it, if I remember right....
  17. T.H.
    With regard to Dr. Blazar, I"m afraid I don't really follow the logic of Dr. Blazar's writing, partly because I know that he has some of his facts wrong, and other facts are actually opinion that can't be verified, and would be actively disputed by many experts in the fields involved. For example, not all legumes are toxic if eaten raw, only some are....
  18. T.H.

    ARCHIVED Walk-In Clinic Doctor

    T.H. replied to Coinkey's topic in Doctors

    First - this is an awesome doctor, IMO. If you can get him again, I'd go for it. I know regular doctors who don't do these tests, and they SHOULD. I don't recognize all of them, but the ones I do recognize are for vitamin deficiencies, and I believe a couple check certain levels of 'something' that checks how certain organs are functioning. I recognize...
  19. T.H.
    My 11 year old daughter had the same issue - very exhausted after going gluten free. I had been diagnosed celiac just a few weeks before her and was tested for food allergies, so that was on my mind when she started feeling worse. The GI said that many celiacs have other food allergies or issues (sensitive to other foods) as well. Also, many celiacs...
  20. T.H.
    Think your doc is totally wrong on this one, and wow did I find some fun info to bring back to him! First, the Standard Process Company has this answer to the fact that they do NOT have a list of products that are gluten free: "...There are a few reasons Standard Process does not label products "gluten free": * Grains containing gluten...
  21. T.H.
    Personally, I don't think it's in your head, and you can definitely react that quickly, especially if you are inhaling something in the air. If you can smell it, that means there have to be molecules enough in the air to create the smell. However, based on that small an amount, plus the scratchy throat and other symptoms, I wonder if it might be an allergic...
  22. T.H.
    Yeah, I definitely did, although looking back, there WERE symptoms, just not gut ones. Vitamin deficiencies caused me to get sick more often, get well more slowly, and I had soft tissue stuff like carpal tunnel. My father had his hips and spine destroyed and early arthritis from lack of nutrients. On top of that, you're immuno-compromised whenever you have...
  23. T.H.
    Another possibility is that you are reacting to something that is more common in gluten-free foods. I never had any gut issues, no known food allergies, before going gluten free. Felt worse AFTER going gluten free. Turns out, I have issues with some of the foods that are in gluten-free foods. One was sugar cane - it's typically less processed, it's added...
  24. T.H.
    >>>>I'm also taking a probiotic and vitamin D supplements (as I'm vitamin D deficient). Did you make sure the probiotic and the vitamin were gluten-free, too? I've seen a number of them that aren't. And as for your doc - honestly? I really doubt the doc is right. My GI? He gave me tests for celiac and allergies, and then added, "And then...
  25. T.H.
    My body's a bit crazy - but had a lot of pain and other issues that sound somewhat similar. I just answered another thread about what happened in my case, in case it helps, and I'll just link to that! Good luck - I hope that someone here has the answers that match your need so you can start to feel better!
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