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T.H.

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Everything posted by T.H.

  1. T.H.
    I think CYA is the catch phrase of the day, LOL. If the label says 'gluten free,' does that tend to be safe for you, then? My father can eat like that. I must admit, I get a bit jealous of being able to do that. It would be awesome, I think!
  2. T.H.
    I've heard to be careful of tea, both for barley or wheat content AND for the possibility of a tea bag that might be sealed with wheat paste. But the closest I've ever come to finding a company that seals with wheat paste was Lipton tea not answering the 'what seals your tea bag' question. Them: Just check the ingredients label to see if our teas have...
  3. T.H.
    Oh, I just saw that exact thing! They have that one page on their website, Open Original Shared Link It listed foods that should no longer be on the list, and walmart had a whole bunch of products listed as bad, now. I've been going through this morning and crossing things out of the book since I found it, which is what got me wondering about how accurate...
  4. T.H.
    I just bought the Gluten-Free Grocery Shopping Guide, that one Cecelia's Marketplace sells. For anyone else who has bought this: Did you like it? Did it work for you? It looks pretty cool - I especially liked the symbols to designate completely gluten-free facilities, since that's what it's looking like I'm going to need. But the book has that standard...
  5. T.H.
    My GI doc saw me at 6 months to get another blood test, and seems to make appointments every 6-12 months after that, depending on how people were doing. When I was first diagnosed, I was tested for a whole host of vitamins and such, especially vitamin D levels, calcium levels, and vitamin B levels - often a problem for celiacs. I think vitamin A, zinc...
  6. T.H.
    I would second contacting your local celiac group or church - they will often help. I know here, for example, we have a family who was having financial trouble and worked out a barter system with people who could get them what they needed. They did yard work, etc... for these people in return, and it worked out well. Do they have canned goods, or fresh...
  7. T.H.
    If you've found the reason for your symptoms, that is all that matters in the end. I think so many of us here have been through so much where we had to hunt and fight to figure out what's wrong, most of us are just happy to hear that someone else has found the answer for their own health, no matter what that answer is. COngrats - I hope your doc had...
  8. T.H.
    What is your current diet right now? Just for something to tweak on the food diet? Something that might help to track stuff down might be to eat the exact same foods 2-3 days in a row, and then change to a completely different diet the next 2-3 days. don't reuse anything, not salt, oils, nothing. That might help you get a feel for at least what makes you...
  9. T.H.
    I know for us, we're still 'tweaking' too. We've been gluten free a year now, and just realized that the company that makes all the oils we've been using also processes wheat germ oil on the same lines as the other oils. It has the possibility of contaminating any oils made on the same line. My daughter periodically was still having tummy aches, and we think...
  10. T.H.
    Oh, I'm so sorry. What has she been tested for by the doctors so far? And is she bloated and nauseated just after breakfast, or after every food she eats? Does her nausea and bloating get better during the night while she sleeps and rev up again after she eats? If it's after she eats, I would seriously take a look at what food she is eating for...
  11. T.H.
    Thank you so much - This is all stuff I can try, and that's so hard for me to find sometimes, it's wonderful. If you ever remember the name of that book, I'd be really interested in hearing what it was - it sounds interesting.
  12. T.H.
    Thank you so much for the ideas! I think the water would help, and the foods sound very interesting, especially the ginger and turmeric. Waaah - can't do a lot of the others. I've been reacting to dyes and other stuff, too, so most nice pain-reducing meds aren't so good anymore. I never thought of exercising! Heh, it'll be clumsy dizzy exercising...
  13. T.H.
    I thought I'd been glutened once before - I've been reeeeeeally careful and had a limited diet, so it was pretty obvious. I felt kind of flattened and dazed the one time it happened, a teeny bit dizzy. It was from CC. Now I KNOW I've been glutened, off of stupid nuts, of all things, processed on machinery that processes wheat products, it looks like. I...
  14. T.H.
    I'm with Skylark - not hypochondriac at all. In fact, if you have any siblings, you should see if they would agree to get tested, too. Parents as well. They all have that 1 in 20 chance of having the disease. My father was diagnosed a few years back, and we tested no one. Then I came up positive and everyone got tested. My daughter AND my brother came...
  15. T.H.
    Okay, this is a bit silly and totally psychological, but it did help sometimes - I need to be doing it again as cravings have been hitting me! I got these little notecards/post-its and wrote encouraging things on them and stuck them in the places I was most likely to cheat. Like, "your health is more important than eating this right now" or "remember what...
  16. T.H.
    My own decision was to eschew formal testing after the first negative test and simply try a gluten free diet. My 12 year old was diagnosed last year, and my 8 year old came back negative. I had my suspicions about my 8 year old, though. He improved significantly on the gluten-free diet, so we're keeping him there. I don't know if it's celiac Disease or just...
  17. T.H.
    Thank you all so much for your replies, especially sharing some things that I'm sure were very painful. Hearing from you, it really does make me think that I may have had Celiac disease for a lot more years than I was thinking, but...sigh, what a frustrating thought, eh? At least things are on their way up, now though. So glad I was diagnosed.
  18. T.H.
    Thank you so much for sharing this. I was just asking a question about carrying babies to term with untreated celiac disease. I wasn't sure if it was possible. Looking back, at 16, I started having most of the symptoms that were resolved with a gluten free diet, but I had a hard time believing I could carry a baby to term if I had celiac disease, and I...
  19. T.H.
    I've met a lot of people with that opinion these days! The ones who feel like it's some weird modern disease. Or that if it was really such an issue, it would have been diagnosed before. Or the ones that think that there can't be a reason for the disease to grow more prevalent, so it must be doctors over-diagnosing. I tend to point them towards a few...
  20. T.H.
    Oh, congrats, congrats, congrats!!! And I felt one of my midgets that early, so if you have a real little mover and shaker, it's possible. And even if it's gas - hey, no harm in giving yourself a boost and thinking about it. I hope your pregnancy goes very well and wonderfully!!
  21. T.H.
    I've been trying to determine when my celiac disease triggered, and the one factor that I can't figure out is my pregnancies. I have read many places that miscarriages are often caused by undiagnosed celiacs disease, but I wondered if anyone knew if a woman can carry a baby to term with undiagnosed celiacs disease, or how common/rare that might be? I...
  22. T.H.

    ARCHIVED Doctor Visit - GW Hospital

    T.H. replied to rain's topic in Doctors

    I'm so sorry you hit such an ignorant doctor. Just as an example of his being just wrong? The most recent research on adult diagnosed celiacs say that only about 20% of us actually fully recover. The rest of us don't. So full recovery in 6 months? Uh, no, no, and no again. He sounds like he's either not up to date on the most recent research on celiac...
  23. T.H.
    toothpaste mouth wash hand lotion and hand products, if either of you tend to bite nails or put fingers in mouths floss (some flavored varieties have gluten issues, if I remember correctly) dishwasher soap and dishwashing soap (Cascade and Dawn are gluten-free, last i heard)) new plastic cookie cutters ice cube trays, if plastic If you do a...
  24. T.H.
    Personally, I think it's entirely possible. If anyone has celiac disease, then they'd have the immuno-compromised issue AND the nutrition deficit. Combine that with similar genetics (within a family, I mean), and I think it wouldn't be too much of a stretch to imagine some similar issues. My family doesn't have colon or intestinal cancer, but there are...
  25. T.H.
    Congrats on the gut getting happier!!!
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