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T.H.

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Everything posted by T.H.

  1. T.H.
    It's a sure sign that his body is not digesting fats properly, from what I understand. The fats are just going right through him and ending up in the poop, hence the floating. So that is definitely a problem indicating something that needs to be taken care of, especially if he's had it for quite a while now. Could be another type of intolerance - like...
  2. T.H.
    we often end up following the example of a Japanese friend of ours and we have little plates of leftovers for breakfast. Maybe add in another food to it, to make it pretty, fun, and lighter, typically. Other than that, we tend to stay to veggies, fruits, and maybe a little meat for breakfast. Or a handful of nuts over fruit is good, too, especially with a...
  3. T.H.
    Yeah, I'm off of all grains, too. I thought it was the grains themselves, at first, but more and more I'm leaning towards it being minute levels of CC that are still enough to affect me. I've actually had the opposite issue as your family, oddly enough. I have much more severe issues with gluten, so we started having more basic meals for everyone because...
  4. T.H.
    Re: the refractory issue... I tested still positive on the blood tests for getting gluten at my 6 month check. My doctor at the time thought it might be allergens/intolerances that I hadn't eliminated yet. He said those can cause the body to not heal very well. I dropped those, and was still having trouble finding things to eat that didn't make...
  5. T.H.

    I am sorry. I was trying to give you a compliment on your post and I goofed it up so I thought I could undo it if I pressed the negative sign. I didn't know that was for reputation. I don't know how to undo that.

  6. T.H.
    For me? In order to go completely gluten free, I had to drop my nuts - they are very hard to find without at least some level of CC. If you are buying your meat and it's cut at the deli or at the meat counter at the grocery store - good chance of CC there, too. supplements and medication - sadly, allergen free and gluten free, because they are legal...
  7. T.H.
    I've heard that a lot of Celiacs are sensitive to soy, have very nasty symptoms to it, etc... And then I heard this: soy beans are often grown as a rotation crop with wheat, where wheat is harvested and then soy beans are sown in the same field, where they grow and get covered in whatever left over wheat pieces are left on the ground so gluten touches...
  8. T.H.
    Enjoy Life Foods test coming in based on a rating system (if the grains are not milled in a gluten-free facility, they are tested), and test every batch that comes out. Gluten Free Pantry is part of Glutino. They have the same testing practices. Pamela's tests every batch coming out (5ppm gluten or less), but not everything going in. Their flour mixes...
  9. T.H.
    One thing that can help you make sure you get a very lose amount of gluten is to look for the CSA and GFCO gluten free certifications. They will test products - that pay for this - and the CSA certifies the products to be 5ppm or less, I believe, and the GFCO certifies that the product has 10ppm or less. The GFCO is a little black circle on a white...
  10. T.H.
    Could be either one, really, I'd think. I've started noticing symptoms that I never even thought of AS symptoms, but now, I can remember times that they happened before and I just thought it was normal, or I was feeling a little 'out of it,' that sort of thing. I think often we've lived with so much crap for so long that we're used to discounting our...
  11. T.H.
    Mine would be, I believe. My GI was one who was telling me to tell the office all my symptoms, all the foods that made me feel bad, whether or not I had tested as being allergic to them, because 'tests don't tell us everything.' So yeah...he was great. :-)
  12. T.H.
    I honestly don't know if my own experience has any relevance, but I will mention it in case it does, because if I hadn't found the answer, I would likely still be having trouble every single day, just like you. For myself, my being sick all the time had to do with the fact that I am actually very, VERY sensitive to gluten. I had a few mild allergies...
  13. T.H.
    1. Sex: Female 2. Age: 38 3. How long ago were you diagnosed with celiac disease? 1 year. We think it triggered in my mid-teens, as that's when I started becoming ill. 4. Does anyone in your family have celiac disease? Yes. Father, brother, and both children. Father diagnosed 8 years ago. Everyone else diagnosed within a few weeks of myself. ...
  14. T.H.
    Did you talk with the wait staff about being gluten free, or did you only order off the gluten free menu? Because my first thought would be that they weren't as careful with your food as they should have been. I've noticed that with restaurants we go to, if we don't give some specifics, like 'use clean gloves with our food please' and 'if you grill this...
  15. T.H.
    I know a lot of people here who simply go gluten free, just like you. I believe the philosophy is: why should I hurt myself just because we don't have the medical know-how to diagnose anything but celiac damage? Kind of like cutting ourselves for the doctor to prove to him that we bleed. As for any issue following the diet, no, it shouldn't hurt you to keep...
  16. T.H.
    as many have already said, I couldn't say for sure that gluten has been causing this issue for you, but your description could pretty much be my daughter, word for word. Very easily bought down, bursting into tears at a moment's notice and unable to stop. My son reacts with fury and anger instead of tears, but it's just as uncontrollable and just as...
  17. T.H.
    There is such a thing called 'gluten withdrawal,' but I can't recall the symptoms right now. However, I felt worse within days of going gluten free, and it turned out to be a few food allergies I never knew about plus a HUGE jump in sensitivity to gluten. I had to drop all grains (they were all too contaminated with gluten to tolerate, even now, a year...
  18. T.H.
    I don't know if this would have any relevance at all, but there was something my GI doc told me that I'll pass on, for what it's worth. He was saying that many of the animal studies are discovering that genetically modified foods are causing the animals to develop allergies more often than those who weren't fed GM foods. For a little one with many allergies...
  19. T.H.
    I'd be leery of it, honestly, especially with your daughter so small yet that she can't really tell you if she's not feeling well. My daughter was 11 when she was diagnosed. We started her on gluten-free foods and she improved, but it wasn't until the last few months (she's 12 now) that we were able to tell that some of the gluten-free food still had...
  20. T.H.
    Since she's so young, you'll want to be sure to look at your soaps, detergents, and shampoos, etc... Little ones may not rinse the soap off as well and suck on their fingers, may suck on clothing, swallow shampoo when it's rinsed off, etc... Your lipstick or anything that you wear when you kiss the midget can give her gluten. Any lotion or sunblock on her...
  21. T.H.
    My son was short, but not as thin as he was short. His growth has not jumped up at all, but he's doing better in other ways. Emotionally more calm, less tired, etc... But he's still a little shorty, about a year later.
  22. T.H.
    One can't outgrow celiac disease, no. I would guess the test was accurate considering that your son improved on a celiac diet. And there is definitely a chance of some severe problems at this point. My father had no gut symptoms, but his hips deteriorated, his spine developed arthritis, his lungs had problems, etc... It also increases his chances...
  23. T.H.
    I had to go whole hog, but my dietician has a way that she says encourages success, so maybe that? Basically, she encourages her celiac patients to start by trying out gluten free dishes while still eating their other foods. So you do the hard work of finding recipes, trying them out, finding products, etc... before you get rid of the gluten. Then...
  24. T.H.
    I remember when I was studying the neurological effects early on, I found a study on neurological damage that was gluten triggered, but the patients showed not damage in the gut. As I understand it, there was disagreement whether this meant the damage was due to celiac disease or not, because of the gut non-issue. I honestly have no idea where the study is...
  25. T.H.
    I had it exactly like this, too, with gluten. However, mine really got bad after a surgery when I was given medicine that had 'bad' things for me in it. So they did ultrasounds of the area, checked for kidney infection, worried that perhaps I had internal bleeding or something. Everything looked totally normal, even though the pain was very bad. But when...
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