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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    Sadly, it's pretty much an individual thing. I've seen products that are made on lines that are shared with gluten products, but that test every batch to be below 5ppm. Then I've seen food made in entirely gluten free facilities that only test to 20ppm or below. So some foods made in a gluten-free facility will have more than those sharing processing...
  2. T.H.
    I found this list of foods that were safe/unsafe: Open Original Shared Link I don't know how accurate it is, but it seemed like a nice starting place. :-)
  3. T.H.
    I believe you can recover cast iron if you put your cast iron in the oven on the self-cleaning cycle - that will strip off the seasoning and the gluten, both, if the stories I hear are correct. I didn't try this, because I got rid of my cast iron before I'd heard of it, but it seems to work well, from what I hear. The other metal pans that we had needed...
  4. T.H.
    Ha, yes - kind of funny when there are tons of people here who will be cheering for regular poop, LOL. And we totally are!! I hope that your symptoms are a result of your diet. Many here most definitely see an effect within days, so it's not unheard of!
  5. T.H.

    ARCHIVED Kissing Bandit!

    T.H. replied to notme's topic in Coping with Celiac Disease

    Oh man, so sorry it got you, but yeah, sometimes it's just too hard to believe it can even be real until it happens, yeah? And sometimes it can end up being kinda funny. Later. When it doesn't hurt anymore, yeah? This Thanksgiving, people around my hubby and I probably thought we were loons when I leaned up to kiss my hubby and he suddenly turned his...
  6. T.H.
    Hopefully it wasn't a stomach flu bug or food poisoning - so sorry it hit you, though! I wanted to add another story on the 'getting sick eating the same food' front. I've caught stomach flus and had food poisoning when my husband did too, and when I was still eating gluten (aka, not completely healed)I would always be sicker than he was, if he was at...
  7. T.H.
    Ooh, that's a great idea!
  8. T.H.
    aw dang - thanks for mentioning that. I saw the August date and thought it was a little dated, but missed the fact that it was an entirely different year.
  9. T.H.
    frustrating and upsetting, but not crazy, nope. Totally normal. My daughter and I never had anything that felt like a symptom we'd notice after eating gluten, but the longer we've been off of it, the more we have symptoms that pop up right after eating. Physical ones are frustrating and blech. The emotional symptoms have really been dramatic and noticeable...
  10. T.H.
    If she's willing, there's something she might be able to try to see if her unresponsive celiac disease is due to gluten in higher amounts than she can handle. That's not always the case, but it's definitely something that she could check on by herself. Unfortunately, many doctors are not up to date on how much gluten is actually IN gluten free food, so...
  11. T.H.
    One thing we're still looking for, but that would seem to be very useful, is a cookware set for an RV - a little set of pots/pans/plates that stack together easily. Then, these can be brought along on road trips and such so you always have a clean set of gluten-free pans for cooking. There are also these 'mini-microwaves' that you can find, some that...
  12. T.H.
    This may not apply directly to your situation, but I'll share my experience, in case it helps. My daughter was diagnosed about 15 months ago when she was 11 years old, too. She had no gut symptoms at the time, but the exhaustion and mood issues she'd had before the diagnosis of celiac disease didn't go away during the first few months. Doctor was no...
  13. T.H.
    It was typical for me, at least. I felt like I was utterly starving in the first 2 months. I've heard of others who have had this for a few weeks or a month of two in the beginning. The theory I've heard is that the hunger isn't so much for calories as for nutrients, when the body is now healing and trying to get all the nutrients it's been deprived of...
  14. T.H.
    Okay, frugal thinking cap on. 1. I'd take a long hard look at gardening. There are some ways to garden even inside a house or on a small porch that can save you money. Like hanging tomato gardens and hanging strawberry gardens, even. Herb gardens are a good way to save money and help with flavor, too. And you can often grow these inside during the...
  15. T.H.
    One thing that seems to get me with ham is the added dextrose in the ham itself, typically. It's usually a grain based sugar, so it is easier to get traces of gluten from that. Maybe if you can find a ham without a grain based sugar and try it? I'm still looking for one, but I've heard they exist, so I have hope.
  16. T.H.
    sigh yeah - hard to deal with sometimes, ya know? Very glad yours went well, though! You'll have to tell me how you made the cheesecake! Oh man, I so appreciate the invite! I have a feeling I'll be stuck coming here again - traditional at this point, ya know? But if we don't, I'm comin' on over! At the very least, we need to have you two over for some...
  17. T.H.
    Thanks everybody for the kind words - and the recipe looks wonderful. I'm fiddling to see if I can find a way to make it sometime! :-) the kids are feeling a little better today, at least - it's traditionally 'pie for breakfast' day, heh, and since I did get them pie, they got to participate, so yesterday's blah time is forgotten. I think next time I...
  18. T.H.
    Sounds like you're a likely candidate. Eating disorder or not, your symptoms are, as has been said, pretty classic. Yes, they can be tons of other things, but you're already noticing yourself a difference after changing your eating patterns: that's how they used to test for this in the days before the blood tests. Sometimes, sadly, the old tests are better...
  19. T.H.
    Ooh, interesting thought! I was colicky, although not severely. I was diagnosed at 37. My son was extremely colicky. He had a negative test at age 8, but symptoms resolve on a gluten free diet, so it affects him, definitely. My daughter was no colicky, but she always had trouble sleeping, staying asleep, lots of anxiety even as a small toddler. She was...
  20. T.H.
    Oh hon, I feel your pain!! I'm about 15 months gluten free right now, and my diet dwindled to nearly nothing too. No grain (gluten CC), no potatoes, no soy (major gluten cc - it's a rotation crop with wheat, sigh) and on and on - yeah. I hear ya. Don't know if this helps, but for me, the issue turns out to STILL be gluten. I'm just super crazy...
  21. T.H.
    Don't know if this is relevant, but looking on that lovely www.glutenfreedrugs.com site, it listed nexium as gluten free, but didn't have dicetel listed as such. It could just mean he's never tested this drug or heard back from the drug's company, of course, but since this drug has been around for quite a while and is also used so often for bowel issues,...
  22. T.H.
    I have some mild allergies, but most of what we thought were allergies or sensitivities were CC, for me, since I seem to be like psycho-level sensitive, LOL. Nuts, oils, and grains are killers; those really get me. Citrus tend to have a coating with gluten that makes me sick, and peppers and many other fruits do as well, so there's almost no fruits I can...
  23. T.H.
    Myself and my 2 kids are celiacs, my daughter and myself of the extremely sensitive variety. This year, I knew I had to make everything for us, as it's just too easy to get both of us ill otherwise. The house we're at has 2 kitchens, one well removed from the other, and I thought this would be great. I brought my own cookware, I brought our food, and I got...
  24. T.H.
    For potatoes, there's a few ways it could get CC, really. One likely one would be the butter, if you're making mashed potatoes. If the butter wasn't a new stick of butter, and someone had, say, used a knife on their bread AND the butter before it was used with potatoes, that could be an issue. Or if someone was making biscuits or rolls near the potatoes,...
  25. T.H.
    Actually, even before dairy, you might want to check your gluten-free foods and cut out even more gluten. There's a variety of gluten levels in the gluten-free food, and some folks seem to develop a bit more sensitivity to lower levels of gluten after they've been gluten free a while. My daughter definitely had that. She was doing better, and then started...
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