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T.H.

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Latest Celiac Disease News & Research:

Everything posted by T.H.

  1. T.H.
    Honestly, I would keep a food journal, just in case, and see if you can notice a pattern, just in case. Eating at home, with gluten free products, is, unfortunately, no guarantee of keeping free of gluten. Because gluten free products all have low levels of gluten, if you eat enough of them, you'll still get a gluten reaction. Or if you are becoming more...
  2. T.H.

    ARCHIVED Med Help

    T.H. replied to behappy123's topic in Coping with Celiac Disease

    there is a good site called www.glutenfreedrugs.com that is put up by a pharmacist who will list what has been verified as gluten free I checked your two, and this is what was listed: Synthroid (all strengths)-can no longer guarantee gluten-free status I could not find exjade, but that may mean it's not gluten-free, or that it hasn't been looked...
  3. T.H.
    My father, brother, daughter, and myself are all positive. My 7 year old son was negative, but he was small for his age, had problems with dairy, hard time concentrating, ulcers in his mouth....sounds familiar, yeah? We took him off of gluten along with the rest of us, and he improved a little, but not entirely. However, I was having trouble too, so this...
  4. T.H.
    I don't know of any, but I know that this practice: Open Original Shared Link has a lot of specialization in celiac disease and are in the Bay Area. Perhaps they might be able to recommend someone in Kaiser?
  5. T.H.

    Thx for your post. Trying to figure this all out. If it is not celiac, I'll be meandering down the rotation diet lane...trying to figure out the puzzle. Could be milk too..need to try that.

  6. T.H.
    Oh, and thank you for the reply! My computer is acting up SO oddly - I only saw the first little bit of your reply and the rest wasn't showing up on the screen. Weird. Thanks for the links, ya'll...I will be gathering them up in my hot little hands, heh.
  7. T.H.
    I hadn't heard that, but I can certainly attest to how difficult it is to get a fully gluten free diet - most celiacs I know don't have one. It's typically a very gluten reduced diet, and even that is extremely difficult. I don't believe even I have a completely gluten free diet, although I am darn well trying, because otherwise I get sick. Fully gluten...
  8. T.H.
    Phew - it's a long list. I'll see if I can be pithy...It's hard for me. I talk too much! Until I was around 16, I was a healthy, active kid who almost never got sick. I was in many sports, did well, never got injured, etc... Then when I was 16 I started catching nearly every cold that year that came along. I got a sinus infection that it took...
  9. T.H.
    I have 4 diagnosed celiacs in my family. Two of them - they are a little careful, but if their food touches gluten food, usually they have no reaction. They get the big D maybe the next day, day after, a little cramping, and that's it. So there are definitely celiacs who don't have to be as careful, at least symptom-wise. Although my father is now starting...
  10. T.H.
    Okay, long story short: I need some good internet-accessible research on: 1) Reactions - physical or mental - of celiacs that happen before 12 hours post-gluten consumption 2) avoiding CC 3) How gluten can be spread 4) Mental reactions/problems caused by gluten After this holiday, my hubby and daughter had a little spat with his mother over...
  11. T.H.
    I hope that going gluten free will persuade you to continue to do so. I think you are very right in thinking the celiac research is in the dark ages - or more that it is only in the beginning stages. No drugs for the disease means no money from drug companies for research, so it's a slow, slow process. Although from the research I've seen? I think...
  12. T.H.
    I had dizziness that sounds very similar, and mine turned out to be completely gluten related. goodness, I remember standing up one time and just falling flat out on the floor, because I couldn't keep my balance even in the slightest. However, part of my problem was that I am very, very sensitive to gluten and CC in my food. Alcohol - I haven't found any...
  13. T.H.
    I hope your appointment went well today! I am in the same boat as dilettanteSteph - super, crazy sensitive. I am still trying to determine how sensitive I am and working toward feeling healthy. I was also not getting better after a few months gluten free. At that pount, I had already bought organic foods (curious, I used Whole Foods mostly, too!)...
  14. T.H.
    I haven't seen a definitive list anywhere - I would be surprised if one doesn't exist, though. However, if it helps in the short term, last I heard, Suave will list the source for many of their ingredients, in parentheses, like: ingredient, ingredient, ingredient (wheat). So that might help, for now at least.
  15. T.H.
    I don't know, honestly, although I'd be interested to hear what people say. When I last saw it, the site would tell you the 'gluten free' status without joining, and if it hasn't changed how it addressed that, I'd avoid it. At the time, it would list 'questionable' ingredients, like caramel coloring, natural flavors, and so on. But...it wouldn't tell...
  16. T.H.
    I think it depends on what symptoms you have. My father has all the gut symptoms that could be dairy OR gluten. He doesn't notice anything else. If you've got a DH rash, neurological symptoms, joint pain, brain fog and the like, I would think that this would be more gluten specific. Although there are some intolerances/allergies that do seem to cause...
  17. T.H.
    If you're looking for some variety? Stir fries did great for my kids in the beg ginning. We used either gluten free soy sauce, or coconut aminos (soy free soy sauce substitute. Tastes a hint sweeter). Just get a veggie, saute it with a teeny bit of oil and garlic, and then add a few TB water and cook on high for a few minutes, and then add the soy...
  18. T.H.

    ARCHIVED Could This Be?

    T.H. replied to BethJ's topic in Coping with Celiac Disease

    I would think cross contamination of the food is the most likely, honestly. If you've eaten there before, I'm assuming you have drunk beverages there before, too, yes? So if the glassess get contaminated, I'd assume you'd have reacted before, as well. However, short answer? Yes, you can react to residue left on glasses. And sanitizing solution - or at...
  19. T.H.
    Is your ConAgra information current? I've seen information from 2006 or so that said they labeled gluten used in their products, but then the information on their website a month ago didn't seem to agree with that, at least not the way I'm reading it. This is what they have up, at least as of last month: Which of your products contain gluten? We are sorry...
  20. T.H.
    I think that's the case - I doubt there is hardly any left, really. However, sadly, it's only silly for those who don't react to minute traces, and those are the folks I figured might benefit from hearing about this. My father and brother - they'd never react to this much. Not a problem for them at all. Me? This would make me sick. It's really pretty...
  21. T.H.
    That's actually not uncommon in celiacs. My GI doctor told me that we should remember that foods aren't the only things we digest poorly. Medications are, too. But he said we can absorb less of parts of a med, and MORE of parts of them, due to leaky gut, and so on. I'd always wondered why meds either didn't seem to work, or I got nasty reactions to them...
  22. T.H.
    I'd try completely dairy free, at first. If you drop just the lactose and he's not better, you'll have to keep going and drop the dairy. If you drop all the dairy and he's not better, you'll know to look elsewhere. The latter seems like it might help you find the answers quicker, and get him well quicker. And if dropping all dairy works, you can always...
  23. T.H.
    Yeah, I'm one who can't have it, ick. Although just as a curious aside, my sister-in-law is allergic to juniper berries, and any time she tries liquor that is distilled from juniper berries her mouth, and the rest of her, start itching like crazy. So it's not just gluten, eh? Actually, a chemist friend of mine was recently telling me about having to...
  24. T.H.
    I was just reading about this today! Apparently, people who keep track of their calories - jot down how much you ate, and how many calories - tend to do better in continuing to keep the calories down. And on top of that, if you take a picture of every thing you eat, with your hand next to it so you can see the actual portion size, that supposedly works...
  25. T.H.
    My question would be: what is your diet like? I wouldn't necessarily go looking for a new diagnosis until you've checked out your diet for any unintentional gluten, or go SUPER gluten free, in case you are more sensitive to gluten than the norm. Do you eat a lot of gluten free products, like breads, crackers, cereals and such? Those can sometimes have...
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