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gf-soph

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Everything posted by gf-soph

  1. gf-soph
    My skin gets pretty reactive at times. I don't think you're nuts for reacting to pesticides, it's quite possible. For me, the flushing was related to a few things, definitely to msg, alcohol, chicken and eggs. For me it's a type of histamine response, the skin can be purple and painful for hours and an antihistamine will bring it back down. I can get headachy...
  2. gf-soph
    Your doctor is not competent to diagnose celiac if he can't even biopsy for it properly. I wouldn't trust him to take my temperature. Get a new dr if you can, and get them to test for the nutritional deficiencies that can come with celiac. Iron, B12, folate, vit d, thyriod panel, i'm sure i'm missing some but there are a lot of other posts that recommend...
  3. gf-soph
    Have you had your B12 level tested recently? If so, what was it, and what was the reference range (this can differ from place to place). I would urge caution if you think it's B12 related. Very low B12 can cause irreversible nerve damage, I know as I was very lucky to escape it. I had a hematologist pretty much read me the riot act about how dangerous...
  4. gf-soph
    I totally agree with the others that what you are describing is leading somewhere very unhealthy indeed. I'm really glad that you are looking after yourself by seeking help, it can be very hard to do. I just wanted to lend my support and to say that I totally know how you feel. The only thing that stopped me from not eating completely about a year ago...
  5. gf-soph
    It certainly sounds plausible. I just wanted to lend my voice to the caution about coming off effexor. My mum was on it and followed her psychiatrist's instructions for how to withdraw safely, but she had a severe reaction anyway. It was like a mini psychotic episode, lasting a couple of days. I'm not suggesting that's a common experience, but just to...
  6. gf-soph
    Nice work! It's important to keep the 2 goals in mind - feel better, and find a way to a diet that is as nutritious and well rounded as possible. I know how it feels like to be apprehensive about feeling bad again, but if you can feel this much better in a week don't be too afraid to have a few bad days from a reaction. Well done, and keep us updated...
  7. gf-soph
    It could be. Depending on how long you cut out the excess fruit for, you could have lowered your tolerance for it a bit. Or it could be that your gut bacterial population has changed a bit. The symptoms you have sound a lot like a fructose overload to me. Everyone has some upper level that they can digest. Start off with a small amount that doesn't cause...
  8. gf-soph
    Firstly, you sound like a classic case of celiac/gluten intolerance, and with your dietary response I think you have a very firm answer that you may have found the root of this problem. Well done!! Also, a lot of people here have a strong opinion about IBS, and the kindest is that it is meaningless for the majority of people, far more of a description than...
  9. gf-soph
    Congratulations! It's so nice to have a clear answer, and great that you are feeling fine afterwards.
  10. gf-soph
    I just thought I'd add that there can be interactions between hormones and food intolerances. I am on an elimination diet and one of the pieces of advice for people that weren't responding was to go off the pill, as high levels of hormones can exacerbate symptoms of food intolerances. I know you're not on the pill but perhaps you have a preexisiting intolerance...
  11. gf-soph
    I just wanted to see if I could provoke a reaction so jumped in and had a couple of eggs in a meal, and reacted with flushing and dizziness as well as delayed gastric problems. I haven't got back to specifically testing it yet. Reintroduction - egg whites alone are higher in amines than the same amount of whole egg, so I would suggest trying the yolk...
  12. gf-soph
    The thing about elimination diets is that there is no single way to do it. I had several false starts before hitting on the right combination for me, and it's taken months. My diet includes dairy and soy, which are big nos for a lot of people, so i do appreciate that it's an individual thing. Some general advice is - keep it simple, start off with a few...
  13. gf-soph

    ARCHIVED Endoscopy

    gf-soph replied to tennisman's topic in Coping with Celiac Disease

    Just thought I'd add that I used mebeverine for a couple of years, it worked amazingly well in stopping the horrible spasming I used to get throughout the digestive tract. Happily I haven't needed it for months since I have been on an elimination diet, but it was the one thing that really helped. There were days I was in so much pain for days that I was close...
  14. gf-soph
    You say that you are 'somewhat' gluten free. If you have celiac you need to be 100% gluten free, and I wouldn't expect to feel better until you are. Do whatever you need to get rid of the gluten, but you need to get it completely out of your system. If the candy or cookies you are eating have gluten in them that might be a big part of the problem, it can...
  15. gf-soph
    Given that your housemates aren't likely to be too helpful, you need to get a foolproof system where you have your own toaster, cookware, chopping boards etc, and keep them in a separate area. Store them in a different cupboard, wash them immediately and separately, and if possible buy things that are distinctive e.g. all one colour. You should be able to...
  16. gf-soph
    Just another idea too, is that the red patches may be rosacea. I have had this for a while, and it's much worse when I eat certain foods, like MSG and some proteins. I'm on a strict elimination diet at the moment, and the skin is generally better. My dr explained that for some people rosacea is linked to inflammation in the body. I also had an acne-like...
  17. gf-soph
    I'm non-celiac gluten intolerant too, with positive blood tests and negative biopsy. It caused chronic iron and B12 anemia, hideous GI pain and dysfunction, secondary food intolerances, depression and lots of other problems. I had a lot of blood tests to monitor my iron and B12, and after I went gluten free I saw 3 times that when I was glutened (I felt way...
  18. gf-soph
    Like the poster above, I would say look into stomach acid. I am a life-long vegatarian, I had a lot of continuing problems after going gluten-free so I went on an elimination diet. The dietician I saw wanted to make sure I wasn't reacting to dairy or soy, and I couldn't handle beans, so I agreed to eat meat for a while, specifically lamb and chicken....
  19. gf-soph
    You sure sound like a celiac, or non-celiac gluten intolerant. Even if you don't get the celiac diagnosis, with your variety of symptoms and family history I would definitely give the diet a long go. I'm one of the many people who think that IBS doesn't count as a proper diagnosis, it's what they tell you when they can't figure you out. There is clearly something...
  20. gf-soph
    Im pretty good now as I am on an elimination diet, but I did use to have a lot of stomach pain. It could be linked to the fatty liver, which I think was linked to mild insulin resistance, as I am 25, pretty much a non-drinker, and had a pretty healthy diet there was no real other reason for the fatty liver. I don't digest fats still, not sure why, but unless...
  21. gf-soph
    I'm not sure if it's the same thing but they found a couple of spots in my liver during an ultrasound while they were looking at my gallbladder. For me they just repeated the scan 6 months later, and as the spots hadn't grown they said it was a hemangioma, which is like a birth mark in the veins of the liver, nothing to worry about. If you're worried...
  22. gf-soph
    With the FODMAP diet, it seems that people have very different tolerance levels, so even if there is a little of the sugars left in miso it may be below the level that would cause problems. I would expect that fermentation will reduce the amount of sugars, but there still may be some. I have heard of people on the fructose malabsorption list fermenting veggies...
  23. gf-soph

    Hi Soph, hope you don't mind a PM. Its just you have been so informative and friendly. So I

  24. gf-soph
    I've had something similar, but for me it's not a direct gluten reaction. I had it for a while when I wasn't eating regularly enough, but was gluten free. At one point my drs medicated me for insulin resistance with metformin, but it made it so much worse. I discontinued it pretty quickly, and my insulin resistance was extremely mild. It may be that the gluten...
  25. gf-soph
    Boy do I know where you are coming from. I am almost 5 months into an elimination diet, and currently am eating a very very limited diet. BUT it is working. Using the diet I have worked out serious reactions to eggs, rice (posibly brown only but have to test out), fructose, inulin, salicylates, possibly amines, and a major reaction to sugars. I never would...
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