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lbsteenwyk

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by lbsteenwyk

  1. lbsteenwyk
    My 4 1/2 yr old takes takes her own snack every day. We attend a preschool in which all the children provide their own lunch and there is a no food sharing policy; so that works out well. They do provide snack, however, and it's almost always gluten. We always bring our own, even if the school snack does not contain gluten. The coop arrangement makes...
  2. lbsteenwyk
    I'd say the "basic" is her original rice mix: 2 parts rice flour 1/3 part tapioca starch 2/3 part potato starch I always use brown rice flour in this mix. I prefer the 4 bean mix for most recipes, especially conversions; but I still use the rice mix in some of my recipes. I keep both mixed up in my refrigerator.
  3. lbsteenwyk
    Research in 2003 showed that 1 in 22 first degree relatives will have celiac disease. That means if you have celiac disease your child has about a 20% chance of having the disease as well. I know a woman who has 7 children - all tested positive for celiac disease through blood work.
  4. lbsteenwyk
    The Manna from Anna (they've changed their name to Bread by Anna or something similar) makes 2 loaves in a bread pan in the oven or one large loaf in the bread machine. It is expensive, but truly an excellent bread. I use the Gluten-free Gourmet Bakes Bread all the time; some of my favorite recipes: Sweet Potato Cranberry Bread, pg 112 - I don't...
  5. lbsteenwyk
    You can purchase gluten-free oats from: Open Original Shared Link orOpen Original Shared Link. Our support group has made bulk purchases from both companies and our members have been using their products without problems. Of course they're not cheap; both companies will do special pricing for you if you have a large enough order.
  6. lbsteenwyk
    Blood tests for celiac disease in children under 2 years are highly unreliable; your son should still have the full panel, but expect them to be negative or inconclusive. You will probably get a more accurate diagnosis from a duodenal biopsy. I see you have a ped GI appt monday; make sure the GI knows what he's doing - he/she should be geting 4-8 biopsies...
  7. lbsteenwyk
    The FDA requires that the source of HVP and HPP be disclosed. Sometimes this disclosure is in the "contains" statement at the end of the ingredient list. Or it may be listed directly after the ingredient. Most HVP/HPP comes from soy, but it can come from wheat. MSG is gluten free.
  8. lbsteenwyk
    There is an active celiac support group in Charlotte. Here is their website: Open Original Shared Link Please note that Dr. Peter Green a well-known celiac expert will be speaking on May 13. Last year they had Ivor Hill speak and I went to hear him. Unfortunately, I won't be able to attend Dr. Green's talk.
  9. lbsteenwyk
    My guess is this was a TTG - the most accurate test for celiac disease. Different labs have different normal/abnormal parameters, so it is best to confirm with your doctor which tests were done. You should get a copy of the lab results for your files anyway.
  10. lbsteenwyk
    Welcome to the board! Good for you for being so assertive with your child's physician! Doctor's can be quite hard-headed, but your case illustrates that they certainly can be wrong, especially when it comes to celiac disease!
  11. lbsteenwyk
    With a positive test in your son it is quite possible your daughter has celiac as well. Tests can be inaccurate, especially in children under 2, so I would not discount celiac disease based on her test. It's unfortunate your in-laws aren't on board with this. What does your husband think about putting her on the diet? Your in-laws may have a more positive...
  12. lbsteenwyk
    Centrum Multivitamins are gluten-free.
  13. lbsteenwyk
    Bakerprincess: Welcome to the board! I have a 4 year old daughter who is also quite thin, though not as thin as yours. My daughter weighs 36 lbs and is 42 inches tall. Just in the past 6 months she has gained 6 lbs. Like your daughter, she is a VERY PICKY eater. I have torn my hair out trying to get her to eat more. Here are some of the things...
  14. lbsteenwyk
    We chose a daycare where all the kids bring their own lunch and they have a policy of no food sharing. We have never had a problem. They do provide morning and afternoon snacks for the kids, but I provide my child's own snack. Having a different snack has not been an issue. I allow my child to have juice at snack time. My advice is to find another daycare...
  15. lbsteenwyk
    This is regarding the yogurt question - Many people with newly diagnosed celiac disease are lactose intolerant, simply due to malabsorption caused by the celiac disease. When the intestine heals, the lactose intolerance may resolve too. So, I would take your son off dairy for 3-6 months and then reintroduce dairy slowly. Start with lower lactose products...
  16. lbsteenwyk
    Nicole: Your son is likely to have celiac disease. I see 3 possible options for you: 1) ask your doctor for a complete Celiac Panel. That would include a TTG (anti-tissue transglutaminase) and an EMA (anti-endomysial antibody). He also needs his serum IgA measured - this tests for IgA deficiency and could account for his negative IgA and positive IgG...
  17. lbsteenwyk
    Glutino makes a Honey Nut O shaped cereal that is pretty good. My daughter likes the plain PerkyO's which are made from whole grain Sorghum and perhaps a little more like Cheerios. They also make an apple cinnamon and a frosted variety, but I've not had an opportunity to taste them.
  18. lbsteenwyk
    Bring a gluten-free dish to our Celiac Support Group meeting. 3:30 - 5:00 pm at the Pardee Health Education Center, Blue Ridge Mall, Hendersonville. 696-1140 for more information.
  19. lbsteenwyk
    Isomalt is derived from sugar - despite the name, it does not contain gluten. Maltitol is a sugar alcohol and also gluten free.
  20. lbsteenwyk
    I recently started a support group in conjunction with the hospital where I work. But you don't have to work at a hospital to get one started. Someone in our community actually approached the hospital's health education center (most hospitals have some type of community outreach center) about starting a group, then they contacted the dietitians looking...
  21. lbsteenwyk
    I personally would not do the biopsy, but if you feel that having a positive biopsy will help your family to accept the diagnosis, then by all means have it done. From what I understand from others whose children have gone through the biopsy, it is not that bad; probably less stress for your child than having blood drawn. You can get negative results on...
  22. lbsteenwyk
    I found this in an internet search: Causes of increased IgA levels include: gamma-A myeloma (M component) chronic infections chronic liver disease rheumatoid arthritis with high titres of rheumatoid factor SLE (occurs in some patients) sarcoidosis (occurs in some patients) Wiskott-Aldrich syndrome I don't really think I have any of...
  23. lbsteenwyk
    Hi Gina: I did check out the google link you posted and actually did my own search for the phrase "elevated IgA" + celiac. Unfortunately I didn't find too much to indicate what an elevated IgA alone means. Thanks for your help with this, though. Is there anyone else out there who had only elevated serum IgA with other celiac tests negative? I'm still...
  24. lbsteenwyk
    I just got my blood tests back for celiac disease. The only one that was abnormal was my IgA. I'm not sure how to interpret this. Here are my results: IgA 451 (normal 68-378) TTG antibody IgA 4.1 (normal <7.0) IgG, serum 1030 (normal 768-1632) Gliadin Antibodies IGG AB 14.5 (normal <29.9) Gliadin Antibodies IGA AB 15.4 (normal <2...
  25. lbsteenwyk
    Testing in children under 2 years of age is likely to be inaccurate. I would discuss it with your pediatrician, but more to let him/her know that you intend to put your son on a gluten free diet and see what happens. It's not normal for a child to have liquid diarrhea 4 times a day, even if it doesn't seem to bother him. Reflux can also be a symptom of...
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