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beebs

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Everything posted by beebs

  1. beebs
    Thanks rosetapper!
  2. beebs
    I have started having this very issue! I posted on an autoimmune forum about it. I have started getting dead arms soooo bad at night that I can't even move my fingers - it is scaring the heck out of me. I hope someone can give you (and me) some answers!
  3. beebs
    Yeah - my Doctor is 100% positive that its celiac - we just don't have the tests to back it up...and I am still not satisfied! I think its also cause I have a connective tissue disease but they can't figure out what it is either and that has been going on for 5 years so I will probably get a diag of undifferentiated connective tissue disease - which means...
  4. beebs
    Don't feel dumb - it is all higgle piggle to me. I have no idea how Josh got DQ2.5 out of what you wrote!! Its so confusing. I am in the very same boat as you. Have just found out that I am DQ8 positive but have been gluten free since Jan and have no official diag. I have some kind of connective tissue disease (which means more chance of other autoimmune...
  5. beebs
    They don't say gluten free, but they have no gluten containing ingredients and they state in their allergy advice only milk and soy. If it had gluten they absolutely must state it in their allergen advice. Its the Law I'm so happy too- I only found them the other day - they are just like CCs or doritos.
  6. beebs

    It sure is! ;)

  7. beebs
    Hi again pbp - we are stalking each other The first one is correct. You basically eat gluten until you do enough damage (assuming you are celiac - which you prob are with your symptoms and family history) to show up in a biopsy. Fun right!??
  8. beebs
    I agree - my grandfather, my mother, me and my son (so far) I did read that if a sibling has it you then have a 30% chance of it but if a parent has it you have a 10% chance.....
  9. beebs
    I'm eating a pack of woolworths select cheese supreme right now - gluten free....yum
  10. beebs
    I can see what you are saying about Coles. Because they are actually in partnership with Coealic Australia and sponsor lots of the events including the gluten free expo this week (yaayyy!!). But I have to say.....Gluten free cereals are really really starting to grow on me. Freedom foods do this one called 'Berry Good morning' it has cornflakes and other...
  11. beebs
    The coealic society says that 90% of gluten free people in Oz don't need to be on the diet - so I don't think that companies will go out of business. People are starting to realise to that gluten might not be good generally. anyways. But I get what you are saying about autoimmune disease etc. I mean - we know hardly anything about them or why they happen...
  12. beebs
    I agree. Ravenwood - you are always the first to help the newbies try and figure things out. I am grateful to you for all your advice on here. I am really sorry your dog passed away. And I am sorry you are feeling so sad.
  13. beebs
    Where are you located? This is from there website Heinz Beans in Tomato Sauce in the U.K. Australia Canada Poland - are gluten free. So it depends where you are. You can get more info here Open Original Shared Link Corn starch is fine - its wheaten corn starch we can't eat. If you are in Australia they have to label all allergens on the back. So...
  14. beebs
    Yes, I hear you. At my local mall there is not one place I can eat. I hate that, I can deal with it though. But I really hate being scared of eating, it stresses me out
  15. beebs
    I'd only consider it once it had been around for a few years and had been proven effective. And even then only if it were a one off vax. I hate being too scared to eat outside of my own house. I went to a party the other night and it was catered and I was too scared to try any of it - even the salads which had dressings - I could tell the caterer really didn...
  16. beebs
    Will you get it when it become available? It will only be offered to those who are confirmed diagnosed (doh) but I would jump at the chance myself. Open Original Shared Link
  17. beebs
    i would test. I went Gluten free without testing & now I really wish I had just had the biopsies and be done with it!
  18. beebs

    ARCHIVED Sad And Angry

    beebs replied to Schatz's topic in Coping with Celiac Disease

    My dr told me 6 or 7 minutes- in their entire medical degree...
  19. beebs

    ARCHIVED Sad And Angry

    beebs replied to Schatz's topic in Coping with Celiac Disease

    I know how you feel- I have had obvious symptoms since 1999. And only now have gotten the most I'm ever going to get without a biopsy - which is my Dr is convinced I have it but just can't prove it. Two of my children have chronic gut issues that have been going on for years. And my mother dropped over half her body weight and the GI had her convinced she...
  20. beebs
    I had read that - he is due to be weaned off it this month. Slowly though - because he has severe GERD and had ulcers in is esophagus and stuff. He doesn't have Diarrhea as much as Steattorhea. Foul, very fatty, pale, completely undigested. And that hasn't changed - he had it even before the nexium. I really hope we can get him off the nexium. I don...
  21. beebs
    I notice you are soy free IH....how did you work out it wasn't just gluten, as we all know when you go gluten-free you tend to eat heaps more soy and corn than you ever did before - I wonder if that is playing a part.
  22. beebs
    Every time I hear about your insurance issues in the US I always feel like "What tha"? You are paying them tonnes of money and they are cranky at you??? So unfair!
  23. beebs
    Hiya, this is a different Dr - he is meant to be one of the best Paed GIs in the country and an expert on Celiac.... He hasn't had his follow through but the Dr said he would have one. He has mentioned Crohn's in passing. Both the kids are on probiotics. The youngest was lactose free for 20 months and then back on lactose for a couple of months and is now...
  24. beebs
    If your fingers are twisting you need need to see a rheumy asap. There are so many different kinds of Autoimmune arthritis - not just RA! The only thing that shows on my bloods are CRP and ESR. No RA or Sjogren's or ANAs or anything. You can be negative on all your tests and still have connective tissue disease.
  25. beebs
    It really depends on how bad you are at the time. Sjogren's/Lupus and all those connective tissue diseases work in similar ways in that you have *flares*, they can last days, months, years- it really depends. The medications that are used to treat such diseases are scary. I am not kidding. So at the moment I am starting to focus on diet, there is a book called...
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