Katie B

Hi everyone, I believe a gluten free meet-up in Toronto, Canada was proposed awhile ago and I'd like to follow up on it and see if anyone is interested? There's a great restaurant in Kensington Market that's gluten free called The Kensington Cornerstone. If anyone is interested please let me know what night of the week would work. Thanks! Katie

Sorry to hear that you're going through so much but the fact that you're doing so much research is great and you will always be your own best advocate. Your symptoms could be from many things and celiac could definitely be one of them. Your endoscope will provide you more information (I missed whether they did a blood test for you for celiac?) and perhaps...

Hi Twizzel, Many of us have residual effects after going gluten-free. While it is sometimes an instant cure lots of people have to investigate further medical conditions, dietary sensitivities and vitamin deficiencies. From what I've heard and experienced, fructose malabsorption can cause the same type of brain fog and while I can't supply you with the...

Sounds a lot like appendix issues - I thought I had some before and when I was reading through your description it sounded like it. Where are you located in Canada? Usually they triage people according to their needs. If you say you're in 100% pain, can't sleep and think it's your appendix then they might prioritize you. Alternatively, you can wait until...

Hi CNV2855, I have secondary adrenal insufficiency and diabetes insipidus. Good on you for even knowing what adrenal insufficiency is! I was sent to the Endocrinologist for blood sugar problems (due to low cortisol) and he figured things out from there. I'd meet with the Endo again to get properly tested. I'm on replacement cortisol and has it ever...

Hi Lockheed - check out the Specific Carbohydrate Diet. I'm on the low FODMAP diet at the moment and am limiting my carbs per serving and spacing them out...

Definitely agree with clavyn's advice. It's also worth shopping around - many health food stores offer different prices - unlike the big stores they don't compare prices as often.

Thanks Julie - where is the program? What is it called?

Hi Julie, I can definitely relate. What is the Intestinal Rehab Program that you mention? Have you heard of the low FODMAP diet? I'm not sure if it is of any interest to you but I've tried it with much success (tried the SCDiet previously and it didn't work this time around). I use this diet + gluten-free + low-carb and it seems to be working well...

Hi all, I recently stayed at the Fairmont Chateau Lake Louise and had the most amazing experience! Beyond Celiac Disease I have many other dietary issues and I was worried about traveling for the first time after being diagnosed. Our vacation was fantastic! From every point of contact - from the food/beverage manager to the restaurant manager, waiters...

As mentioned by mushroom the antibiotics can cause c. diff - this is what I had during the summer and believe me I thought I was going crazy. Kept going to the Dr. and kept getting a diagnosis of small intestinal bacterial overgrowth and kept getting various antibiotics. Had the infection for 2 months until it got really serious. It can cause colitis and...

Hi Ross, You're probably best to stick with the gluten-free diet and take an oral vitamin (I'm taking Centrum Forte). Once your intestines start healing they'll be able to absorb the nutrients. I don't think taking vitamins rectally would work - your large intestine is meant to move things through and not to extract nutrients so you'd have to somehow get...

In terms of food intolerances (and it's probably hard to tell if that's what's the cause at this point) you might want to contact the dieticians in Australia (Shepherd Works or Diet Solutions) to do an elimination diet. It's very difficult to do this on your own (although possible). They advocate the low-FODMAP diet. I wouldn't automatically attribute all...

Not sure about pasta but you might want to try Vietnamese rice wraps - just soak in water and they're ready to use!

This would be in my "time to get new friends" category - but you would know more about the context. Oftentimes you can't force people to understand things even if there are a million sources on the internet (and your friend is a nurse?!). Fine to still talk to them but it might be nice to make some more connections with people who you don't have to convince...