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starrytrekchic

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Everything posted by starrytrekchic

  1. starrytrekchic
    (Note that this is an old thread! I'd edit the main post to say this has been updated, but it doesn't have an edit button.) I wanted to update this, because my hair has slowly gotten better, and now the growth is as good as it ever was. Unfortunately some of the longer parts are beyond recovery, so I'm just waiting for those to grow out. One surprise...
  2. starrytrekchic
    I'm a little over a year in, and my memory is finally starting to come together. For a while--especially through the 8-9 month mark--it just kept getting worse. Make sure you're getting enough carbs in your diet, since gluten-free can be low on them. Otherwise, keep taking whole vitamins while your intestines heal. For me, the memory thing seems to...
  3. starrytrekchic
    My understanding (I am not a doctor, I've just read up on it) is that gluten free works only when celiac or gluten intolerance is an underlying cause of autism (or if a celiac child has been misdiagnosed as autistic.) A few days should be enough to recognize changes and improvements, but that's assuming everything you're feeding him is truly gluten free...
  4. starrytrekchic
    Can you get a different doctor? My understanding is that a few weeks on gluten isn't enough for an accurate bloodtest. You'll almost certainly come up false negative. The normal gluten challenge time is 6 weeks. Your doctor shouldn't be asking this of you, at all. You and your children aren't the same, and there is absolutely no reason you should be...
  5. starrytrekchic
    You're definitely celiac. Some celiacs are 'silent celiacs' with no outward symptoms, so you're lucky you had enough that you got tested. You may find you have a host of symptoms you don't associate with celiac that will resolve going gluten free. Symptoms can present in a lot of ways (migraines, ataxia, lack of concentration, hypoglycemia, anemia, depression...
  6. starrytrekchic
    Sometimes reactions are delayed, so it might not be something you just ate. A very small % of celiacs also react to oats (even gluten free.) You may try dropping them for now and reintroducing them later.
  7. starrytrekchic
    Why is she giving up dairy? For celiac disease, dairy might need to be limited at first, because large amounts are difficult for damaged intestines to digest, but giving it up entirely is seldom necessary. What did she mean by worst week of her life? Could she have just meant she didn't feel like there was anything she could eat? It's possible she was...
  8. starrytrekchic
    You're probably not healed enough to digest the gluten-free substitutes. They can be hard on the digestive system (as can large amounts of dairy.) I'd skip all the heavily processed stuff and go with a simple, easy to digest diet for a while, until your intestines have a chance to start healing.
  9. starrytrekchic
    The reason celiacs get anemia is the chronic inability to absorb iron from the diet. Once your intestines have healed, iron absorption isn't a problem. Isolated glutenings won't cause you to become anemic again. The fatigue is likely from your body's reaction to the gluten, and it may take several days to go away. Mono is one of the illnesses that can...
  10. starrytrekchic
    I would do a gluten challenge, if I were you. Set it up with your doctor so that you eat gluten every day for 6 weeks, then go in for blood tests and/or an endoscopy. You'll need to have those six weeks of gluten eating for the results to be accurate.
  11. starrytrekchic
    What type of chocolate pudding? I can't eat snack pack chocolate pudding cups, and I'm not sure why. As far as I can tell, they're completely gluten free, but I've reacted to them all three times I've tried them.
  12. starrytrekchic
    Is it just Livingston that's causing it? A lot of celiacs report problems with pretty much any alcohol after going gluten free. I *think* I'm starting to get my ability to drink it back (knock on wood) but for the first year of gluten free, any amount made me feel like crap.
  13. starrytrekchic
    Other intolerances like dairy might make him nauseous, but they won't stop him from healing. If he's still not gaining weight, you're going to have to look at other sources of gluten. Even a few crumbs will make him sick. Check the following: sources of cross-contamination in your kitchen--you'll need to use some separate utensils and cooking equipment...
  14. starrytrekchic
    I've had two of Amy's dinners since going free. One was fine. The other resulted in my worst glutening ever (I felt like I was about to die.) I'll never touch them again unless they go to dedicated gluten-free lines and equipment.
  15. starrytrekchic
    It's common after you've been glutened for your body to get upset after every meal. For some people it only lasts a day or so, but for some it lasts up to two weeks. It can also depend on the amount of gluten you consumed. Pepto-bismal may slow down your ability to get rid of the gluten. If you have diarrhea and have no other health concerns that diarrhea...
  16. starrytrekchic
    I would do an elimination diet. Just pick a few things (simple, unprocessed, like rice) you know you can eat and slowly add other things back in. Be sure you're actually gluten free--check all meds, supplements, foods, drinks, personal products, anything that could cross-contaminate you. You may need to be more strict with your gluten free diet--finding...
  17. starrytrekchic
    You don't need to avoid dairy, but yes, you might be more sensitive to it as you're healing. Lactose intolerance frequently crops up after someone goes gluten free--but it should go away once your intestines are healed enough to digest the dairy. Just limit your diary to whatever you can tolerate. Some people take it out entirely for a few months, but...
  18. starrytrekchic
    It does sound like you're describing dementia, not celiac-related problems (note, I'm not a doctor.) In dementia, the person affected doesn't know that something's wrong. They're also more likely to lash out when someone brings up their problems. When we celiacs have brain fog, we know something's wrong. We might not be able to think it through, but...
  19. starrytrekchic
    Yes, there are different levels of intolerance. Your first goal is to learn what all gluten hides in (and all the names it can go under) and get used to reading labels and making the main adjustments to gluten free life. You'll also need to start checking things like vitamins, herbal supplements, and medicines--anything that goes through your stomach. ...
  20. starrytrekchic
    Don't let anyone talk you into something you don't want to do! Most people far overestimate the amount of protein needed. Unless you're eating nothing but carbs all day, I wouldn't even worry about the protein--you can get plenty from peanut butter, eggs, nuts, etc. The dairy problems are likely secondary lactose intolerance--something that will clear...
  21. starrytrekchic
    Hi! We're actually kind of similar. I was 29 last November when I found out about Celiac, after 11 years of stomach problems and a year of it getting steadily worse until it was a daily thing--and I'd been vegetarian since age 16. The first few weeks are difficult, especially trying to learn everything (you will make mistakes, but that's expected.) I...
  22. starrytrekchic
    If you try the seeing how it feels for a few months, you'll actually have to do what's called a gluten challenge for the tests to be accurate. You'll have to ingest gluten (the equivalent of several pieces of bread) every day for 6 weeks before you can have the bloodwork and endoscopy done. IMO, it's easier to have the testing done now. Then, I'd go on...
  23. starrytrekchic
    You're going to have to be your own advocate here. Demand your doctor give you answers, and question every thing he does. Every test, what he's testing for, why he's giving you certain drugs, what he's ruled out and what he hasn't. I also received the IBS diagnosis at a time when I wasn't used to questioning doctors either. It took me 11 years of suffering...
  24. starrytrekchic
    Don't worry, it should pass. I hit the exhaustion patch about 3 months into being gluten free. Couldn't do anything. It went away in 4-6 weeks. It's part of the healing, but you may also want to have your doctor check your vitamin and minerals levels too, just to be sure.
  25. starrytrekchic
    You might have been glutened elsewhere, and it's just coincidence that it happened after visiting Panera. I would give them another try. I've eaten at the local Panera several times without incidence (they're one of only a couple of places around here that offer gluten free veggie food.) Cross-contamination is an issue of course, especially if they make...
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