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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by juppygirl
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ARCHIVED Dh In Varying Stages And/or Different On Different On Varies Areas Of Body
juppygirl replied to TPT's topic in Dermatitis Herpetiformis
It does have different presentations and moves round the body - it will be interesting to see what the diagnosis is..... -
ARCHIVED Cognitive Challenges & Career
juppygirl replied to gifree's topic in Coping with Celiac Disease
Make sure you are definitely as gluten free as possible - see other threads about equipment and other changes to make to achieve this. I have had lots of neuro problems and continued major lack of energy and can still have bad days or weeks like this last week just gone (which was bad) and feel very demoralised. I do have some glimpses of good days... -
keep gluten foods separate, use separate toasters or use toasterbags - see how you go!!!!!!
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ARCHIVED More Constipated After Going Gluten Free?!
juppygirl replied to lischro's topic in Coping with Celiac Disease
Are you drinking enough? Are you having too much fibre? - you may have needed it before as a result of gluten causing constipation, but not now. Consider something like fybogel (psyillium husks) which can be adjusted wether you want to relieve constipation or cause it!!! -
ARCHIVED Brain Fog=Car Accident?!
juppygirl replied to missceliac2010's topic in Coping with Celiac Disease
I was bad after a glutening yesterday and got confused!! Glad you are ok. I have not felt safe to drive when I have had gluten recently -definitely something to be aware of -
ARCHIVED "glutened" For First Time
juppygirl replied to LauraBeth's topic in Coping with Celiac Disease
I had something (not sure what) in the last 24 hours, woke up with my rash, dicky tummy. Went to work feeling like hell then got lost and confused going to see a patient!!!! Had to come home as felt horrendous, couldnt concentrate felt steamrollered and went to bed!! So you are not on your own. It's one year since diagnosis. Havent been glutened for... -
ARCHIVED Total And Complete Exhaustion
juppygirl replied to snow white's topic in Coping with Celiac Disease
I have stress and crashing fatigue constantly at the moment - migraine etc I am fed up and so is my husband. I know my diet isnt perfect - its gluten-free but not healthy at all. I've been working very hard and been very stressed, if I'd had gluten it would be unbearable and uncontrollable. I cant wait until my new kitchen is done after we gut... -
ARCHIVED How Sensitive To Gluten Are You?
juppygirl replied to T.H.'s topic in Coping with Celiac Disease
I am super sensitive and get glutened even when I'm trying to be ultra careful.... I had to get all new stuff - you are not paranoid at all and ignore others who say you are - my Mum thinks I am!! I have extra reason to be 'good' because I also have dermatitis Herpetiformis head to foot if I get glutened as well as tummy trouble. Its not worth the risk -
Mine is also driving me potty at the mo. 8 weeks ago I had a major reaction mostly all over my body where I only itched with no blisters, then if i scratched the itching i came up in wheals and it drove me mental - I had steroids and took 2 weeks to recover. Ii doesnt resemble the original DH I was diagnosed with. I was glutened at my Mums on Sunday and...
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ARCHIVED Inhaling Versus Ingesting
juppygirl replied to NorthernElf's topic in Coping with Celiac Disease
I did this when cleaning and reorganising my kitchen to create a separate gluten area for hubby in Feb and wound up rather poorly - dont do it! -
ARCHIVED Did You Have A Trigger That Started Your Symptoms?
juppygirl replied to afreeclimber74's topic in Coping with Celiac Disease
I think my final nail in the coffin was 3 solid weeks of antibiotics last summer -
I am fed up of being constantly hungry.... I have piled weight on .. have decided to monitor my food again, but its scary..
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ARCHIVED I... But... Look, Can Someone Tell Me If This Is A Lot?
juppygirl replied to MagpieWrites's topic in Coping with Celiac Disease
OMG - I feel lucky to cope with some of the mild stuff my family throw at me in comparison!! I am impressed that your husband is so well balanced and can help you. Mine is brilliant and copes somehow with me. Keep your chin up and dont let her rule the roost - its your life at the end of the day! We spend an awful amount on food since diagnosis last... -
ARCHIVED Not Doing Well Emotionally
juppygirl replied to sandsurfgirl's topic in Coping with Celiac Disease
I am alternating my resting and doing stuff days while on holiday this week- been all over the place emotionally. This illness certainly makes you more self aware and I am definately trying to be nicer to myself and take the pressure off when I can - not everyone is in agreement though! -
I agree with all thats been said. I got my diagnosis in August last year and still feel hacked off and paranoid and like an alien.
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I have gained 2 stone I dont need since starting gluten-free last summer- unfortunately I didnt lose weight with the illness before I was diagnosed - am very fed up. I admit I havent been too healthy with choices but it is still frustrating
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ARCHIVED Effects Of Celiac On The Brain
juppygirl replied to masterjen's topic in Coping with Celiac Disease
I have had a bad week for brain fog - today i just wanted to come home again and I was only in work 10 minutes!! I am also looking forward to being on holiday from tomorrow and going away so I hope it will calm down a bit -
ARCHIVED Not Doing Well Emotionally
juppygirl replied to sandsurfgirl's topic in Coping with Celiac Disease
Thankyou everyone for verbalising how I feel - I thought it was just me going nuts!! I have major problems with my emotions, poor coping and lack of energy and not wanting to exercise. I feel so relieved and will watch how I use my spoons up each day!! -
ARCHIVED Diagnosed Today, Don'T Know If I Can Stick To Diet...
juppygirl replied to Chrisco's topic in Coping with Celiac Disease
I had skin tests 8 years ago that were 'inconclusive' as I wasnt having stuff I had problems with - they said it was not a problem but I insisted that I had problems with wheat and they said they would give me some stuff on prescription to help me -but later must have decided to put Coeliac on my notes in order to give me the scripts and never told me. ... -
ARCHIVED Anybody Out There A Morbidly Obese Celiac?
juppygirl replied to ts1986's topic in Related Issues & Disorders
I am very overweight and piled it on since going gluten free!! I am hungry most of the time and craving chocolate++++ I hope things get better - I was losing weight last year and its gone pear shaped since diagnosis -
Mirtazepine is an Antidepressant. It will give you a raging appetite and is not to be taken lightly folks - with give you withdrawls if you take it regularly then stop. Just for info.
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ARCHIVED Cross Contamination
juppygirl replied to dhiltonlittle's topic in Coping with Celiac Disease
I get major symptoms from tiny amounts including some 'safe - less than 20ppmillion' items and am just really sensitive -
ARCHIVED Does It Ever Get Better
juppygirl replied to Maddiemo's topic in Coping with Celiac Disease
It does take time - 6 months for me but then I get cross contaminated accidentally and ill again. Realised how bad I must have been feeling most of the time and wonder how i got thru. -
ARCHIVED Diagnosed Today, Don'T Know If I Can Stick To Diet...
juppygirl replied to Chrisco's topic in Coping with Celiac Disease
I was officially diagnosed 8 years ago but they didnt tell me and I finally found out last august after developing the associated rash Dermatitis Herpetiformis and I am really relieved to finally find out what is going on and that I am not going completely crazy