luvs2eat

I can't stand the taste of mixers... but we make our own whiskey sours and margaritas at home w/ fresh ingredients. What a difference it makes!

To have that kind of frustration piled on you when you're in excruciating pain is inexcusable! I hope you can get in touch w/ someone "higher up" in the Walgreens company and tell them your whole story!

Its glutenfree.

I guess if you're planning to open your own bakery... you don't want to share the recipe, huh?

I'll bet we ALL have stories like this. I went to a friend's and she was proud to tell me the soup contained NO wheat. There was a ton of pasta floating in it.

I went to an Applebees and ordered shrimp on a spinach salad. I went thru the whole "wheat" discussion... no croutons, etc. and enjoyed my salad until I got to the bottom and found a layer of fried chinese noodles. When I pointed it out to the waitress, she said, "THOSE are made from wheat??"

Arrrggghhh!!!

I found the Namaste crust mix in the health food store. It's delicious and the mix makes 2 crusts. I spread out the dough on parchment paper on a pizza pan and then slide the paper off the pan and onto the pizza stone that's preheated in the oven. The resulting pizza has crispy crust and is awesome!

I often do a white pizza w/ a little ranch dressing and broccoli, peppers, and cheese. It's my once-a-week treat!!

Not that I would wish celiac disease on anyone (I WOULD NOT), but if this particular teacher had a child w/ celiac disease... her attitude would be SOOO much different.

I didn't have that much trouble going gluten free... I liked to cook and bake and finding GOOD gluten-free alternatives hasn't been as hard as I thought it would be. That said, I don't bake much anymore, except for weekly bread, because I can't reconcile myself to the different tastes and textures of gluten-free baking rather than wheat flour baking, but I don't NEED cookies or cakes anyhow!

But, recently discovering that it may be dairy that's causing glutened-type symptoms is doing me in!! There's NO alternative to good cheese... none. So, while I understand your dilemma... we don't really have a choice, do we? Not unless we're prepared to feel like crap.

Is that gluten free bread? It sure looks pretty.

Edited to add... I don't know what to say about the flour. I made gorgeous round crusty country loaves of bread for 25 years in a "cloche," a sandstone sort of thing that I got from Williams Sonoma many years ago. I broke that one and got another (at about twice the price I'd spent 25 years earlier) and haven't been successful ONE TIME with it. Same recipe, same everything... but rather than a big, high round loaf, I always get a short, squat round loaf. I can't eat it anyhow... I made it for my husband and friends... I've given up!

I'm so sorry. It's no wonder your poor body is in crisis! You've been thru more than some people go thru in their whole lives!

I identify with 100% of the above, except for 2 things: Sporadically, and i eat bread several times a week..never have a problem from it. oh, hirdly, i dont get nausea but a major major lighteadhnss like there is zero bloon in my head ..and the sweating is amazing. of course, can't sit up straigh when taking care of this..so am leaned over...and talking myself through it: "fight..stay awake..don't pass out..count to 3...then do it again...breathe ..make noise..stay conscious". This happens to me only sporadicaly...maybe once every 6-7 months....maybe even longer like 10-11 months: about 2-3 a.m., i'll be sound asleep ..then a small sensation in gut,.sense of something moving through intestines/colon whatever . including the internal gurgling...til the sensation levels in mid gut near belly button. can't describe it as a cramp though..just a sesnation of sorts but that's where it's centered. I know what's about to happen..so i get to the restroom just before it starts. but then the sweatss starts...and i deliberately make a bit of noise when exhaling...but it dounds like a moan...but it seems to help for reason...no idea why. but it does i don't even bother going back to bed. I'm actuallya very healthy adult male otherwise..I know it's not going to go away in 5 minutes, so it's easier to lay down almost fetally on the bathroom floor rather than even attempt to stand as standing will make me even more lightheaded: I'm 100% out of energy, zero strenght...and just thinking to myself "wtf is this all about i feel like im dying here!" and fa,mily is thnking im just whining. Tried to explain to dr 2-3 years ago...but ...went nowhere with it.

my diet is okay...but i do eat breads..wheat breads someitmes...but honestly have foudn myself at a loss now..i identify with the symptoms in the thread,...except that mine happens only sporadically...but when it does..holy cr*p...it's nasty as everyne else has described. However, today...id have no problem making a chicek sandwish right now on any kind of bread. i eve neat bagels ..maybe 1 every other week...but I never had any idea this bread stuff cold actually be causing this?

but if its the bread..the nwhy this happen only sporadically ? thoughts? thanks.

Thoughts??? You're damaging your small intestine every time you eat even a tiny piece of bread!! Are your experiences related to eating bread even occasionally? I'd think SO!! Bread seems to be one of the easiest things to replace anymore... even gluten free bagels are good... so do yourself a favor!!!

I went thru the nighttime diarrhea too. After going gluten-free, it went away. It returned recently, and I've come to the sad conclusion that it's dairy causing it this time. I'm finding going dairy free more difficult that going gluten-free was!!

I'd even take it a little further and say that things w/ REAL foods as ingredients aren't processed. As soon as you start adding preservatives, stablizers, etc., it becomes processed.

I wouldn't consider 100% juice or bread made only w/ flour, water, salt and maybe eggs and oil or ice cream using only cream, sugar, and nuts/chocolate, etc., as processed food... like the Larabars thought.

I don't know how old you are, but I didn't exhibit ANY symptoms till I was 48 years old and was diagnosed just a few months later. The fact that a gluten-free diet worked makes me wonder if you're not reacting to another food, like dairy. I've been gluten-free for 9 years and only recently started having diarrhea again... and all signs point to dairy!

Just read some of people's info space and see just how many foods celiacs can be sensitive to! You might go back to some real basics... lean meats, fruits, veggies, and rice and then start reintroducing foods slowly... only a few at a time... to see if something specific isn't zapping you.

My middle daughter is very interested in this subject. She was FINALLY diagnosed bipolar about 5 or 6 years ago and has been doing a lot better w/ the help of awesome doctors and a good medical cocktail. She was diagnosed w/ celiac about 4 years ago. Now she's really wondering what being gluten free and bipolar might have to do w/ each other. It's a subject that's under study, according to her doctor. With the help of her doctor, she's VERY slowly weaning herself off of bipolar meds (w/ babies in mind, I'm thinking) to see if celiac and bipolar are related in any way. Thank GOD for good docs and good med cocktails.

I've sent letters (I always write a letter when sending sympathy thoughts) to one cousin and asked that they share my letter w/ their siblings as I'm thinking of all of them, rather than sending each one a separate but similar letter. But they all live close to each other and see each other often.

I understand your hurt, tho.

My husband makes wheat pasta all the time. I've never had a problem w/ it.

What are the ingredients?? Malt (barley) flavoring is the one that's in most cereals that make them no good for us.

Whoa!!!!??? Millet being contaminated with GLUTEN? Oh man! Maybe that explains what I went through with Pamela's bread mix?! Oh sheesh.

Well, I guess whether or not I have a millet allergy, I'm just going to stay away from it period. My face swelled up and it was just really bad - lots of strange allergy-like problems plus increased ataxia, 2.5 weeks of bad GI problems, and some of the things I deal with when I have gluten.

Anyone hear that Pamela's products got glutened by the millet flour?

I've been using Pamela's bread mix for years w/ no problems. Is this a new problem that all of her mixes were contaminated w/ millet flour? Or that it contains millet flour and you reacted to it?

Are you asking if anyone HERE had the same problems or did we HEAR that all her mixes were contaminated?? Sorry I'm being dense, but I'll be really upset if I can't use her mixes anymore!

That looks really good... but I get so frustrated w/ recipes w/ so many different types of flour. This recipe used SEVEN different kinds (if you count the flax seed as a flour).

I have most of them... but not all of them... and find storing them all kind of a pain in the butt!

I don't often eat breakfast anymore. The idea of needing carbs at every meal is that got me to the extra 40 lbs. I've been carrying around for all these years!

When I did... I'd slather peanut butter bewt. rice cakes... or smush a ripe banana betw. 2 waffles and eat 'em on my way to work. Sometimes I'd have yogurt and chopped nuts.

Yes, Yes, YES! I look to support groups to help me work through the issues *before* I am in a situation and sometimes to help me develop my Lessons Learned!

And when I first went gluten free I was just so grateful that *I* didn't have to figure out that cross contamination thing. Well, life has a funny way of teaching me, I guess!! But I have been blessed, and I am forever grateful for my daughter who has helped me navigate this as well as we have.

Having nothing to do w/ anything... your avatar is about the cutest face I've ever seen!!!

Boo hoo hoo... dairy's not my friend these days. Good thing I didn't buy that Cuisinart ice cream maker I'd been longing for!!

And yes... I'd LOVE some cheese w/ my WHINE... oh wait... hold the cheese!!

I thought both Fruity Pebbles and Cocoa Pebbles were gluten free. I don't like them so I'm not sure. There are several "Chex" cereals that are labled gluten-free. I only like the plain corn and rice Chex, and I know there was some issue w/ one of the newer flavored ones, but I know the corn and rice are gluten-free. I heard that KIX is now gluten-free.

I can't buy cereal... cause if the box says there are 10 servings in the box... that means there are 3 for me. I have major portion control issues when it comes to cereal, so I don't buy it.

I have lots of stories like that... the kind friend who told me there was no wheat in her soup and dipping me out a big bowl... to find pasta floating everywhere. Or the waitress who said she understood my food issues and brought me the salad that was absolutely gluten-free and at the bottom was a layer of chinese noodles... "Oh... THOSE are made from wheat??"

If there's one thing I've learned here is that if you put 100 celiacs in a room, you'll have 100 different sets of symptoms. She didn't mean to be ignorant, but she only has one frame of reference.