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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    A board certified doctor can pretty much officially diagnose based on gut feeling. He will probably enter diagnostic code ICD-10-CM K90.0, mention the anti-gliadin IgA, which is a positive celiac test even if it's a bit out of date, and your extreme reactions to gluten.
  2. Skylark
    - Most packaged lunch meats are gluten-free. Just check labels. I know of the top of my head that Carl Buddig lunch meats are gluten-free. Oscar Mayer (made by Kraft) will clearly list any gluten ingredients on the package. - Most margarine is gluten-free. I'd strongly recommend Smart Balance or Earth Balance becasue they're completely free of trans...
  3. Skylark
    @IrishHeart - flourless chocolate cake is da bomb! I have a great recipe for one too.
  4. Skylark
    Depends on whether you want to pursue a celiac diagnosis, or if you're comfortable just eating a celiac-safe diet for the rest of your life. If you want to pursue diagnosis you need a GI. It's your choice, really - gluten makes me so sick I opted for the lifelong diet rather than challenge for more testing. Problem is with the positive TTG you can't safely...
  5. Skylark
    Your endocrinologist really screwed up. She should have told you to keep eating gluten and referred you to a GI. It's reasonably common to only be positive on one celiac test and still have celiac disease. The blood tests aren't very good so even one weak positive is cause for concern. Rarely Hashimoto's can cause TTG-IgA but it's usually caused by celiac...
  6. Skylark
    Betty Crocker. It's super-easy, tastes great, and I can get the mix at my local supermarket.
  7. Skylark
    Chances are it's celiac rather than gluten intolerance becasue you have a positive celiac blood test. Didn't your doctor order follow-up testing? You should have had at least DGP-IgG and IgA to confirm the positive TTG blood test and the usual standard of care is a biopsy. Now that you're off gluten these things can't be done. It's NOT bad for you to...
  8. Skylark
    I'm in your shoes. Feel awful, all tests normal. They don't test enough and you're absolutely right that your "normal" might not be "normal". If you're sure you have leaky gut and candidiasis, SCD or even GAPS (Open Original Shared Link) is probably a good first thing to try. Pay attention to how you feel after the sauerkraut or yogurt - it might help...
  9. Skylark
    I'm sorry to hear about your mom. That must be hard. It's miserable to be stressed out, glutened, and deprived of things you find comforting. And the glutening always messes with my head and makes me all the more miserable. I get more sensitive to stress. I hope you get over the gluten symptoms soon. You asked how long it can last - my stomach will...
  10. Skylark
    That seems OK, though I don't like that it went up. The new range for TSH is 0.5-2.5 but you're still well below 2.5. You could try taking the RDA of selenium if you have other hypothyroid symptoms like dry skin, hair loss, weight gain, or get cold easily. Your thyroid needs selenium to function properly and some people are deficient. Also make sure you...
  11. Skylark
    Have you been checked for thyroid trouble? Hypothyroidism does exactly what you are describing and it goes hand-in-hand with celiac disease.
  12. Skylark
    That's great! You got the formal diagnosis you were looking for! I'm glad your doctor came around. Doctors are trained not to diagnose unless they're certain, but that doesn't always work out very well with celiac because it can be hard to catch with diagnostic tests.
  13. Skylark
    I just made stir fried chicken with bamboo shoots, broccoli, and snow peas with gluten-free soy sauce for a friend who came over to dinner. Served with rice. Strawberries for dessert. It came out really well and it's not the kind of meal you even notice is gluten-free. I sometimes make cornbread or flax bread to serve with dinner. I don't offer gluten...
  14. Skylark
    Most likely you are simply sensitive to chicken. Eggs are a common allergen/food sensitivity too.
  15. Skylark
    I was a student and didn't replace much at all. beat up wooden cutting board cast iron skillet seasoned wok because no matter how hard I scrubbed it still smelled of soy sauce toaster threw out a few microwave-damaged plastic containers that really should have gone long before wooden spoons That's about it. I didn't throw out any nonstick...
  16. Skylark
    Trust yourself! It's not unusual to realize you always felt kind of bad when you go off gluten. Enjoy feeling better.
  17. Skylark
    I totally agree with you. I think your doctor was looking for phrases like "total villous atrophy" rather than "villous blunting". Some GI doctors only diagnose when damage is severe, even though recent research says that blood + even increased IEL should be considered celiac. To me that report looks like perhaps there was mild, patchy damage. I agree...
  18. Skylark
    Nope, it's not in your head. As well as Gluten-free Mall there are lots of lunch foods that are naturally gluten-free. Nuts, fresh or dried fruit, hard boiled eggs, and sliced vegetables are in my lunch bag most days. Cheese and yogurt are good too if you tolerate dairy, and most lunch meat is gluten-free. Eat it with a rice cake or corn tortilla...
  19. Skylark
    I don't even know what the phrase "drying process" means. If you have questions about Fritos you might write Frito-Lay.
  20. Skylark
    The celiac test here is endomysial and it's negative. However, it's only positive in about 70% of celiacs. Your high total IgA can indicate autoimmunity but it's not really a celiac test. Celiac may be less common in African Americans than Caucasians, but I haven't read that it's rare. Peter Green had some African American celiacs come through his clinic...
  21. Skylark
    That's impressive. The studies on GlutenEase-style enzymes didn't look that good. It's wonderful that you found something that works. I thought I was sensitive like you are but my issues turned out to be dairy intolerance. I'm able to eat out if I can get gluten-free/casein-free food. I'm a little skeptical about homeopathy but the great thing is homeopathic...
  22. Skylark
    Sometimes I would fail the anemia test. When I did donate, I still found it very draining. After I almost passed out after one donation the Red Cross suggested I stop because it was harder on me than they preferred to see.
  23. Skylark
    Oh, I misunderstood. I totally agree that you don't want to enroll your child in a clinical trial of oral insulin! As long as you are watching for the symptoms you should be able to avoid a bad experience like my friend had. Her daughter's diabetes was out of the blue because there was no family history and they were not aware of the symptoms. We ALL...
  24. Skylark
    They're not characteristic but celiac can cause all sorts of crazy stuff. Give the diet more time. You have to get rid of the autoimmune antibodies, then your intestine has to heal. Complete recovery can actually take years if there is a lot of damage. Symptoms usually improve at least to some degree after a couple months on the diet.
  25. Skylark
    Hi and welcome to the board. Celiac is not an allergy/intolerance. It is an autoimmune illness triggered by gluten, which is the protein in wheat, rye, and barley. Gluten triggers autoimmune intestinal damage and going off gluten stops the autoimmune reaction and lets the intestine heal. There is blood testing for celiac that isn't perfect but it's...
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