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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    They've never heard of a WHEAT ALLERGY? Plenty of celiacs are allergic to wheat too. Sorry you didn't get help. That's insane. I might try making an appointment with my Dr. and asking for an inhaler.
  2. Skylark
    I was just in the Florida Disney World and the accommodations for gluten-free were spectacular. I haven't been to Disneyland in the past few years but it was pretty good five or six years ago and it's probably better now. Be sure to write and get the most recent gluten-free list. One really neat place is the Blue Bayou restaurant inside the Pirates of...
  3. Skylark
    Follow your foodie impulses, but focus on cooking your own food. You can make fabulous meals gluten-free. When I'm tired I rely heavily on my crockpot and Dutch oven. I don't eat out much, and there are only a couple friends I trust to cook for me. One has severe soy allergies so she "gets" CC. The other is just brilliant and has text-messaged me to...
  4. Skylark
    Gosh, you sound like me before I got onto decent supplements. Insomniac, spitting fire, and irritated as hell. Plus I was having bipolar episodes. You're bipolar right? I recognize the symptoms in your post from my own struggles. I did not improve at all mentally my first year gluten-free. My GI system settled down but not my mind. After a year a naturopathic...
  5. Skylark
    Aww, thanks. Glad we had you good and ready to talk to him and get the most out of the conversation.
  6. Skylark

    ARCHIVED Help

    Skylark replied to nursenation2's topic in Coping with Celiac Disease

    That's pretty much what I have to do. Broth and rice, bananas, tea. Applesauce and cups of Jello are handy too because they're so easy to carry to work. I find Pepto-Bismol helpful and ginger tea or ginger soda made with real ginger can help nausea. Immodium if necessary. B12 seems to help my mental symptoms a little. I don't know why I seem so short...
  7. Skylark
    It's great that your doctor took enough biopsies to catch the celiac disease if it was confined to one area of her intestine! I hope she feels better soon.
  8. Skylark
    Ask me in a week when the mail order package arrives. It's not candy. It's real coffee, with licorice flavor. Can't decide whether it will be gross or marvelous but I'm a total javahead (gee, do I still have javahead street cred drinking decaf for migraines???) so I had to get some to find out.
  9. Skylark
    Glad you found some yogurt that will work! For what it's worth, Failsafe diet allows vanilla flavor. It also allows natural maple syrup. I bet that would take the edge off plain yogurt. I like plain Fage better than Chobani. Grab it if you ever see it becasue it's really mild and good.
  10. Skylark
    I splurged. $30 worth of gluten-free licorice including the licorice-flavored coffee that I just had to try out of curiosity is on the way. Licorice is supposed to support the adrenals. Yeah. That's my excuse.
  11. Skylark
    I'm not a doctor; I'm a scientist. I have to admit scientists tend to look down on doctors slightly because they didn't have to slog through a dissertation.
  12. Skylark
    Glad I haven't missed anything with the Candy Tree. I got an 8-pack of the Chateau D'Lanz licorice at A m a z o n. If the kids are looking for a twizzler texture they won't like this one at all. It's a candy drop that is only slightly chewy. It's better to suck on. Edit: Hey, check this out! Open Original Shared Link Still no gluten-free allsorts...
  13. Skylark
    I've had an Oskar mini food processor for ages. I don't know whether Sunbeam is still making them but I think Black & Decker and Cuisinart have similar appliances. It's just the right size to make a small batch of breadcrumbs, mince an onion, shred a couple carrots with the shredder blade, or dice an apple.
  14. Skylark
    There IS real liquorice, just not allsorts. Orgran gluten-free molasses licorice that is as good as Panda. Soft, chewy, full flavor. Gluten-free Mall carries it, though if you shop around there are cheaper places. I also liked the Chateau D'Lanz swiss licorice. It has a great, full flavor but it's not as soft and chewy as Orgran. The Gimbal's gluten...
  15. Skylark
    You're welcome. Glad I'm making sense.
  16. Skylark
    Nope, still sick dammit. This has been going on for two years. I'm sitting here today with my head swimming, subtle visual disturbances, mild vertigo, and a feeling of pressure around my head. I'm trying to decide if it's a low-level migraine or what? I think for me it's partly a consequence of my Hashimoto's autoimmunity becasue the fog got really...
  17. Skylark
    It's the really hard thing about looking at a population where everyone is slightly different. The TTG test does not necessarily read zero because antibodies cross-react. (This is handy when your immune system is trying to kill off a slightly different flu strain or bacteria it hasn't seen before.) On a test going 0-100, people with a TTG of 100 are obviously...
  18. Skylark
    I'm still bitter about licorice allsorts. I can get decent gluten-free licorice but not allsorts.
  19. Skylark
    I believe I answered multiple times in your original thread where you put all the information. If you have new information it's easier to bump the old thread so we can see all your labs together.
  20. Skylark
    Damn doctors. Yes you could be celiac. Unfortunately because your Dr. was incompetent the only way to get celiac testing is for you to go back on wheat for a month or two. If you're comfortable sticking to the diet for the rest of your life as if you're celiac it's OK to forego the testing.
  21. Skylark
    Modern wheat and GMOs may be causing more people to develop celiac, but once you have the autoimmunity all wheat is toxic to you. Lactose is NOT protein. Lactose is a sugar and the way lactose intolerance works is completely different from celiac. Lactose intolerance is not an immune response at all. It is a result of undigested sugar either feeding...
  22. Skylark
    Enzymes are what your body uses to break down food. They are made in your saliva, your pancreas, your stomach, and your intestines. All the damage and inflammation in celiac tends to make us produce fewer enzymes than normal. I hope it helps! Low FODMAP is sort of a pain and this would be an easier fix if it works for you.
  23. Skylark
    3.47 is over the new recommended range of 0.5-2.5 or 3.0. I bet you're tired. I feel bad if my TSH is over 2.0 and that's "normal".
  24. Skylark
    I'm not sure how to explain in lay terms. Immunologic tests are not absolute measurements like serum sodium. The lab has to set its own ranges based on a group of normal people. (This is why TTG can be so different from lab to lab.) If the lab changes procedures, gets new suppliers for reagents, buys new instruments, or if new information becomes available...
  25. Skylark
    Great info! This is the whole reason behind the Specific Carbohydrate Diet. It limits starch (which breaks down into short-chain saccharides), lactose, sucrose, and maltose and provides carbs from easily-absorbed fructose instead. Which is fine unless you're malabsorbing fructose...
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