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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    I always print out the allergy information from the internet. (And pray!) Sorry you got glutened.
  2. Skylark
    What new foods did you start eating? Some people have trouble with gluten-free breads that contain a lot xanthan gum. You also might have an allergy to a grain you weren't eating before like quinoa or tapioca. I'd recommend trying out plain old rice and potatoes for a bit.
  3. Skylark
    I bet you're exhausted with those labs. There's plenty of us on the board with Hashimoto's, some much better at reading thyroid labs than I am. My TPO was 400-something which is a fairly spectacular level of autoimmunity, and I have anti-thyoglobulin in the 60s I think. I've been hypothyroid for years with TSH as high as 11 but the autoimmune antibodies...
  4. Skylark
    I'm paleo-ish. I find I have a little more energy if I have a few servings of rice, quinoa, or oats per week but that's about it for the grains and legumes. I don't worry at all about fat/protein/carb. I eat a nice serving of protein, veggies to fill up, and enough fat to make me feel satiated. If you are losing weight without carbs you need to be eating...
  5. Skylark
    It took me a long time to recover from gluten-caused bipolar illness. I was gluten-free for a year and only got a little better. After a year on the diet I dropped all my meds (which weren't really working anyway) and started taking a multivitamin/mineral/trace element supplement called EmpowerPlus that's designed to cure mental illness. It freaked out...
  6. Skylark
    Hi and welcome to the site. Also welcome to the confusing world of celiac diagnosis! Latest thinking is that DGP precedes the appearance of TTG. DGP-IgA isn't as specific as DGP-IgG but it's still a pretty good celiac marker. Why didn't they run DGP-IgG? If I had your labs I'd be asking for DGP-IgG and if that was positive I'd assume celiac. Otherwise...
  7. Skylark
    You might like low starch too, since it's the same as sugar as far as bacteria and yeast are concerned. Have a look at the Specific Carbohydrate Diet for low-starch, IBS-friendly food lists. Open Original Shared Link
  8. Skylark
    Ugh. Yeah, gluten reactions can go for a while. If it's likely you thickened with wheat flour, I'd bet on the wheat! You double-zapped yourself too. It sounds like you need to empty out the freezer. I take Pepto-bismol when I get glutened and it seems to help me a little.
  9. Skylark
    It is a great improvement! Ignore your doctor and keep doing what you're doing with the diet. As Stephanie says, most folks get retested at six months. Too much zinc is a little toxic I wouldn't try to feed him a bunch of zinc-rich foods along with the supplement. As he heals his absorption should improve quite a bit. Here's some info on dietary zinc...
  10. Skylark
    Gotcha! I thought you meant an antibody test. DQ2 increases risk for celiac, but is not diagnostic because something like 30% of the US population has a DQ2 gene. The low iron is something a lot of us get, but it can come with inflammation from gluten intolerance too. There are false negatives on testing but you're probably gluten intolerant rather than...
  11. Skylark
    TTG-IgA is one of the antigens in anti-EMA, but the reactions are not identical. TTG-IgA can appear in other autoimmune diseases and inflammatory bowel diseases while anti-EMA is 99% specific for celiac. For example, TTG-IgA can appear in Hashimoto's. Open Original Shared Link I don't know as much about TTG-IgG in people with normal IgA. I don't think...
  12. Skylark
    You're not really describing an allergy. Unfortunately, all the food allergy and intolerance testing is prone to inaccuracy and false positives. Elimination and challenge is most reliable. The problem comes if you're sensitive to multiple foods. You may not feel better if you eliminate only one and keep eating the others. Milk and soy come up as...
  13. Skylark
    Given that type O is the most common in the US, it's probably coincidence.
  14. Skylark
    You could start one. I have a fried who met D'Adamo by the way. She said he was laughing all the way to the bank. He put the meat and fatty foods everyone likes on the most common type O.
  15. Skylark
    What test was positive? The only test that might be positive without you being celiac is the old anti-gliadin IgA. Biopsies can miss patchy damage so you may be celiac. I hope you're strictly gluten-free. As for your son, have your doctors said anything about common variable immune deficiency (CVID)? Celiac is a common misdiagnosis because one of the...
  16. Skylark
    That makes a lot of sense, Shroomie. I don't think lectins and autoimmunity play very nice together.
  17. Skylark
    Do you eat xanthan gum? Just sayin.
  18. Skylark
    I'm not sure but the food chemical diet I'm on says to peel them. Might be amines. I don't think I react to iodine. Seafood doesn't cause any issues.
  19. Skylark
    What a beautiful little boy! Yes he looks a little bloaty to me too. The classic symptom of celiac is failure to thrive, plus the loose stools and mild bloating. You absolutely did the right thing getting him blood tests. The false negatives are high but you might have a positive test and that's invaluable! Good luck with the gluten-free diet. I...
  20. Skylark
    Yes, great sleuthing! I suspect the rabbis will stick to their decision but it's good to know the whole story.
  21. Skylark
    Welcome to the self-diagnosed club then.
  22. Skylark
    OK this is crazy. I think I might be reacting to potato SKIN. Tater tots didn't bother me but a whole baked potato has gotten me twice. How weird is that?
  23. Skylark
    Hi and welcome. You need to ask your doctor for a celiac panel. The Dr. may also want to rule out intestinal infections like Giardia. Celiac testing is prone to false negatives and does not pick up gluten intolerance so once it's done, try him on a strict gluten-free diet.
  24. Skylark
    I keep the sauce and pasta separate.
  25. Skylark
    It's hard to get a negative anti-gliadin from Enterolab, given that 30% of perfectly healthy people come up positive and even more with stomach trouble do. It's really good that it provided you with enough motivation to go completely gluten-free. I'm not a fan of sending people to Enterolab to spend a bunch of money when Fasano is saying there is...
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