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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Skylark
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I think you will need to learn to cook. Citric acid is really common in processed foods. This might help you. It's some info compiled by another citric acid intolerant person. Open Original Shared Link Some info on this message board as well. Open Original Shared Link
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ARCHIVED What's For Breakfast Today?
Skylark replied to GlutenFreeManna's topic in Gluten-Free Recipes & Cooking Tips
Grain-free. Scrambled eggs and a sliced apple. -
That's great! I hope you can find a few more foods that work for you over the next few weeks.
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My wheat-eating friends tried some cupcakes I made from the Betty Crocker gluten-free devil's food mix at a party. They said they were a touch dryer than wheat but that the flavor was good and all the cupcakes disappeared.
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ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
No, I don't see any 1 vs. 2 breakdown and you make a great point about the compliance scale. It's hard to know what really happened too, because the provided tables don't cross-tabulate the compliance scores against recovery. The other problem is that people lie like crazy about what they eat in studies so compliance scores are not going to be terribly... -
ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The authors addressed dietary compliance and looked separately at the group that was eating gluten-free and not cheating. "However, the fact that only 67 (43%) of 156 patients with good adherence to a GFD, as determined by the dietitian interview, achieved mucosal recovery suggests that occult gluten sources (either cross-contamination or inadvertent gluten... -
ARCHIVED Hair Strand Allergy Test Results
Skylark replied to AVR1962's topic in Coping with Celiac Disease
I can't weigh in as the hair strand labs don't even say what or how they're testing! I do have to say I'm suspicious of it. Eliminating one food at a time will NOT work. You will not feel better unless you get rid of all the foods to which you reacting. I don't see that you'll have to go grain-free. Are quinoa or amaranth on your list? -
That's a very negative article. IgG testing is certainly prone to false positives but a lot of folks find it useful to guide an elimination diet. I wonder if the author article has confused IgG and IgG4 testing? IgG4 testing is useless as IgG4 mediates tolerance.
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ARCHIVED Steel Cut Oats And "gluten Free" Products
Skylark replied to Rat's topic in Dermatitis Herpetiformis
What brand of oats? Most are not gluten-free. -
ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The one I thought was interesting was Fasano's paper showing that zonulin does not normalize. There is also a paper I'm not sure was cited showing that the intestinal mucosa is still different in gluten-free celiacs. Open Original Shared Link The Medina et. al. link you said you don't have the knowledge to comment on is one of the growing body of literature... -
So you think the epidemiologists writing autism prevalence papers have somehow forgotten this? The prevalence has been rising even in the past ten years, and while it may be a matter of better awareness, there are some pretty convincing prospective studies suggesting otherwise. As you point out, the DSM IV (I assume that's what you are talking about when...
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ARCHIVED According To Recent Data, Gluten-Free Doesn't Seem To Be Enough
Skylark replied to Gfresh404's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I'm not sure what you're looking for. I'd suggest you read the 11 peer-reviewed articles they have referenced, including Fasano's zonulin work, and draw your own conclusion. I agree there is a blatant hard-sell in that article but I had also read all the research they referenced before seeing it. I had come to pretty similar conclusions on my own before... -
ARCHIVED More Dumb Questions -- About Villi
Skylark replied to beachbirdie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your gut has a tremendous immune system to protect you from bacteria and viruses in your food. It's called the gut-associated lymphoid tissue. Part of that system are cells called intraepithelial lymphocytes that reside in your intestinal epithelium to kill invading bacteria. In a celiac biopsy there will be an abnormal number of these cells. They are recruited... -
ARCHIVED Tocopherol Acetate Confusion
Skylark replied to livelifelarge24's topic in Gluten-Free Foods, Products, Shopping & Medications
I've also seen hydrolyzed wheat protein in shampoo. I don't know if it's a worry since shampoo washes off but it's easy enough to find a shampoo without gluten deliberately added as a selling point. I don't worry about tocopherol either. -
ARCHIVED Is Enterolabs Worth It?
Skylark replied to amy74's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Enterolab is LESS reliable than feeling better gluten-free. I used to get exactly the rash you're describing on the inside of my elbow. It was diagnosed as atopic dermatitis. It went away when I got off gluten. I don't think mine was DH because it didn't really itch. -
ARCHIVED Problems Maintaining A gluten-free Diet With A Busy Schedule
Skylark replied to Rhabdoviridae's topic in Introduce Yourself / Share Stuff
In grad school, I pretty much lived on rice, potatoes, homemade bean or lentil soups (start with canned if you don't have time to use dried beans), cheese, yogurt, and whatever seasonal fruit and vegetables were on sale. You can make a big pot of nourishing vegetarian split pea soup with rice for only a few dollars and rice/legumes makes a complete protein... -
As with celiac disease and type 1 diabetes, there are some pretty convincing epidemiology studies showing that even the rise in diagnosis is not enough to account for the increase in autism. The vaccine data was fraudulent so now we have no real idea what's triggering it. I find it frightening.
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You need have a relaxed chat with your HR person if this is bothering you all the time. He/she may be able to arrange a cube trade if you can make an argument that the constant annoyance and mild upset is affecting your productivity. I'd recommend the Betty Crocker gluten-free chocolate cookie mix. It comes out great!
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ARCHIVED Lots Of Labwork No Clue Where To Start.
Skylark replied to MaggieB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Any Dr. can order a celiac panel. The endoscopy is usually done by a GI. As far as sensitivities/allergies, an allergist is probably your best bet. If your IgG testing really does reflect foods that give you trouble you may want a allergist to get you a more detailed panel. -
No, TSH of 3.3 is not normal according to the new reference ranges. It should be below 3.0 and preferably below 2.5. You are most likely hypothyroid and you need an endocrinologist! "Adrenal fatigue" is a fad diagnosis that is making a lot of people terribly ill because their underlying health problems are missed. Don't sweat your adrenals. You need...
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TSH is not adequate to diagnose thyroid problems unless you have no other hypo- symptoms at all. A LOT of people with celiac have thyroid trouble. Hashimoto's is also more common. I would suggest you ask for a referral to an experienced endocrinologist. Your thyroid gland activates your adrenals so if you are slightly hypothyroid your adrenals will be...
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ARCHIVED Lots Of Labwork No Clue Where To Start.
Skylark replied to MaggieB's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Genetics are DQ2.5, DQ8.1. This means you have higher risk than normal for celiac. You have egg and milk IgG, which means you may have delayed sensitivity reactions to them. You may also tolerate them perfectly well. Usually a doctor will have you eliminate both foods for a few weeks and see how you feel. Then you challenge them one at a time and see... -
ARCHIVED Update And More Questions On Testing - Igg Deficient?
Skylark replied to beachbirdie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
It's not obvious at all. I understand it because I have run ELISA assays, plus I read a paper on how even low-normal IgA can make TTG testing unreliable. I like to help, like everyone around here, and I actually knew the answer to that one. -
ARCHIVED Sensitive To Gluten And Milk, With Mostly Psychiatric Symptoms
Skylark replied to gliadin-raider's topic in Coping with Celiac Disease
You are not alone. I had bipolar illness from gluten. I had all the GI trouble as well and it took me a while to heal. It sounds like you were going pretty fast! As other folks have said it would be good stay on gluten for a bit longer to get celiac testing. It's possible to have "silent" celiac with no GI symptoms. -
ARCHIVED Update And More Questions On Testing - Igg Deficient?
Skylark replied to beachbirdie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the kind words. I must have had a rare non-brain-fogged moment in there.