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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Did you do OK at the dinner? Here's another way of looking at the enzymes. You've taken all reasonable precautions. If the enzymes settle your mind and will help you relax and enjoy the evening, it's worth taking whether or not they will detoxify a trace of gluten. (Which is not clear to me from looking at studies.)
  2. Skylark
    This over/under methylator stuff is kind of whacky. I don't really buy it becasue there isn't any good science to support it. Even if it's meaningful, the conversion of glutamic acid to glutamine is not a methylation reaction. Glutamine is safe to take. You only convert glutamate when your body needs it, since it's a neurotransmiter. That's why MSG...
  3. Skylark

    ARCHIVED Elisa

    Skylark replied to zebaldwin's topic in Food Intolerance & Leaky Gut

    The main issue with testing is false positives. It's reasonable to get the test, eliminate everything that comes up, and see if you feel better. If so you challenge the foods one at a time. Problem is if you're reacting to a lot of stuff you may have so many ELISA reactions that the resulting diet is wildly impractical and/or doesn't help because you are...
  4. Skylark
    Damnit, Alice. Get it through you head that THERE IS NO CURE FOR CELIAC. The people who say gluten relief works are most likely shills or slightly intolerant people getting placebo effects. Their so-called clinical trial was a joke with completely incorrect statistics and their data actually failed to show an effect. You've got to get over this denial...
  5. Skylark
    Salt water flushes are dangerous, as we tried to tell you, Alice. Chalsh, take whatever helps the symptoms. Immodium and/or Pepto-Bismol can help. I usually have to shift to eating only rice and broth for a couple days for nausea. Do be sure you're drinking plenty of fluids (not salt water) so your body can flush out.
  6. Skylark
    That's great. I'm glad you sorted things out with your mom and got all the gluten out of your house. Hopefully you'll be able to avoid any more bad glutenings for a long while. Right now gluten-free IS a fad diet. Unlike Atkins or the other fads, when Hollywood moves on to another diet, as many as 6% of Americans may be permanently gluten-free from...
  7. Skylark
    You need sauerkraut with live bacteria. You can buy Bubbie's brand. My local health food store carries unpasteurized kimchee and fermented beets but the are super-expensive and making sauerkraut is pretty easy once you get the cabbage shredded. My digestion really evened out after a month or so on GAPS. Super-regular, no more random episodes of diarrhea...
  8. Skylark
    People get good results with both Elaine Gottschall's SCD and Natasha Campbell-McBride's GAPS. What I'd suggest is starting out on SCD because it's not as restrictive. You can use the idea of having sauerkraut from GAPS if it appeals more than the SCD yogurt. If you still have lingering digestive problems on SCD, GAPS has a gut-healing plan that temporarily...
  9. Skylark
    Celiac disease biopsies are taken from an endoscopy, not a colonoscopy. Your friend needs celiac biopsies becasue the blood tests have a 20-25% false negative rate. She needs an experienced GI who will take multiple biopsies to do it too. Some doctors only take one or two and miss the damage. It is also possible that she is severely gluten intolerant, in...
  10. Skylark
    I bet what your boyfriend likes is Uncle Ben's converted rice, or some other brand of converted/parboiled long grain rice. It's what many Americans think of as "normal rice". It has a mild flavor and the grains stay very separate. It cooks fine in a rice cooker. Chinese restaurants usually use white rice, not converted rice.
  11. Skylark
    It depends on the type of rice. Sushi rice and other short grain rices tend to be sticky; jasmime or basmati rice cooks into fluffy single grains like you get at an Indian restaurant. You can also control the texture of the rice by how much water you add. More water softens the grains, releases the starch, and makes them sticky. Less water gives firmer...
  12. Skylark
    Hard to know. Mice aren't humans, but it's encouraging, isn't it?
  13. Skylark
    Was there any xanthan gum in the flour mix or recipe?
  14. Skylark
    Good luck! Your situation sounds awful and I really hope this next round of antibiotics knocks out the Lyme and improves matters.
  15. Skylark
    Do you need help getting going on the diet? I really agree that you should go gluten-free before you consider a hysterectomy. I can't fathom why doctors want to remove your female bits for a GI problem. Gluten-free makes sense but have you been tested for SIBO? That could explain the rotten-egg taste. I'd suggest as well as going gluten-free, you...
  16. Skylark
    Did you run across this? Lyme can cause SIBO! Open Original Shared Link I ran across it linked from this website on SIBO. There are recipes for elemental formulas there and perhaps there is something of use. Open Original Shared Link Perhaps there is something you can use. As for the probiotics/antibiotics mix, the probiotics don't flourish but...
  17. Skylark
    Autoimmunity runs in families, and it's all interconnected. Once you have one autoimmune disease you are at higher risk for others. I typed "pernicious anemia celiac" into pubmed and belive it or not the first article that came up was an association not with celiac but with Graves' disease. It's hard to know what happened in what order. You've got the...
  18. Skylark
    Awesome! I'm so glad to hear you're keeping the kitchen gluten-free and that your baking is going so well. I love making cookies and muffins with almond flour. You might like a rice cooker. It's the first thing I bought when I went gluten-free and it was money well-spent. It's so much nicer to not worry about watching a pot of rice and burning the bottom...
  19. Skylark
    There is no reason to avoid wheat during pregnancy if you are comfortably tolerant of it. Pay attention to reactions to your breast milk though. As jswog says, some people with celiac disease, like me, are sensitive to wheat from infancy and it will come through in your milk. You mention buying a house. The most considerate you could do for your boyfriend...
  20. Skylark
    I don't see your allergens in any of the brand-name liqui-gel formulations, unless sorbitol is a big problem. I doubt they contain much since it's at the ends of the lists. Benadryl liquid gels: diphenhydramine, gelatin, glycerin, polyethylene glycol, purified water, and sorbitol. Capsules are imprinted with edible dye-free ink. Zyrtec liquid gels...
  21. Skylark
    I haven't bothered with chocolate chip cookies from scratch. I use the Betty Crocker gluten-free mix!
  22. Skylark
    You are talking about the distinction between hereditary fructose intolerance (HFI) and fructose malabsorption (often called fructmal), right? A LOT of people are living with fructmal and don't realize it. It may or may not have to do with damage; the experts in the Yahoo! fructmal group who have been reading the scientific literature and there is some...
  23. Skylark
    I agree with Zimmer about the usefulness of being sensitive to how much information someone can absorb. A lot of people never really "get" the impact of celiac. Even my friends who are gluten-free for various non-celiac health reasons do not eat a celiac-safe diet. The answer that I find easiest for people to understand is: "Your immune system is designed...
  24. Skylark
    Gotcha. I misunderstood. I was afraid you meant she was so picky that you might have to take time to transition her onto gluten-free substitutes. Having seen my nephew turn down ham because it was the wrong brand and tasted subtly different (he hadn't even seen the package to know!), I know how challenging it can be.
  25. Skylark
    Maltodextrin is safe. Most maltodextrin in the US is made from corn and in the unlikely chance it was made from wheat, the label must explicitly say "wheat" either in the ingredient list or at the end in the allergy warnings. Some people get confused about maltodextrin because the word starts with "malt" which is not safe. Beans, lentils, and soya are...
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