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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    You still need proper celiac testing. Lack of salivary gliadin IgA means nothing. It is not a validated test for celiac disease. You need to be eating 4 slices of bread worth a day consistently for celiac testing. You can't be cutting gluten out of your diet for the tests to work. After two weeks you'd need to go back to gluten for a couple weeks before...
  2. Skylark
    Good luck. I'm glad I don't have to face that decision!
  3. Skylark
    500 IU of D is relatively little. My Dr. has me on 2,000/day but I was slightly deficient. I am not getting sick now like I was before I started taking it.
  4. Skylark
    Are you vitamin D deficient? That can really mess up your immune system and a lot of celiacs have trouble absorbing enough D.
  5. Skylark
    Your doctors are correct to refuse serum testing and only offer endoscopy. You cannot be tested for celiac disease on a gluten-free diet. After seven years the antibodies would be long gone and most people have normal biopsies. An abnormal biopsy after seven years off gluten means you're either being exposed to gluten or have refractory celiac. You could...
  6. Skylark
    Those two references I linked above are the best information I can give you. I'm not a doctor. Both have full text available for free so you can read them and draw your own conclusions. As I said before, the median time to mucosal recovery from severe celiac is two years and it can take as long as five.
  7. Skylark
    If I were you I'd go another six months eating a diet where there could not possibly be gluten before I looked for another endoscopy. As I mentioned, so-called gluten-free breads often contain unavoidable traces of gluten, maybe 5 ppm. You may not tolerate that much and do you want a refractory celiac diagnosis and steroids becasue you didn't get your diet...
  8. Skylark
    Foil works. We just had a thread earlier this month on grill CC and foil packet meals here. There are even a couple recipes.
  9. Skylark
    We have had board members who had TTG stay positive because of other autoimmune diseases. Is your Dr. monitoring only TTG or one of the celiac-specific tests like DGP or anti-EMA? Do you have another autoimmune disease like Hashimoto's thyroiditis or type 1 diabetes? There are also people with celiac who do not recover while they are eating so-called...
  10. Skylark
    Also, at the upper right-hand side in the green rectangle, there is a help button right below your name. It has information on how the board works.
  11. Skylark
    Sounds like she's putting on weight to get ready for another growth spurt. My nephews do that all the time. They grow upward, put on weight for a spell, then grow upward again.
  12. Skylark
    Is Open Original Shared Link safe enough for you? They segregate gluten and gluten-free products on different lines and in different areas of their warehouse and GFCO certify.
  13. Skylark
    I wonder if you'd feel better on a ketogenic diet? It's hard to stick to but a lot of people report increased mental clarity. Another option is to eat a lot of coconut oil. Apparently the medium-chain triglycerides get converted to ketone bodies and your brain can use them.
  14. Skylark
    I did a little reading and apparently 20% of women who get implants have another surgery. The main problem is capsular contracture, which can apparently be uncomfortable like you're describing. That would be something to talk to your doctor about. I poked around a bit and the scientific arguments surrounding breast implants and autoimmunity are vigorous...
  15. Skylark
    Aw geez, what a terrible thing to have happen. A trauma like surgery can trigger celiac. Unfortunately, celiac does not cause ANA so you have something else going on. Have you done any research on breast implants and autoimmunity? I know the old silicone gel ones were really a problem for some women. I don't know whether things change when the implants...
  16. Skylark
    I'd be willing to bet you're eating something new to which you are sensitive or allergic, like tapioca starch or undeclared sulfites in the potato starch and other starches used in gluten-free bread. Try eliminating all gluten-free specialty foods and eating only foods you were eating when you felt well. It will probably be meat, eggs, fruits, and veggies...
  17. Skylark
    Meat, veggies, rice, potatoes, fruit, beans (plain canned or dried), eggs, maybe a loaf of gluten-free bread if you can find it. Shop the outside of the grocery store where all the real food is and plan on doing some cooking. You will have to cook more on the gluten-free diet. I'd also recommend getting a rice cooker. They're super-handy.
  18. Skylark
    That sounds wise if you are experiencing dangerous reactions. Mine were unpleasant GI reactions, nothing dangerous. The wheat reaction was within a couple hours of eating it and I suspect I am slightly allergic to wheat on top of being celiac. I actually got a very classic celiac slow-build with rye. I ate it for a few weeks with no obvious symptoms...
  19. Skylark
    When I did my elimination I tested rye, using pure rye crackers. When that didn't go well I didn't bother with barley.
  20. Skylark
    I'm still testing, but I started noticing felt a lot worse a day or two after eating classic migraine trigger foods like aged cheese, red wine, chicken livers, tomato sauce, and miso. I picked it up with a food diary. Those foods are very high in various amines like tyramine or natural MSG. Sorry to hear you're so miserable, Yolo. I woke up with a dratted...
  21. Skylark
    Blackthorn is gluten-free. That's my favorite cider! So are Magner's, Woodpecker, and Strongbow. I haven't seen a commercial cider other than Hornsby's with gluten, but the concern is barley malt. There are a lot of homebrew recipes floating around with barley malt or malt syrup added to the cider to feed the yeast and bump up the alcohol content. Because...
  22. Skylark
    I've never had issues with mainstream pasta sauces (until I started reacting to tomatoes ). They generally don't have wheat ingredients at all and I have never even seen a "shared machinery" label on a jar. I would feed him the Ragu.
  23. Skylark
    It can take 2-5 years to recover from celiac, with a median of 1.9. If your blood readings are falling consistently you're probably doing OK. Nothing on your list would concern me except the Blue Diamond smokehouse almonds. If I remember correctly, they run wheat-containing flavors on the same production line. Have you asked carefully about flour in...
  24. Skylark
    This is great news! And I bet it's higher than 6% in the US where we have GMO wheat.
  25. Skylark
    I'm so glad to hear SCD might be working! I just really enjoyed reading the GAPS book. I found it a lot more interesting than I expected I wanted to be sure I understood the rationale for the diet. Plus it has recipes. If you have found enough SCD/GAPS lists and recipes online, that's fabulous! You might find Joy's blog helpful. Open Original Shared...
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