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Skylark

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Skylark

  1. Skylark
    Have you had a thorough thyroid workup? Weight + brain fog = thyroid trouble!
  2. Skylark
    Passing phase 1 clinical trials is hardly fantasy. I guess you've been hiding in that trash can and not reading the news.
  3. Skylark
    People can be missed with DGP. It's good but far from perfect.
  4. Skylark
    Hypnosis? Boy I sure hope the diet helps you!
  5. Skylark
    Does being immune to polio and tetanus make you a mutant? It's a vaccine in the works, to teach your immune system to stop freaking out when it sees gluten. I'd take it in a heartbeat to be able to start making crusty sourdough bread again!
  6. Skylark
    Wow, that's a TON of reading to do. It sometimes seems like we have to turn ourselves into doctors, which is a little frustrating. I hope you make great progress with your mom!
  7. Skylark
    Yes, low IgG would create the same accuracy issues. If you have half the total antibodies, a test will have half the total signal in the ELISA. Cutting the signal in half could make a low positive into a negative pretty easily.
  8. Skylark
    As long as you didn't get glutened it's all good. It's frustrating when you run across people who don't "get it" but at least this chef is interested in gluten-free and humble enough to ask you. I see that as a good thing! I hope you took the opportunity to educate him and make some recipe suggestions.
  9. Skylark
    You are more likely gluten intolerant, though as Nora says a negative genetic test does not rule out celiac. Dr. Fasano at University of Maryland says gluten-intolerant people can actually have stronger reactions to gluten than celiacs.
  10. Skylark
    LOL! I've been eating gluten-free bread so long I've forgotten what normal was like. I think it was a few weeks until I had more energy. I usually eat a little rice with dinner once or twice a week as I find a little carbohydrate seems to be helpful. Getting off dairy helped me too because I seem to be somewhat sensitive to it. I also take some red...
  11. Skylark
    CDC has some really good stuff on the Internet these days. I'm glad you won't need to go onto antibiotics with your Lupus!
  12. Skylark
    I found my celiac by elimination diet. (I say celiac because I realize now I probably had dermatitis herpetiformis.) I went about a month off gluten before I challenged it. Wheat gave me a quick stomach-ache and then diarrhea so I knew pretty easily it was an issue. Rye was harder because I have a more classic slow celiac buildup. I thought it was OK...
  13. Skylark
    My parents went to separate rooms because they like about 10-degrees different temperatures at night and dad coughs a lot from allergies. They are both much happier. It's hard to have a happy and affectionate marriage when you're walking around sleep-deprived.
  14. Skylark
    Rice and starchy gluten-free breads are hard on me in that respect. Even if I eat white rice without enough fat and protein I bottom out so badly I fall asleep a couple hours after the meal. I find that a mostly meat/veggies diet where I'm getting a lot of my energy from fat rather than carbs really helps my blood sugar stay steady. I sort of eat SCD...
  15. Skylark
    Wait a second. If he has a firm celiac diagnosis he must be off not only wheat but all forms of gluten for life. He will not gain weight eating wheat. Exactly what tests does your dietician want to do? Does your pediatrician know about this? How overwhelmingly necessary are they that she has instructed you to poison your child???
  16. Skylark
    IH, that is the most incredible story. I had no idea gluten could give symptoms like that!
  17. Skylark
    That was happening to me until I cut out dairy. No more unexpected cramps!
  18. Skylark
    Trace gluten aside, you can't go wrong with whole natural foods for healing. A lot of us feel our best eating mostly meat/fish/poultry and veggies. Gluten-free breads can be really starchy and have a lot of xanthan gum that doesn't agree with everyone's stomach. Rice and potatoes can be a little easier to digest. Remember that a lot of celiacs don't...
  19. Skylark
    I'm glad you understood! Good luck finding broth you do tolerate. I'll throw out another brand that is good and gluten-free, Pacific Natural Foods fre range organic chicken broth. There is no yeast extract in it, only various chicken concentrates. It's a broth, not a bouillon. Their beef broth does have the autolyzed yeast extract for MSG, unfortunately...
  20. Skylark
    I just want to underscore what Karen said. Six weeks is nowhere near long enough to expect improvement. Refractory is usually only considered if celiac antibodies aren't falling after a year or so. People with celiac often have vitamin deficiencies that keep us from feeling better. It will be even more troublesome for you with the alcohol and drug history...
  21. Skylark
    Yes, looks like that to me too. We've had a few people whose GI doctors told them that food allergies, particularly milk, could cause villous blunting. I haven't found it in the literature but more than one person has posted that. Sometimes practicing doctors see things that don't make it to the literature.
  22. Skylark
    That's pretty common among GI doctors. The biopsy has been the "gold standard" for so long that they are continuing to do them. You know she needs to be off gluten, which is the important thing.
  23. Skylark
    So you're severely and dangerously allergic to gluten? That's a little different from celiac. Most people with celiac do not have life-threatening reactions. I'm in a phase now where I cannot even reliably tell if I got a little bit of CC'd food. I agree with your reluctance to try grain-based foods then. I'd suggest sticking to unprocessed foods. It...
  24. Skylark
    I was getting menstrual migraines until I started getting them all the time.
  25. Skylark
    It sounds like you're just barely gluten-free. You will still have some reactions while your gut is healing because the gluten isn't even out of your system. It took a couple weeks for my constant diarrhea to stop and I was still having GI problems off and on for a couple months. This isn't like flipping a switch. There is a lot of inflammation to settle...
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