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Metoo

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Everything posted by Metoo

  1. Metoo
    I tested positive for an IgE allergy to gluten. I tested negative for Celiac, though my mom carries the genes. I do NOT have severe symptoms, just brain fog, mild headaches and abdominal pain (this is the worst symptom for me)...its very come and go though, I can go months without and then have a bad week, then back to normal. I just started a gluten...
  2. Metoo
    I agree, you should get your vitamin levels checked. I live in Michigan also, I found in April I had low vitamin D (17) and by July I had it corrected to 55...but she said because we are in Michigan the sun starts to die down in September, so July is one of the peak months for Vitamin D levels, so inorder to maintain my level I was going to have to continue...
  3. Metoo

    ARCHIVED Dh Vs. Ezcema?

    Metoo posted a topic in Dermatitis Herpetiformis

    Is there a vast difference between DH and ezcema? Can you have DH in a very specific spot? I have an area that is about 1 inch in diameter on my palm, that I have been dealing with since July. My dermatologist, said its ezcema and scoffed at the idea of it being related to food allergies, and said it was instead stress related. I rather do not like...
  4. Metoo
    So even if the oatmeal is certified gluten free it maynot be okay?
  5. Metoo
    Because I have young children, I need to know whether its an allergy or celiac to determine how they are treated and tested.
  6. Metoo
    I am on day 4 of a gluten free diet. I have pretty much been eating the same things, eggs, bananas, apples, chicken, oatmeal (gluten-free)....well Wednesday I had a strawberry milkshake from McDonalds...because I was hungry after work. No whip cream or syrup or cherry on top. Yesterday I got the same thing again after work because I was so hungry again...
  7. Metoo
    When I went in...the doctor said "I am GLAD you mentioned your abdominal pain, because if you hadn't I couldn't have tested you"...regardless of whether you have family members or not, apparently for the insurance to pay for it, she HAD to have one symptoms that fits for her to test for it.
  8. Metoo
    I think you should go see an endroconologist, a specialist. If you are having symptoms and your thyroid tested high, sounds like your thyroid is high enough to be treated given you are having symptoms. In many articles they recommend people with thyroid disorders avoid gluten that they have found that it is helpful, whether or not they have celiac.
  9. Metoo
    I got my results back! They look pretty negative to me! I am kind of bummed she didn't retest me for the allergy, so I made an appointment next week with my allergist for food allergy testing. i am hoping that a skin test to wheat would possibly be acurate for gluten, that if I have a high IgE to gluten, I should react to a skin test to wheat. Since he...
  10. Metoo
    I was tested for IgE to gluten only, through blood testing. I think I am going to considering going to an allergist and getting tested for more than just gluten, maybe a gammit of food allergies now. I would just like a more definitive answer on what I should and shouldn't be doing. My understanding also is that for allergy/IgE testing I don't actually...
  11. Metoo
    My first blood test was for a gluten allergy, IgE. It was positive. My second blood test was for Celiac, which was negative. I haven't, nor really want a biopsy, I have a clotting disorder, so I am nervous about it. I do know my mom carries the Celiac gene or one of them, but was negative for Celiac also. I do not believe she has ever been tested...
  12. Metoo
    I just verbally got my results, and I do NOT have celiac. I plan to post my results here in a couple of days make sure they were interpreted right. But that means that I do infact have a gluten allergy then from my previous test. Does anyone else here have a gluten allergy? I am guessing this means I need to avoid gluten, but perhaps that I...
  13. Metoo
    I tested positive for an allergy to gluten at this point through an IgE test, my doctor said that you can test positive for IgE with celiac also, so we are doing a celiac panel to see which it is. If I test negative for celiac, then I will have tested positive for a gluten allergy. But that isn't intolerance, its a true allergy test. I think intolerance...
  14. Metoo
    I have not gotten my results for my celiac panel back yet. But I did test positive for IgE to gluten, antibody reaction to gluten, so my doctor said that if I dont test positive for celiac, I am one of the rare people with a gluten allergy....so just because you didn't test positive for Celiac, doesn't mean that you might not have an allergy to gluten...
  15. Metoo
    You should get your vitamin levels checked. When I felt like that my vitamin D level was 17 should be 55-100. I could literally get up after sleeping all night and within an hour be crawling back into bed, and all day long would have to fight to stay awake. It was horrible.
  16. Metoo
    I had 8 teeth pulled when I was 15, because my body was just not giving up my baby teeth, so they figured pulling them would cause the adult teeth to come up...and luckily it did! But anyways, I do not remember it being a big deal, I think for a day or two at the most I had some discomfort, and things inside my mouth felt odd. But I really don't remember...
  17. Metoo
    I have seen medical studies linking nausea and low Vitamin D, I know someone after nausea for months, they found her level was only 0.17 the lowest they could read in the range! I was found to be severly deficient in April, and it took me a solid 2 weeks of 70,000 units a week before I started to feel serious relief from my symptoms (extreme fatigue)....
  18. Metoo
    My church now gives out a 0.0001 percent gluten host, for people who need to be gluten free, its only given at one mass and only in one line, but they are doing so because so many people in the parish have been diagnosed with celiac/gluten allergy. I would ask, they may have several people asking and may need to do something if they haven't already.
  19. Metoo
    I was just recently diagnosed with, at the minimum, a gluten allergy, I am still waiting for my celiac panel. I was instructed by my doctor to immediately go on a gluten free diet. But I am fairly symptom-less besides a small spot of ezcema on my hand, and intermittent stomach pain that sometimes doesn't show up for months again after a bought of it...
  20. Metoo
    I am slightly confused. But I have a call into my family doctor to redo testing for gluten allergy possibly celiac. I tested positive for IgE, they wanted a 0.04 level, and mine was 0.08, but listed me as Class 0, which Class 0 and 0.08 according to most RAST listings online are both negative, but the paperwork I got clearly listed me as being abnormally...
  21. Metoo
    I got my celiac panel results. I was very negative on all the IGG and IGA testing... total, IGA, IGG, endomysial-IGG....etc. I was <1.1 or <1.2. What levels are indicative of a deficiency? If you were deficient would your total still be high if you had celiac?
  22. Metoo
    Sorry I don't have all the information as I got them over the phone...might not be all clear IGA less than 1.2 IGG less than 1.1 Then there were other IGA and IGG tests, all the levels were low on the range. Positive for HLA-DQA variance, as well as HLA-dq8(a1*03/dqb1*0302). C-protein, High Serology Rheumatoid High Sedimentary Rate High...
  23. Metoo
    I have read it has to do with the inflammation in your body from the autoimmune, and that the body just starts fighting all kinds of stuff because it is over inflammed. My relatives that went on an allergy exclusion diet, (because of having to go gluten-free) said the doctor said too that once your inflammation is down and controlled, then you can slowly...
  24. Metoo
    I am new to eating gluten free this is only the beginning of week 2...and I am really struggling with what to eat, since I always do not always have time to cook. At this point I feel like I am eating too many fruits, ice cream and crackers. For lunch and dinner I always try to have some meat..but my breakfast and snacks constitute fruit/crackers/ some...
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