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Latest Celiac Disease News & Research:
Everything posted by notme
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o, snap, i didn't think of that. that option allowed me to pull it from a photo file on my computer. if i sign in, i'm still me, so i can't check!
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me too, either - they are like a laxative to my body. terrible. if you aren't already, try some probiotics. really helped me and i seem to be holding stready with my weight. i would like to add another 10 lbs, so, working on that. great to hear you had such a powerful advocate to fix your meal issues!! people don't understand how important it is for...
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the box you post in has a box beside the post button 'more reply options' that will give you the option to add an attachment. i have done it but sometimes it comes out really small and i don't know why that is. but it should work what? you didn't eat them all yet? lolz
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it's on the 'coping with' section - i would post a link but i'm on my husband's notebook and i keep messing it up (lolz - this thing is lucky it hasn't hit the wall yet hahaha) definitely worth the read, and probably many things doctors can't tell you because they don't know mine just told me 'congratulations. you have celiac. eat a gluten-free diet...
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ARCHIVED Mc D's gluten-free Burgers & Wendy's Frosty Cone
notme replied to Auntie-Manda's topic in Gluten-Free Restaurants
if you have an ice cream maker, you can make your own frosty shakes - just google the recipe. there are several - the one i make is with heavy (whipped) cream, but there are some with cool whip instead, so it would be even easier. it's already stupid-easy, i think the ingredients are: chocolate syrup, condensed milk, milk, vanilla, and heavy cream or cool... -
ARCHIVED gluten-free Donut Recipe?
notme replied to newcoeliac13's topic in Gluten-Free Recipes & Cooking Tips
coolio - would love to hear how they come out mmmmmmmmmmmmmm........... donutsssssssss.......................... -
ARCHIVED Tests After Avoiding Most Gluten..?
notme replied to wystearya's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
this is what drives me crazy - and it happened to me, too - my gp says 'maybe you have celiac disease. try a gluten-free diet and see if you feel better' well, of course i DID feel better and since i started putting weight on almost immediately (i was so malnourished i was starving to death, literally) my gi didn't want to risk putting me back on gluten... -
ARCHIVED Valid Test Results
notme replied to try2bgfree's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
stupid question but did they test your liver? i had jaundice once and they were all about testing me for hepatitis (negative, which left everybody scratching their heads), liver function and enzymes. did your urine turn darker? they wouldn't let me out of the hospital until my bilirubins <whatever those are) were back to normal. (this was long before... -
ARCHIVED In Pain, Questions About Being Glutened.
notme replied to wystearya's topic in Coping with Celiac Disease
very good - you know that if she wants to test you for antibodies you will have to be on gluten for them to show up on the test. my doc also tested me for crohns, thyroid, intestinal blockage, cancer, etc, to rule out other problems that needed other treatments. i had telltale vitamin deficiencies (and dh, but they never could catch it to test it ... -
ugh - sorry to hear about the whole doctor thing, then. i wish testing was easier/more definitive... i am constantly worried that people are not ruling out other conditions which have similar symptoms. i am also 3 years gluten-free and my quality of life has gone up tremendously! so, it's worth it to be uber careful have you read the newbie 101 thread...
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ARCHIVED In Pain, Questions About Being Glutened.
notme replied to wystearya's topic in Coping with Celiac Disease
when you are trying to figure out what is making you sick, keep a food journal and write down everything (i mean EVERYTHING) that passes your lips. then it is a process of elimination. have you not been to the doctor? you may want to rule out other things that could be making you ill... -
ARCHIVED Homemade Bagel Recipe?
notme replied to WinterSong's topic in Gluten-Free Recipes & Cooking Tips
oh, me! me! and they were delicious!! (and they froze well, too, i pre-cut them before i froze them) i really have had very good (and tasty!) luck with every recipe i have tried on their site. the easter bread (paska) is fablulous and i was wanting to try the dough/batter for fried donuts. but i haven't had time to fool with it yet the paska is dead... -
ARCHIVED Is Coeliac Triggered By Something?
notme replied to KCG91's topic in Coping with Celiac Disease
for me it was pregnancy/childbirth - very noticable changes in my digestion - my ob/gyn 'diagnosed' me with colitis (or ibs, as i was told for 25 years - what? that is a symptom.........) i remember the ob/gyn telling me that it was 'normal' and 'very common after pregnancy' - ummmm. no. it's not. but it is maybe for women who are genetically pre-disposed... -
would it make a difference if you were celiac? meaning, would you be better at being strictly gluten free if you knew it was doing *permanent* damage? how long have you been eating gluten free and have you actually gotten all of the gluten out of your system and felt dramatically better? if you keep glutening yourself, you won't know what the 'reward...
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The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
no, lolz, i haven't heard him since - the house was built in 1896, so, some of the noises i blame on the ghosties. i have made friends with them as i am here by myself alot! i volunteered to be a tour guide on the ghost (home) tour, so i am going to find out what sort of ghosts my neighbors all have hahaha me toooooo!!!!! adds - i feel... -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
burgers, pickles and pot cheese - oh, my! i made extra burgers for tomorrow night pickanick at the park (cook-out) - that's all i'll have time to eat between chatting, anyway my piano is playing by itself......... which the ghosties have been knocking around upstairs, just started back lately, but they mostly leave the piano alone - i may have... -
looks like there is a ton of other stuff to do. save it for last and 'run out' of time? that is real wheat in there, not just the hay or whatever - it's a wierd concept..........
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ARCHIVED Weirdly (And Dangerously) I Keep Forgetting....
notme replied to Nikki2777's topic in Coping with Celiac Disease
lolz - nicole, too funny! i'm glad it's only 'me' i have to worry about...... and even then! i did that last thanksgiving, putting away leftovers and licking the (gluten-free but glutened with wheat crackers for the wheateaters) ladle for the crab dip. just as i was in mid-lick, my daughter is yelling MOM! NO! i'm like o sh!t.......... well, at... -
ARCHIVED What 20 Ppm Means In Our Lives
notme replied to kareng's topic in Gluten-Free Foods, Products, Shopping & Medications
lolz - getting glutened is for rich people! good thing i'm poor -
ARCHIVED What 20 Ppm Means In Our Lives
notme replied to kareng's topic in Gluten-Free Foods, Products, Shopping & Medications
that would take all day and half of tomorrow. who has time for that? -
ARCHIVED What 20 Ppm Means In Our Lives
notme replied to kareng's topic in Gluten-Free Foods, Products, Shopping & Medications
you had me at "per million" MILLION! right, barty, that is a heck of alot of bread - and i do eat many sandwiches - but not 9 per day.......... thanx, karen -
ARCHIVED Opinions Please!
notme replied to Curious9's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
your story is eerily similar to my own - lolz - pityriasis <you are the only other person besides me who i ever heard had that. i thought the doctor made up the malady because it was on my arm PITS. i was diagnosed as a last resort before landing in the hospital for malnutrition.... get tested good luck! -
ARCHIVED Newly Diagnosed, Not Optimistic About New Lifestyle
notme replied to tonalynn's topic in Coping with Celiac Disease
yes, i'm watching tennessee lose and having a bard's my son just delivered a case to the back porch. he's ok, sometimes (i can only get it in knoxville, so he picks me some up from time to time on his way home from work - sure beats redbridge lolz) -
The What's For Dinner Tonight Chat
notme replied to jess-gf's topic in Gluten-Free Recipes & Cooking Tips
who needs dinner - you has CAKE !!! i've got a craving for chicken & 'dumplins' - i'm gonna make noodle type dumplings from tink lasagne. experiment #584 - still didn't starve to death or poison us -
ARCHIVED Is This Gluten Free? Can't Find Any Info!
notme replied to pretty in paleo's topic in Gluten-Free Foods, Products, Shopping & Medications
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