bonnie blue

Good morning friends,

Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!

Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!

It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.

There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!

So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!

Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun

Have a wonderful day everyone, thanks again for all the support and hugs, take care

Wonderful news!!! So happy for you there was no cancer, sending out healing thoughts to you as you get off your meds, and when you are feeling better you should defenitely celebrate!!! Have a wonderful day!!!

I would also agree that you have solved your mystery, but you also need to find a good doctor who is knowledgeable in Celiac disease. Finding the right doctor is so important, it took me over a year to find a good gastro, but they are out there. Be an advocate for your health, this is your life and your body, only you know when something is wrong. I wish you much luck, and sending out big hugs and healing thoughts!!

I love this!!! I want this bumper sticker!!!

Hello to all my friends,

Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and spiritually so that my healing process will be easier. I just want everyone to know that I am doing well the doctors are very pleased with my progress, they actually thought by this point I would need a feeding tube, but I fooled them all and I am actually gaining weight!!! So I have this break now to enjoy Christmas with my family, so for now the words, Cancer, surgery, and chemotherapy are banned in my house. I just want to enjoy this next week and only have some fun!!! Have a wonderful day my friends and thank you again for all your support.

I cant say anything about the gall bladder, I just wanted to wish you a good recovery, give yourself time to heal, and I hope this helps you out. Sending out healing thoughts and big hugs.

This is a wonderful community of people, I consider them my second family.

I had thought that. Is it a sign I am still getting gluten? Or an effect of damage? I feel great aside from that!

Again just a suggestion, my sister-in-law has this and she is basically maintaining a good lifestyle with the dietary changes. And if your not having your regular gluten side effects I wouldnt think that you are getting gluten in your diet. Talk to your doctor about this, and your dietician they should be able to help you out. Good luck and again let me know how it turns out.

Hello and welcome, after reading this, your symptoms, the indigestion, fullness, and burping, talk to your doctor about gastroparesis (sp sorry) or slow stomach. They do have a very simple test for this, and basically you eat smaller meals 6 times a day, and they put you on a PPI for the indigestion. Again please just an observation, but be an advocate for your health. I hope all goes well for you, let us know how it all comes out.

I love the ideas about the hats!! My daughter actually got me a hat that looks like a cat, my grandson loves it, he really doesnt know what to do about bald gamma, he's not scared just the first time he saw me he said "Gamma where is your hair?" Too cute. I live in Nebraska so ya its pretty chilly, but I like just going bald around the house, it's more comfortable.

And about my treatment 2 more chemo treatments this month, surgery in late January or early February depending on how I do with the next two treatments, then after I am healed and eating good again, 3 more rounds of chemo, so I am in this for the long haul. It will be a long road, but in the end I will be healthy again and that is all I am concentrating on, my nephew is to be married in late April and I fully intend to dance at his wedding!!! Thanks again for the support.

This looks so good, and a really an easy recipe I cant wait to try this, I am thinking this would be great for Christmas morning, yummy. Thanks for sharing!

Good morning my dear friends. It has been awhile since I updated but my first round of cocktails (chemo) was pretty rough. But I made it through, and getting ready for my 2nd round on the 7th. Just a couple of days ago I lost my hair, it was very strange just started coming out by the handfuls, I did cry a little but then I figured look you can get all depressed our look on the bright side, when I get up in the morning it only takes me 5 seconds to fix my "hair" I just put on a hat!!! And I also don't have to shave my legs anymore, Woo Hoo!!! So I am doing well I am meditating and doing Yoga everyday, and I am actually eating really well. I will continue the good fight and please know how much I appreciate all your support, sending out big hugs to all, have a wonderful weekend!!

I laughed so hard I almost fell off my chair, isnt this how we all felt when first diagnosed!!! Thanks for the laugh, have a wonderful day!!!

Good morning friends,

Well yesterday was my first day of chemo, actually my daughter and I don't like the name so we have decided to call it the cocktail hour, sounds much better right. Anyways it is a very aggressive treatment, and of course with the Celiac disease that makes it that more fun. I have three chemo drugs, along with steroids, anti-nausea meds, magnesium, and I cant remember the name but also a drug to keep my white count up. The good news is that I have a port so it is only one poke at the beginning of the day, and you know what I can't even feel it, so that is good. Their main concern now is keeping my weight stabilized, my goal is to make it through the two months of chemo without having to have a feeding tube, so I am eating every two hours, just small amounts, my husband and girls have been great about reminding me, actually they made two signs for me in the house that say "Don't forget to eat!"

So I am still in very good spirits, the doctors, nurses, everyone who is treating is very optimistic about a good outcome, I know this will be a very difficult time, the worst time will be the stomach surgery, but right now just taking this one day at a time. Thank you all so much for the support it means so much to me, sending out hugs and good thoughts to all.

I agree most folks in the medical community are pretty clueless. It took me almost a year to find a good gastro. He actually told me that I know more about Celiac then medical students, scary huh. We have to be advocates for our own health, and keep looking for doctors who will take proper care of us. Take care.

Sending you out a big hug!!! Yes this can be very overwhelming, and everyone here has already given you wonderful advice. I will add I also liked reading Celiac Disease for Dummies. This is a wonderful forum, it is my second home, it is nice to be able to go somewhere where everyone else understands what you are going through. Good luck and sending good thoughts your way.

Just an update, home finally. The cancer is in the early stages and has not spread to any other parts of my body. I will have two months of chemo, then surgery to remove my stomach, they will make me a new stomach from my small intestine, then after I have healed from the surgery two more months of chemo. The doctors are very optimistic about a full recovery. I did find out from the doctor today that they will not do any radiation, because of the Celiac disease, they told me it would be too hard on my body, because radiation causes the Big D, wow you learn something new everyday. I go into my surgeon on Friday so they can put in a port in my chest for the chemo, and then the chemo will start next Tuesday. I am in a very positive mind set at this point, and I will beat this cancer!

Thank you all so much for your support, this forum is like my second home, thank you again and I will keep in touch.

Hello to my friends,

Last year in September after being ill for sometime I was diagnosed with Celiac. We took everything very seriously and began our gluten free life. All was well until December when I started losing weight again and feeling really bad. To make a long story short I saw different gastros, I was told it was all in my head, that I must be cheating and eating gluten, and my personal favorite, that I had worms. Finally after months and months I found a gastro who took me seriously. He did start me on Entocort to control the big D and I did feel a little better, however the weight loss continued, fatigue, and then it became hard to eat, and I began to have trouble swallowing. He decided it was time for another endoscopy, well the results came back yesterday, and I was diagnosed with Adenocarcinoma of my stomach. It is not my intention to scare anyone but to let anyone who has any doubts that Celiac disease is not serious that it is, it defenitely is.

In just 3 short hours we are off to the medical center to meet the with doctors so that they can stage my cancer, and come up with a plan to beat this. I guess I just wanted to share this with my friends who really understand what it is like to have Celiac, and the obstacles that we face everyday. I will keep you all in touch, take care of yourselves, and God bless.

Oh hell ya I saw that, and had a complete freak out, and turned the channel, and I will never watch the show again. You know it is hard enough to get some people to believe in our gluten free lifestyle and this is our only way to stay healthy. Wow still cant believe they likened us to an eating disorder, these are clueless insensitive people. Ok rant is over

Good luck until Friday!!! I must admit I felt a little twinge of jealousy when I read about the frosted mini wheats, ohhh one of my favorite cereals. I have been gluten free now for a year, feeling so much better, and you know it does get easier. Enjoy your goodies!!!

Ravenwood, I just got on and saw your post about your beloved friend Pooh, I am sending you out a big hug, and I will be thinking about you. I agree with the other posts that said you are always there for others here sending out wonderful advice and words of encouragement, I know I am very thankful for all you give to myself and others. My sympathies go out to you, I also have two little dogs who have always been there for me, on my good days they dance and play with me and on my bad days they snuggle and care for me. Thinking about you and sending out good thoughts, take care my friend.

I was told by my surgeon, he was really upfront that he didnt know much about it, and to find a good GI doctor, (still looking for that) they also sent me to a dietician who also gave me outdated info. I have learned more and given better advice from all the wonderful people here then anywhere else. Does anyone else kinda feel like most doctors dont know what to do with us.

I also had noticeable weight loss, 93 lbs in a year. I think it comes from just eating better, we were a family of fast food, and now that we eat at home, not only are we healthier, it saves on the money too!

It makes perfect sense to me. When first diagnosed we tried to be a household with gluten products still in the home. But I still had my own toaster, butter, pans, etc....Everytime someone would eat bread, crackers, etc....I kind of freaked out. My doctor did prescribe some anti-anxiety meds, which did help but left me feeling out of it. So after the doctor said go completely gluten free in the house, it made a world of difference. I think because what can hurt us is so readily available everywhere it makes it really scary for us. Something that really helped me was meditation and yoga. I am so glad you are feeling better, I know that sometimes it can be scary after feeling so bad for so long, just stay positive, keep thinking about how great you feel and that you will not let this define you.

Take care and stay positive

Sending you good thoughts, I hope all goes well for you, and I hope you enjoy your vacation.