Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Good News- No Cancer


AVR1962

Recommended Posts

AVR1962 Collaborator

Had a biopsy on my thyroid last week, growth (nodule) was flagged as suspicious because of size. Got the results back and there was no cancer found!!!!

On the flip side, doc gave me the okay to off the thyroid med. It was being used to shrink the growth and is only productive in 3% of cases but not successful on mine. No fun and I could not undertsand for sure until I asked but going off this med causes headaches, nausea, fatigue. I felt lke I was back to square-one all over again. However, nurse said this should pass within a month of being off med.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ellie84 Apprentice

Whew, that's indeed good news! Hopefully the rest of the problems will disappear soon as well.

ravenwoodglass Mentor

You must be incredibly relieved. So happy for this result. Are they having you taper off the med? Some meds will have less of a withdrawl when tapered but I don't know if that is the case with the one you are taking.

alex11602 Collaborator

That is great news. Hopefully you won't feel too bad from stopping the med.

IrishHeart Veteran

Great news! Glad you are okay!!

(and I have to say I went through this myself with a thyroid nodule in 2008--which has now somehow disappeared!?? and I take no meds and my thyroid functions perfectly normally) I am guessing yours will too!?

Good for you--celebrate today!!

Tapering off the med (take one every other day for a week or so?) may be the better bet.

Ask the doc??

BabsV Enthusiast

Great news to hear...and one less medicine to take, yay!

Bubba's Mom Enthusiast

Great news! Waiting for the results of a biopsy is nerve wracking.

Good news that you can stop taking the med, but it's a shame it causes so much trouble as it leaves your system.

Wishing you a speedy rebound! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Really good news, AVR. Now you can relax (once you withdraw from your thyroid med :D )

Debbie48 Rookie

I'm so very happy for you! As someone has stated here . . . you should celebrate!

I also believe you should taper off the meds. I would talk to your doctor about that but it just seems to make sense.

Best of luck to you as you try to do that.

AVR1962 Collaborator

You must be incredibly relieved. So happy for this result. Are they having you taper off the med? Some meds will have less of a withdrawl when tapered but I don't know if that is the case with the one you are taking.

No tampering off. First few days I was fine but day 7 I felt it and I could not figure out what was going on. This was like in the beginning when I got so sick, only able to stand for short amounts of time before I felt like I was going to pass-out kind of like my iron is low (which it is not), very weak (muscles feel like they have half their strength), nausea, fatigue. Walking up the stairs or vaccuuming the floors is a chore. My kidneys started acting up on me which is not uncommon, don't know if there is a link to the meds or not. My knee, wrist and elbow joints are aching again so I am taking it easy righ now. I'll see if this passes....right now trying to hydrate myself, staying away from caffeine and alcohol. I have an appt to see doc the first part of next month and if these symptoms don't pass I'll see if they can run my bloodwork again, perhaps something is low.

bonnie blue Explorer

Wonderful news!!! So happy for you there was no cancer, sending out healing thoughts to you as you get off your meds, and when you are feeling better you should defenitely celebrate!!! Have a wonderful day!!! B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - PixieSticks replied to PixieSticks's topic in Super Sensitive People
      2

      Working in a kitchen with gluten?

    2. - BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis
      11

      Skinesa

    3. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill

    4. - Scott Adams replied to Brianne03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Advantages vs. Disadvantages of having an official Celiac diagnosis

    5. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Feeling ill


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,530
    • Most Online (within 30 mins)
      7,748

    AnnmarieR
    Newest Member
    AnnmarieR
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • PixieSticks
      Hi yes! I was diagnosed 10 years ago through a biopsy. I’ve been gluten free ever since but no one I’m around is gluten free. I sometimes wore a surgical mask in the kitchen. but I believe particles were still getting through. I’ll definitely look into n95 instead. thanks for the reply. 
    • BoiseNic
      Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It is gluten and dairy free also. 
    • knitty kitty
      @Whyz, I take a combination of Thiamin (Benfotiamin), B12 Cobalamine and Pyridoxine B6 for my pain and headaches.  Really works well without hurting the digestive tract.  Riboflavin B2 also helps with migraines.  Most newly diagnosed people have vitamin and mineral deficiencies.  Check with your doctor and nutritionist.   If you follow the updated gluten challenge guidelines, you can wait until two weeks (minimum) before your appointment, then eat lots of gluten, like six slices of gluten containing bread or "name your poison".   Here's the Updated Gluten Challenge Guidelines: Recommended intake of gluten should be increased to 10 grams of gluten per day for at least two weeks. Or longer. While three grams of gluten will begin the immune response, ten grams of gluten is needed to get antibody levels up to where they can be measured in antibody tests and changes can be seen in the small intestine.   Keep in mind that there are different amounts of gluten in different kinds of bread and gluten containing foods.  Pizza crust and breads that are thick and chewy contain more gluten than things like cake and cookies.   References: https://www.beyondceliac.org/celiac-disease/the-gluten-challenge/ And... Evaluating Responses to Gluten Challenge: A Randomized, Double-Blind, 2-Dose Gluten Challenge Trial https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7878429/?report=reader  "In our study, limited changes in Vh:celiac disease (villi height vs crypt depth - aka damage to the small intestine)  following 14-day challenge with 3 g of gluten were observed, in accordance with Sarna et al.  While the 3 g dose was sufficient to initiate an immune response, as detected by several biomarkers such as IL-2, the 10 g dose was required for enteropathy within the study time frame. Based on our data, we would suggest that gluten challenge should be conducted over longer durations and/or using doses of gluten of ≥ 3 g/day to ensure sufficient histological change can be induced." Keep us posted on your progress!
    • Scott Adams
      I don't believe that existing life insurance policies require such notifications--health checks are typically done before such policies are obtained. I believe it would primarily affect any new policy you get, and perhaps any policy renewal.
    • Scott Adams
      You could go gluten-free now, and then start eating lots of gluten for at least 2 weeks before your endoscopy--just be sure to tell your doctor about this beforehand. If your symptoms go away on a gluten-free diet, it is further evidence of celiac disease and/or non-celiac gluten sensitivity.  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.  
×
×
  • Create New...