Jump to content

WestCoastGirl

Advanced Members
 View Profile  See their activity

  • Posts

    70

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by WestCoastGirl

  1. WestCoastGirl
    WOW, I have had this for the past two days and have been wondering what the heck it is...I will be waiting to hear what people have to say. The oil, the explosive (sorry) D. I have been gluten-free and DF but am now thinking it might be corn that's the problem. Do you eat corn products?
  2. WestCoastGirl
    OMG, you guys are killin' me. What an awesome group. I am awaiting my first normal poop with great excitement. I shall be sure to give a full report.
  3. WestCoastGirl
    Coffnglr! Open Original Shared Link is for you!
  4. WestCoastGirl
    My stomach issues from NCGI, except for odd bowel movements (sorry) that I thought were "just my body," never showed up until this year, at the age of 46. None of my other symptoms were gastrointestinal. Looking back on my total collection of symptoms, I'm fairly certain I've been full-on NCGI since approximately the age of 11. I personally wouldn't want...
  5. WestCoastGirl
    I actually put myself into denial over my gluten issues for several years, until they became so huge that I could no longer ignore them. I can't live my life this way any more. Here's how I look at it. Yes, it's a lifelong condition. Yes, we have to eat differently (and be way more careful). BUT...with *some* issues, there isn't a comparatively easy fix...
  6. WestCoastGirl
    As someone else here said, this is the reason I'm not getting tested. As for my children, they will know that I am gluten intolerant and they don't need to know that I'm officially DXd to realize they need to watch for this as well. (And I am gradually reducing my household down to gluten-free in the meantime.)
  7. WestCoastGirl
    Thank you.
  8. WestCoastGirl
    Hey, all! I was just reading another thread where one poster said "corn is like getting glutened." I didn't want to hijack that post so I thought I'd ask here. Is this true for many people? Is a corn reaction like a gluten reaction? I have cut out gluten and dairy but I haven't cut out corn. Are a lot of gluten intolerant people also corn intolerant...
  9. WestCoastGirl
    I really don't think it's the rice. Have you considered lactose intolerance?
  10. WestCoastGirl
    I haven't been tested for celicac, but I know for a fact that I'm gluten intolerant. There's just no question. Gluten for me drives me right into the ground. I can't lift my head off the pillow. I bloat terribly (have looked "pregnant" from the age of 11 even when 95 pounds...only realizing the tie-in now; just thought I had a "big belly"), other parts of...
  11. WestCoastGirl
    Yeah, seriously, if anything ever screamed "autoimmune" it was that 1936! I was hoppin' for joy when I saw that new lower number. Well, as much as a Hashi's person can hop, anyway, LOL. Moosemalibu, good luck with your testing. I hope you get some answers very soon.
  12. WestCoastGirl
    Thank you. I am so happy to see this confirmation in actual numbers.
  13. WestCoastGirl
    The circles under the eyes, to me, points to a possible dairy issue too. I would consider a "weak positive" still a positive - I'm not a doctor, but with all those issues plus that positive, it seems like your best way to go is gluten-free. I hope your little boy feels better. Poor mite.
  14. WestCoastGirl
    When I bring my own food to gatherings, I always think of it as a kindness to the hosts, not as a slap in the face. I mean, asking them to buy a new dedicated pan and utensils and then buy separate gluten-free items, to be cut and prepared on a new dedicated cutting board with dishwasher-scoured (or new) cutting and stirring implements, plus - if it's a baked...
  15. WestCoastGirl
    Hey, I know there's a pretty significant tie-in between celiac and autoimmune issues, so I just wanted to post this for my fellow thyroid sufferers. Since going gluten-free, my thyroid antibodies are down from 1936 (you read that correctly...max for the range was 3, yes, the number 3)...to 280!!! I am SO happy and yes, I feel way more awake.
  16. WestCoastGirl
    Ha ha! Non-dangerous kisses FTW.
  17. WestCoastGirl
    To the "big family Christmas," I'm bringing my own two dishes. I did the same on Thanksgiving. For the "little family Christmas" (us, the in-laws and BIL and family), I am hosting it. I will be making gluten-free stuffing without telling anybody (have done this a bajillion times with my own family and they still have no clue), turkey, gravy which I'll...
  18. WestCoastGirl
    I usually don't get the diarrhea until at least a few hours after I've eaten gluten (or dairy). However, conversely, sometimes it will literally be within minutes. I don't think there's an official length of time between ingestion and reaction across the community or even, as in my case, with one specific individual all the time. I hope you feel better...
  19. WestCoastGirl
    If you're planning on continuing to eat gluten at least for the short-term, then there is no harm in you looking into testing. It's ultimately up to you. I'm pretty sure if I had been able to bear my symptoms any longer, I'd have held out and continued eating gluten for the long haul of convincing my doctor to see me about the sensitivity to begin with, then...
  20. WestCoastGirl
    Personally, and no, I have no hard data to support this, I am not 100% convinced that NCGI is purely symptomatic and is non-harmful v. celiac. I can't believe that, for instance, throwing up and/or diarrhea, skin lesions, excessive bloating, cramping of the intestines, cramping of the stomach itself, etc. won't take their toll on our systems over time. So...
  21. WestCoastGirl
    For me, too. I've actually had DH lesions last a couple of months on occasion. Typically, though, they last about a week.
  22. WestCoastGirl
    A rash to me usually says "allergy," or possibly hives, unless it's DH. Is it both intensely itchy and painful? I think you know you're having some reaction to gluten - you've just proved that to yourself. Whether or not it's specifically celiac, it seems gluten and you don't get along. So even without a DX, personally, I'd remove gluten from my diet...
  23. WestCoastGirl
    Oh, can withdrawal be physical like that? With stomach issues? It seems better today so far. Crossing my fingers that it was just a bug. But if not, I'll just have to power through this change.
  24. WestCoastGirl
    Yup. I haven't officially been DXd with DH, but I'm 99% positive that's what it is. I've had it since childhood. It's maddening - both itchy and painful. I often get it on my neck right up near the hairline in the back (that's where I always got it when I was a child and teen) but now I also get it on my face at times. Sometimes I get it on my back...
  25. WestCoastGirl
    ^ Ditto on the cross-contamination thought. That's why it can be tricky (or dangerous) to eat out, even if the establishment offers gluten-free products. Unless they have a dedicated gluten-free kitchen, cross-contamination is a huge possibility. Have you ever been in the kitchen of a restaurant? Pandemonium, orders coming in at the speed of light, chefs...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.