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plumbago

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by plumbago

  1. plumbago

    ARCHIVED New here

    plumbago replied to kim01's topic in Coping with Celiac Disease

    Perhaps consider making the house gluten-free for simplicity. I was thinking this myself while reading the post.
  2. plumbago
    Manasota, I am curious to know more about your diagnosis. Were you diagnosed via a bone scan? Did you scrutinize and research your results? Have you thought about a second opinion? As for the first questioner, I don't know the answer, and would need to do at least a couple of hours of research to understand more about osteoporosis caused by celiac...
  3. plumbago
    I recently bought this bread for the first time: Rudis gluten free double fiber sandwich bread. I am posting a comment because it stood out from the rest of the gluten-free breads I've purchased in the past. I know there are a few boutique bakeries around the country (let's face it, mainly on the left and right coasts) that bake excellent gluten-free bread...
  4. plumbago
    Thanks everyone. I did call, but as it turns out "gluten free" was written in the tiniest print on there, which I had completely overlooked. Gelatin is an ingredient, and that was why I was concerned. Plumbago
  5. plumbago
    The link you provided is for steroidal treatment for refractory celiac disease. I thought the context of our discussion was steroid use for asthma and its possible effect on a Celiac panel. For refractory celiac disease, the treatment would be oral (systemic). Steroids for asthma and refractory celiac disease are not delivered by the same route, which can...
  6. plumbago
    Good link. Interesting that it didn't specify type of steroid use. Plumbago
  7. plumbago
    That's a good point. Though the patient is supposed to be on the lowest dose possible of inhaled steroids and although steroid use for asthma is technically a local medication, it's possible for a systemic reaction to occur and definitely worth checking out. Also the association between asthma and celiac disease is supposedly strong, and something you've...
  8. plumbago
    Corrie, Why not just get them to run a CBC, metabolic and lipid panels if your insurance covers it? If doing testing for Celiac, I can see that the other three panels are justified. Usually my doc runs those as standard anyway with my physical, ok I'm older but still. If you get all four panels run (including the Celiac one) you should be covered for...
  9. plumbago
    Your doc and nurse should be curious about that leg pain. I've read about associations between asthma (usually severe) and growth issues in children, but I don't know enough to say why this could be, other than any time a major organ is involved there are often growth issues, and then the steroid use, but inhaled corticosteroids are usually not a factor...
  10. plumbago
    Hello, You didn't say what age your child was. I understand your fears that the docs will just want to do the small intestine biopsy. That is probably true. However, if he hasn't grown in two years, is it possible that - if he has celiac disease - he's had it for a while now? Again, because we don't know the age, I can't tell the normal growth rate of...
  11. plumbago
    Hi everyone, Does anyone have any information on D3 by Spring Valley 2000 IUs softgels? Are they gluten-free? Doesn't say gluten-free, but I need 2000 IUs, and that was it. Thanks. Plumbago
  12. plumbago
    Thanks. I try to avoid social media (I think!) so unless I get really desperate, I don't think I'll join. But I appreciate knowing that. What I've thought about doing is using evaporated milk (instead of sweetened condensed milk) and a tiny amount of sugar. I can add a likewise reduced amount of sugar to the heavy cream for the topping (whipped). I'm...
  13. plumbago
    Wow, if ever a reply was made to order, yours is it! I can wait. Thanks! EDIT: And best wishes with your recovery.
  14. plumbago
    Have you had a Dexa scan or anything to let you know you are osteopenic or indeed need to take all that supplemental calcium? Are you low on calcium (blood tests)? What about Vitamin D? EDIT: Oh, sorry. I see you say you have osteoporosis. Ok, I'm not sure what to say here. Sorry for missing that the first time.
  15. plumbago
    The best food in the world is without a doubt key lime pie. And yes, I am asking the impossible. I have made gluten-free KLP before. The crust is so so, not near as good as the wheat flour variety (yes, I remember). I'd like to make this wonder food so that I can share it with a friend who has diabetes. So suggestions for gluten-free diabetes...
  16. plumbago
    I was going to post what I found on Omissions web site about their mission being to brew a gluten-free beer and mission accomplished etc etc...but see that others have already done so. What I'm now going to say is different but probably even more likely to cause conflict. Please just read the whole thing first. An acquaintance was first dx 18 years...
  17. plumbago
    Thanks! I am investigating it now. I've made some progress. Plumbago
  18. plumbago
    Seems I can only go back one year. Are there specific directions to find my earliest posted new topics and conversations? Plumbago
  19. plumbago
    I'm right there with you! It's a bit of a waste of packaging. Plumbago
  20. plumbago
    Usually I buy Vann's or Van's at the Safeway, but last night they didn't have them, but they did have Eggo brand gluten-free waffles, so I bought them. Big difference. And not for the better. Generally, I really like Van's waffles. The Eggo which I had this morning, tasted like cake icing. I compared the sugars, and it's about a 1/4 teaspoon more...
  21. plumbago
    It doesn't sound like you want much more advice, so this will be my last - are you concerned about your iron levels? How's your hemoglobin? What does your doc say - at what point should you move to injections? that sort of thing. You can get iron injections as well as B12 injections. Has your doctor wanted to rule out ulcers as a source of blood loss? ...
  22. plumbago
    Hi, It would be helpful to know what your B12 level was, and what is the normal B12 range for the lab your blood was processed at. Same with the normal range for iron/ferritin. I used to give myself B12 shots. Easy to do. Also, you can do supplements for iron. I agree that animals have more heme available to us than veggies, but the veggies are so good...
  23. plumbago
    While a law protecting the health of 1% of the population from others is good, one protecting us from our own willful ignorance and laziness is kind of stupid. I wonder where the moderator is on that one. Actually I don't mind my ideas being called stupid that much. I'm pretty much all for free expression. What I do object to is having the conversation...
  24. plumbago
    Yellow rice and its GMO nonstop promises are hype, whereas the victories from fortification are provable and real.
  25. plumbago
    They are talking about folic acid. This is something I cited in an earlier post, by the way. I referred to a Harvard study. From the article: "Take a standard multivitamin every day, but stay away from heavily fortified foods that deliver a full day’s dose—or sometimes more—of folic acid" What I'm about to say may not be a scientific statement as it...
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