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Latest Celiac Disease News & Research:
Everything posted by FooGirlsMom
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You rec'd some great responses. I just wanted to add something else. Chemicals. If you eat aspartame, stop immediately. Some people (like myself) will get a migraine each and every time I ate it. Gluten gave me headaches too. I also have to be careful with sugars. High Fructose Corn Syrup is a huge offender. I am ok with real fruit but anything too...
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ARCHIVED Dealing With Joint Pain
FooGirlsMom replied to Jack V's topic in Coping with Celiac Disease
Hi, Working with your doctor to identify your vitamin deficiencies etc. is really important. Once you've done that and you are 100% gluten free for a while, if the pain does not subside, you might want to think about eliminating other possible offenders. For instance, I had terrible joint pain, esp. in my right hand. My knees bothered me too (sometimes... -
ARCHIVED Did You Have Weird Symptoms When You Went Gluten Free?
FooGirlsMom replied to CathyG's topic in Coping with Celiac Disease
Yes, gluten withdrawal is real. Many people who go on low carb diets, for example, experience the same thing. I didn't know what it was 15 years ago when I first experienced it because I didn't know it was gluten. Low carbers call it "carb withdrawal". My symptoms always are: headaches, weakness, periods of brain fog, fatigue, flu-like feelings,... -
ARCHIVED Celiac Symptoms Or Unrelated?
FooGirlsMom replied to jo-marnes's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I can only tell you what I experienced myself. The first flare-up of Celiac/Gluten Intolerance about 15 years ago caused me to have long cycles. I was like clockwork before also. Then my hormones were off due to progesterone problems. A gluten-free diet corrected these problems. I always had problems with mouth sores and did not know (until... -
ARCHIVED How Long After Going Gluten Free Should It Stop?
FooGirlsMom replied to HopefulMama23's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had the same problem, but mine lasted weeks. I found that eating white rice helped and watching my ratio of green veggies to meat/starch. Even then it just took a while. I've been on the diet just over 3 months now and have only been what I'd call "normal" for the last 3 weeks. It's also coincided with feeling a great deal better & having some of... -
ARCHIVED Did It Get Worse For You Before It Got Better?
FooGirlsMom replied to possiblyglutensensitive's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been gluten-free for 3 months now and the first month my cycle was really difficult. I was a bit late & my symptoms were like I was eating gluten again. Boy was I emotional and tired (emotional was not a normal part of my PMS, just fatigue, achiness, flu-like). Then month #2 I was on-time but I felt awful - again - emotional & tired. Here... -
ARCHIVED How Many People Are Actually Self-diagnosed?
FooGirlsMom replied to no-more-muffins's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yeah- hey! I was one of those "Atkins People" for over 11 years! I never could figure out why I would detox for 2 weeks solid, then feel great but everytime I tried to eat pkg'd low carb food (hidden gluten) I feel awful but if I ate fruit I was ok ???? Talk about confusion. There are a TON of low carbers out there that can't lose weight or feel right... -
ARCHIVED Gluten Free Specific Food
FooGirlsMom replied to GFreeMO's topic in Coping with Celiac Disease
Even though we have a limited budget I do buy some gluten-free staples. I have a 9 year-old daughter who is gluten-free with me so I have tried to not change her diet too drastically to ease the transition. So we invest in auto-ship/order items like Annie's gluten-free mac n cheese. That's my DD's comfort food. We buy Tinkyada's pasta and gluten free Rice... -
ARCHIVED Mythbusters Gluten Submission Campaign
FooGirlsMom replied to domesticactivist's topic in Parents, Friends and Loved Ones of Celiacs
Yeah I noticed that response or two you got was pretty grouchy. I have never heard anyone bicker with someone about a diagnosed medical condition - let alone completely miss the point of the post. All you wanted to know is how hot does the water have to get to destroy gluten and can it hang around with normal washing & still contaminate someone. ... -
It would seem to me that anything you are "officialy" diagnosed with is easily obtainable via medical records so keeping Celiac a secret (which is a chronic condition & auto-immune) would need to be disclosed. However, if you know you are gluten intolerant/celiac and it's not recorded anywhere, then I don't see how it could become an issue. It's...
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ARCHIVED Sudden "d", Advice Needed
FooGirlsMom replied to Free-CountryGirl's topic in Coping with Celiac Disease
Hi, My first thought is the Chex. I was having the exact same issues (warmning for the squeamish bc this is definitely TMI!) my bm's had a faint odor of petroleum! Say what??! Like if you stick your nose in a Vaseline jar! That is what happens when I eat Chex. Just thought I'd try to give you a place to start... Hope it clears up. FooGirlsMom... -
ARCHIVED Handling Brain Fog/fatigue
FooGirlsMom replied to India's topic in Coping with Celiac Disease
Sorry to hear you're feeling poorly I see you do the FODMAPS diet. Have you ever tried going strictly low carb? Like meat & green vegetables type of low carb? I'm about to go there myself. I think until my intestines heal I'm going to have to go back to an Atkins type of diet. I seem to be having brain fog & energy reduction due to all... -
ARCHIVED Omg, I Am In Bread Heaven!
FooGirlsMom replied to Monklady123's topic in Coping with Celiac Disease
So glad you found a bread you like! Enjoy!! FooGirlsMom -
ARCHIVED Experimenting With Gluten & Gut Recovery
FooGirlsMom replied to mr-da's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi, By the way - welcome - and congratulations. I hope this does the trick for you too. To start by answering your questions...answer to #1...no. If you are Celiac or Gluten Intolerant, it's super important to stay away from all things gluten - forever. I'll give you the example from my own personal history. I was super sick in my 20s. Really sick... -
ARCHIVED Seeking Advice/insight
FooGirlsMom replied to concernedmamma's topic in Parents, Friends and Loved Ones of Celiacs
Hi, If you looking for a diet to help with behavior, you might consider a Gluten-free Casein-free diet. Gluten Free Casein Free means no gluten and no dairy products. There are numerous places on the web that will explain the diet if you Google it. There are a number of people who have seen good results with stricter dietary changes than just Gluten... -
ARCHIVED Hope I Don't Offend Any Of You Southerners, But....
FooGirlsMom replied to Monklady123's topic in Coping with Celiac Disease
Yes - we eat Rice n Shine rice grits made by Arrowhead Mills. It's marketed as a hot cereal but is just brown rice grits & it's gluten-free. I've never reacted to it. I buy it on auto order from a big book store online & get free shipping & 15% off due to the auto order, bringing it down to about $3 a box which is the same price it goes on... -
ARCHIVED Oh, My Dog, These gluten-free Products Are Expensive!
FooGirlsMom replied to Wise's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi there, Yes, gluten-free foods do cost more, in some cases, than their gluteny counterparts. Very true. My husband got laid off from his good-paying corporate job end of June and I found out about the Gluten problem in early October. Now I have less time than I did before because I've been working part-time since June due to the unemployment issue... -
ARCHIVED Symptoms You Never Realized You Had
FooGirlsMom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
CompuCajun, I had the heart palpitations too. I still get them if I eat something I'm reacting to - like soy. It's scary when it happens. I thought I was dying prior to figuring out what was wrong with me. With all the auto-immune symptoms, then the palpitations, then the neuropathy...mercy...I was 42 and not expecting to see 43. Amazing what a... -
ARCHIVED Hope I Don't Offend Any Of You Southerners, But....
FooGirlsMom replied to Monklady123's topic in Coping with Celiac Disease
LOL you're too funny Since going gluten-free, I've found about a dozen ways to eat rice grits (we buy Rice n Shine). One of our favorites is to make them with raisins & then add a little honey & homemade applesauce (with sugar & cinnamon included). My husband is not gluten-free and he gobbles them up. We've also made them with brown sugar... -
Here's a list of the top 8 allergens for foods. Being gluten-free you are obviously good with the wheat. I didn't realize until I went Gluten-Free that I was reacting to other things on this list. Milk & Soy for example (I don't eat shellfish anyway). Corn is one I'd add to this and make it 9. I react to corn too. You can see that almonds are...
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ARCHIVED Whats Next After Cutting Out Gluten?
FooGirlsMom replied to Rachel W's topic in Coping with Celiac Disease
Ditto Skylark. I am off dairy but if I don't eat too much of it, I can eat gluten-free chocolate. I started with dairy and then realized while it cleared some symptoms it didn't clear all. I then discovered I was really reacting to soy. BADLY. I can't even eat soybean oil like in Best Foods Mayo. It makes me feel nauseous within minutes & then... -
ARCHIVED Lots Of Questions....please Help!
FooGirlsMom replied to Holly4's topic in Coping with Celiac Disease
Ditto what everyone else said. I've had a number of symptoms you mention also. The neuropathy was one of the last symptoms to develop about 3 months before going gluten free. Some of what you describe sounds like a mixture of auto-immune response (symptoms of fibromyalgia, MS, or Lupus) and vitamin deficiency. When the gluten affects your small intestine... -
ARCHIVED Symptoms You Never Realized You Had
FooGirlsMom replied to sandsurfgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The tendency to blame things on Celiac, I think, is fairly valid. When you are dealing with an auto-immune disorder, many of us have experienced it attacking nearly every part of our body it seems. I, too, am still amazed at the little things. I never even thought about the clumsiness until I read this post. Then I thought, hey, when I am feeling really... -
ARCHIVED Just So Down, Suggestions Or Advice?
FooGirlsMom replied to Free-CountryGirl's topic in Coping with Celiac Disease
I crave bad foods when I get ahold of things I don't tolerate well, like soy. I also do it when I'm hormonal. The only thing I can suggest is to have goodies around that you can eat...like chocolate or chocolate chips you don't react to. You can also bake things like banana choc chip bread (wrapped & frozen) and keep them in the freezer in safe zip... -
ARCHIVED I Need Help !
FooGirlsMom replied to jorge0464's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A couple of thoughts came to mind as I read your post. I saw the most severe onset of symptoms right after antibiotic rounds back in 1991/92. I got strep, took antibiotics and it didn't cure it. Had to take a broad specrum antibiotic and that did it. I was left feeling really really bad afterward. I found out later the reason for this is that antibiotics...