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domesticactivist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by domesticactivist

  1. domesticactivist
    What about your cooking utensils, baking sheets, etc? We found that we became more sensitive of slight amounts. I have a post on the blog linked from my profile called going 100% gluten free that might help you identify some potential sources of contamination.
  2. domesticactivist
    Yay! I'm so glad you got it sorted and had a wonderful and safe and delicious wedding day! Congratulations, I hope the two of you have a great honeymoon and even better life together.
  3. domesticactivist
    When we are staying with relatives we bring: - crock pot - large cast iron skillet - medium stainless steel pot - cutting board - knives, spatula & serving utensils - napkins - new sponges - dishrags - potholders For our son who is actually celiac, we also provide his own plate, bowl, and silverware. We also bring some foods we made ahead...
  4. domesticactivist
    You are so right to be concerned. You are doing a great job of being an advocate for your child. It is hard in the face of drs discounting your observations and the labs, but keep it up! As for the symptoms... I'd also want him to also be tested for Lyme disease. Those nose bleeds are serious. My son's allergist put the fear of God in us about them...
  5. domesticactivist
    We send our kids (11 and 12) to birthday parties, sleepovers, sleepaway camps, etc and always just send their own food. Rather than trying to replicate what the other people will be having, we try to send our kids' favorites. Here are some things that work especially well for sending: - Chili in a thermos - Brownies baked in mason jars and layered...
  6. domesticactivist
    How are you feeling? Are you dropping weight rapidly or where you don't have it to spare? You say you are eating too few calories but feel full... are you bloated? Your diet sounds very much like ours, and we consider it very healthy. (We use the GAPS diet). A risk of a high protein diet is that you will go into ketosis, which is hard on your kidneys....
  7. domesticactivist
    I didn't see the second page with more info... It sounds very different from what I've experienced.
  8. domesticactivist
    I'm glad to hear your dr did testing right away. You still have the issue, though, so I want to throw another possibility out there. If it comes and goes it could be related to hypoglycemia. I don't have celiac but went gluten-free for my son. The first month all my neuro stuff got much worse. We went on the GAPS diet, which really helped my blood sugar get...
  9. domesticactivist
    It sounds like you are on your way to some answers. I hope your little guy feels better soon!
  10. domesticactivist
    Welcome! It is really hard emotionally to realize that your kid has a health problem that will affect them for their whole life. Sometimes I feel sad about it, too, and it's been about a year since we figured it out. Mostly I feel sad that we didn't get it sorted sooner (my son is 11 and had problems all along). Luckily, this problem has an all-natural, simple...
  11. domesticactivist
    You've got great responses! Just chiming in to say, we make kefir (water kefir and dairy kefir) as well as kombucha, yogurt, and fermented veggies. You can order grains from Open Original Shared Link or you can get them from someone in your area who makes kefir. People are usually happy to help. We've found probiotic foods to play an important part in...
  12. domesticactivist
    Another thought... soup is really easy and cheap to make at home. Buy bones from the meat counter, they are cheap! Or, if you roast a chicken or other meat, use those bones. Then just cover them in water and simmer! You can have it going in a crock pot all the time, and you never have to worry about what's in it. It's healthier and tastier and really not...
  13. domesticactivist
    My son had the same kinds of issues, though not the burning hands. They continued to recur from time to time before our home was 100% gluten free and we started the GAPS diet, which is all whole foods, processed only at home. Definitely get whatever testing and screening for other conditions your and your dr's can think of, but I agree with weluvgators.....
  14. domesticactivist
    It makes perfect sense that you are having a hard time... you are trying your best to do what you need to do for your health, yet you still feel like crap! Anyone, especially when dealing with depression or other mood disorders is going to feel bad. We noticed that just being gluten-free was not enough for our family. GAPS made a big difference for us...
  15. domesticactivist
    I didn't think I was gluten-intolerant at all and only went gluten-free because of my son's extreme reactions to gluten. Now I realize that I do have symptoms from gluten. I would classify them as mild. When we first went gluten-free my reactions to being gluten-free were extreme. That was a clue to me that it was probably a problem. When I got glutened early...
  16. domesticactivist
    I highly suggest you read the GAPS book. I don't think a food diary or a simple elimination is going to completely figure out such chronic issues. He's so backed up that the cause and effect just isn't going to be easy to figure out. Also, even if it is just gluten that has caused the problem, it sounds like a lot of damage has been done. More than just eliminating...
  17. domesticactivist
    ps, when people say "cured" of celiac disease I am wary. This does not mean getting to eat gluten later! While my celiac son is cured of all his symptoms on the GAPS diet, he is not able to eat gluten!!! Many food intolerances are gone now... IgG reactions tend to be a symptom of a leaky gut. When the gut is "sealed" those reactions no longer happen. However...
  18. domesticactivist
    We do GAPS which is based in the Specific Carbohydrate Diet. It has a slower intro and a few differences, including more of a focus on probiotic foods. It has made a serious difference in my neurological issues, as well as all sorts of other things for me and the family.
  19. domesticactivist
    We tried elimination diets in the past with no success. However, we've had much better luck with GAPS (which is aimed specifically at solving the kinds of problems you mention and which I share). It starts out with a very basic diet of the most readily digested, nutrient-dense foods (bone broth with some veggies). Then you add in homemade probiotic foods...
  20. domesticactivist
    I second the recommendation to find a good health care practitioner who will help you figure out exactly which bacteria are causing you problems, and what course of action might be best. As for dietary treatment options... Have you considered trying GAPS? The whole idea behind it is to restore a good balance of gut flora, and many people use it to help...
  21. domesticactivist
    I agree a dr visit might be in order to rule out issues other than food allergies or intolerances. A wheat allergy really is different than gluten intolerance or celiac, so while you have the allergen thing down there's a new learning curve at play. It sounds like you are well on your way to having that figured out. I tried elimination diets for my...
  22. domesticactivist
    Oats are contaminated with gluten due to growing, processing, and transportation. Additionally, some people are cross reactive to oats (even certified gluten-free ones) It could be he seemed ok with them at first or it took a while for his reaction to build. He could also be showing increased sensitivity to gluten cross contamination. Do you still have gluten...
  23. domesticactivist
    Are there any farmers in your area? We get bones from them or from local butchers. Then you just add water and simmer the bones. Then you take the bones out and boil veggies in the stock to make soup.
  24. domesticactivist
    It sounds like you are eating a very low fat diet. Here are some ideas: Eat soups based in bone broth. They should be gelatenous when they are cold. You can skim off the fat for cooking or just eat the soup with the fat left in it. Eat avocados - they go great in chicken salad. Sautee veggies with generous portions of coconut oil or duck, or other rendered...
  25. domesticactivist
    Sorry - I was on my phone using shorthand! I meant cross-contamination.
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