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domesticactivist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by domesticactivist

  1. domesticactivist
    I hope it goes well for you now that you have a diagnosis! As for those other doctors, I hope someone can call them on your behalf and inform them of the cause they missed so they will be better informed of the possibilities in the future.
  2. domesticactivist
    Both my kids' ADD/ADHD/dyslexia has been greatly helped by GAPS. My mental health stuff is better, too. I've also used CBT and other techniques over the years. Medication is overrated.
  3. domesticactivist
    You might want to see an osteopath and look into possible nerve, muscular, or bone alignment issues.
  4. domesticactivist
    Get a copy of all the tests that were run and post them for interpretation by the smart people here. If they look positive it may be possible to take them to another gi and get the disgnosis. False negatives are more common in children, btw. Another possibility is that the damage being done is not autoimmune to the villi in the small intestine. There are...
  5. domesticactivist
    The citric acid wash is derived from corn and is a must for all USDA certified meat. We buy most of our meat farm direct so that it only has to meet our state standards which don't mandate citric acid.
  6. domesticactivist
    Is there any way to get the mucosal challenge here in the states?
  7. domesticactivist
    Poor kid! I hope it goes well and the healing is easy! Will she eat purreed soups? Our kids like carrot soup. Just start with chicken stock, boil the carrots and onions in it, add some pieces of chicken meat, and purree! You can add some seasoning (ginger is nice for balancing the sweet flavor), too. You can do the same thing with a flavorful squash, like...
  8. domesticactivist
    One thing that may help at work is to bring a thermos. We make a lot of soups and stews which are full of high fat meat and lots of well-cooked veggies (ala the GAPS diet). The thermoses we have stay hot for 7 hours, so they work very well. Good luck with your food diary! Sometimes they really can help sort out a problem.
  9. domesticactivist
    It's tough at first but you'll get the hang of it... then you'll feel better and that will make it all worth it! For the household, we decided to make everything gluten-free. Especially with really little kids, in order to keep yourself safe it's a good idea to not have them carting gluten around the house! If you MUST feed them gluten, do it at the table...
  10. domesticactivist
    Another thought with the weight loss... could you be eating something else that is preventing you from absorbing nutrition from the food you eat? For example, some people trying to bulk up on muscle sometimes eat protein powder shakes or similar foods that are full of highly processed ingredients that can be common problem foods, like soy, eggs, or dairy...
  11. domesticactivist
    People can have IgE reactions to wheat or to gluten or other parts of the wheat. Wheat is one of the top 8 allergens recognized in the USA. You can be allergic to wheat but not other gluten-containing grains. However, you can be allergic and ALSO be gluten intolerant and/or celiac. From what you describe, it sounds as though you may have a wheat allergy combined...
  12. domesticactivist
    You don't have to replace everything to the same level of quality right away (or ever). We got cheap new utensils, use fewer pans and bought used stainless steel, bought cheap knives... It still adds up but did soften the financial blow.
  13. domesticactivist
    The coughing and congestion sounds more like a histamine (IgE) reaction to me. You could have both kinds of reaction.
  14. domesticactivist
    I'd add one more thing - see if the person responds well to a gluten free diet, and badly to reintroducing gluten. Of course before going gluten free it would be good to get a celiac panel (blood test) done, since you can't do it gluten free. The problem with just assuming it's celiac is that there could be other things wrong as well/instead that could be...
  15. domesticactivist
    We reaseasoned our cast iron and kept our stainless steel, glass, and glazed items. We got rid of stoneware, nonstick, cutting boards, serrated knives, anything wood, an plastic containers that held grains. We got rid of small appliances with air intake or regulary used with gluten as well. I have a post on the blog linked from my profile about going 100...
  16. domesticactivist
    Yeah, it is a lot to being on a plane, though you can check a lot of it in baggage. Arriving on thanksgiving makes shopping tough but in the future, dollar stores can be great for picking up cheap kitchen stuff when traveling. We got a crock pot at Fred Meyer (kroger) for $24, and when staying a week or more that's so worth it. Definitely bring some safe...
  17. domesticactivist
    I was going to respond with passages but my computer is on the fritz so I'm on my phone. Suffice to say, my reading of the book Healthier Without Wheat this week has evolved my perspective on the whole intolerance-allergy-celiac thing. I'd be interested to know your thoughts on the book.
  18. domesticactivist
    We have an almond flour crust on the blog linked from my profile. We used Pamela's with some success at first but then went grain free.
  19. domesticactivist
    We were going to give it to the troops through a buy back but couldn't find a close drop off site quickly enough and ended up eating some it was not pretty. Finally we just threw it in the trash. Btw, we didn't buy candy this year but the kids wanted to trick or treat for the fun of it, so all we had was the candy they got in the hour they were out. For...
  20. domesticactivist
    Magnesium and calcium deficiency are a common cause of both those problems. Maybe you are not getting enough, or are not absorbing what you do get. We use concentrace mineral drops and Epsom salt baths/foot soaks for magnesium. If you decide to supplement calcium I believe calcium citrate is more readily absorbed than other forms.
  21. domesticactivist
    Here are a couple more points of clarity: The question was asked about candida and antibiotics. While these things can damage the gut lining, they do not create the same kind of damage to the villi that celiac autoimmunity does. Also, someone said there is no such thing as a gluten allergy. Actually, there is. However, that is a different thing from...
  22. domesticactivist
    Had you been eating gluten regularly (3-4 slices of bread a day) for about 3 months prior to the test? That is what is considered necessary for a reliable endoscopy. Even though the test is negative, there are other kinds of gluten intolerance. It sucks not to have that validation from a definitive test, but you do seem to have a definitive experience...
  23. domesticactivist
    Did your doctor run a celiac panel (single blood draw) as well? The tests run would be: tTG IgA EMA IgA AGA IgA AGA IgG total IgA DGP (this one is now replacing AGA, it is more specific) Here is my current understanding: An IgE reaction is your immune reaction to gluten, where the body attacks the gluten itself. This is a histamine type reaction...
  24. domesticactivist
    Google kimball genetics celiac for more info
  25. domesticactivist
    We chose the kimball genetics (division of labcorp) celiac screening. We chose this one because they test both the alpha and beta rather than just the beta. The kids' insurance covered it. Mine did not, because I have a very minimal plan.
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