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domesticactivist

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by domesticactivist

  1. domesticactivist
    Oats can be certified gluten free but the ones that are not certified are contaminated. Some people are also cross-reactive to oats.
  2. domesticactivist
    I'm glad you are getting him tested. Your son's symptoms sound a lot like my son's. His biggest symptom was bone pain and he got muscle cramps and aches, too. He'd always complain riding his bike, taking a walk or hike, etc. Now, when he gets glutened that is the biggest and first symptom. The thing that put him in the hospital was actually that his hip filled...
  3. domesticactivist
    fyi I don't seem to be stuttering any more and I have not changed a thing since I posted. I have no idea what caused it.
  4. domesticactivist
    Lately my son has been thinking about the life-long implications, too. He asked me the other day if he'd be able to have beer someday. As for the bread - I think it works way better to just eat other things rather than substitute foods, especially at first. The gluten-free thing could be 100 times yummier but it wouldn't matter since it won't taste the...
  5. domesticactivist
    Thanks, you are sweet. I know this is a perfectly normal thing to feel, I guess that's why I posted it. We have gotten pretty good at avoiding gluten, actually our son hasn't been glutened in something like 6 months and that's why it caught me so off guard. Mostly we are moving forward and see the silver lining, but there are these moments... One of...
  6. domesticactivist
    (This is the latest post on the blog linked from my profile. I thought the parents on here might relate.) Last week Jupiter got glutened. I almost didn
  7. domesticactivist
    I'd think about testing the kids before removing gluten, but then I'd completely get rid of it. Like Hildegard, going completely gluten-free improved all sorts of things for everyone in our family, despite only one of us being suspected of having celiac disease. For us it's much easier to deal with a gluten-free home with everyone eating the same meals...
  8. domesticactivist
    Poor kid! I agree testing ASAP is a good idea. I also highly recommend the book Gut and Psychology Syndrome by Dr. Natasha Campbell-McBride. She has a lot to say about diet and Autism. Our family has greatly benefited from the diet, though our problems are different. I have links if you search on GAPS Resources from the blog linked from my profile.
  9. domesticactivist
    Good luck with those results and dealing with the school. It sounds like there are not a lot of options for other schools in your area, but in your shoes I'd seriously question whether that school was right for my child. My (radical - I'm a homeschooler, remember) opinion is that the numbers a school puts up for tests scores or reputation or whatever matter...
  10. domesticactivist
    It's good your friend is taking it seriously. If you think she's afraid to invite you over, why don't you talk with her about it? Reassure her that you appreciate her concern for your health, and that you are comfortable visiting as long as you take the steps you need to take to be safe. For us the basics are washing hands and eating only the food we bring...
  11. domesticactivist
    In general it's usually gluten-free but FULL of corn syrup. We make our own. I'd call the number listed on the bottle and ask my questions rather than guessing!
  12. domesticactivist
    I'm so sorry for your loss. Please don't blame yourself. I know it's impossible not to play out all those "what ifs" in your head, but when they take over, please keep it in the corner of your mind that you did your best and that was all you could do. I don't think anyone could have done better than you did under the circumstances. Leukemia or not, her health...
  13. domesticactivist
    Good luck! My son is the same age and we figured all this out last winter. I really wish we had proper test results, but even just a tiny amount of gluten makes him feel so awful for days that I just can't see doing the testing now. I hope you get meaningful results for your son soon. I agree it's really important to take into account how your son feels...
  14. domesticactivist
    I've been really wanting sharp cheeses. Maybe blue cheese, or asiago. I'd also love a cup of good coffee with heavy whipped cream in it. However, coffee is out of the picture, too. I can usually ditch the cheese cravings by getting some strong, salty, savory flavors going. Avacados with pork drippings, anyone?
  15. domesticactivist
    Yup. Corn is really hard to avoid. It's not one of the "top 8" allergens so it is not required to be disclosed in labeling laws. The only way to find out is to call the company and ask a bunch of prying questions about their processing facilities and ingredient sourcing.
  16. domesticactivist
    With attitudes and practices like these, these people are going to kill a child someday. At the very least, this must be reported to the local agency regulating day cares.
  17. domesticactivist
    ps. I do not understand why a kid with a broken leg can't go outside with the other kids. He may not be playing soccer, but he could still talk with his friends, get some fresh air, and not be totally isolated. It seems totally unacceptable to me.
  18. domesticactivist
    We haven't had to deal with this on an ongoing basis because we are homeschoolers. However, my kids do a lot of camps and classes. The single most important thing we've learned is that it's critical for the children to learn to advocate for themselves!!! We put information on our son's form for his last class and sent all his own food of course (as did...
  19. domesticactivist
    We do the GAPS diet which is not focused on calories at all, but I lost 20 lbs on it (all I had to lose) and they have stayed off. It is very similar to the Paleo and Specific Carbohydrate Diets mentioned above. It is focused on nutrient dense foods, healthy fats, eliminating sugar and grains, and introducing naturally probiotic foods. It has improved the...
  20. domesticactivist
    When we first went gluten-free we realized corn was a problem, too, and boy did it suck trying to eat gluten-free products and avoid corn. Things got a lot easier when we cut out grains all together, gave up on bread entirely, and started the GAPS diet. It sounds weird, but the more restrictive diet meant we stopped trying to replace old foods and just...
  21. domesticactivist
    We had left-over home-made chili. We just introduced white beans and tomatoes after about 6 months with no nightshades or legumes, so it has been pretty exciting!
  22. domesticactivist
    I wrote a big post about being 100% gluten free that might help you find some of the potential sources of contamination. You can find it from the blog linked on my profile.
  23. domesticactivist
    You are so sweet helping out so much with your little brothers and sisters I love big families <3. My first question is whether the little kids have been tested. This stuff can run in the family and needing to gain weight can be a sign of it! If the boys have low weight I wonder if part of that could be due to problems with gluten. I don't know if...
  24. domesticactivist
    I didn't just go gluten-free - we did GAPS. I lost 20 lbs almost immediately, then stabilized. I was around 145 at 5'6 and went down to about 125. I was concerned because if I got any smaller I'd be too thin, but it seems my body was just finding a new normal. This is actually the size I was before I had kids (about 13 years ago!)
  25. domesticactivist
    Takala, have you thought about corn? We experienced big reactions from arrowroot and buckwheat, too. Many alternative grains are cc'd and I don't think most (even dedicated) gluten-free bakeries take that into account.
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