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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by IrishHeart
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ARCHIVED Good Days & Bad Days -- Is This Normal?
IrishHeart replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
One thing to keep in mind is....not how far you still have to go, but how far you've come. I was like the walking dead for so long ....and now, 9 months gluten-free, I am approaching "normal". Again, everyone's healing time is different. I expect I'll take a few years. I have a 3-page list of horrible symptoms I suffered for years (I am not kidding... -
ARCHIVED Good Days & Bad Days -- Is This Normal?
IrishHeart replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
well, thank you! I was where you are and I was very discouraged for the first few months as my progress was extremely slow---and all of these wonderful people on here bouyed me up on a daily basis. Even when I had doubts of "This is not working, OMG, I'm going to be like this forever! How will I get to where these people are???", the many stories of healing... -
ARCHIVED Good Days & Bad Days -- Is This Normal?
IrishHeart replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
:lol: oh shroomie! My PT--who started working with me nearly a year ago when I was DXed --said recently..."wow, you look sooo much better than when you first came in here. You looked like hell back then...." She's right...For a few years, I looked like "death warmed over" as my Gramma used to say. -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
Oh kiddo, I am sorry your sister is not only non-supportive, but downright cruel. Do NOT let her comments get to you!! Her ignorance of celiac disease is a shame. Given the genetic component, she should be careful she isn't "inconvenienced" herself in the years to come. Unfortunately, we hear stories of family members with this snarky attitude all the... -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
:lol: I just read this out loud to hubby--who said " HEY!! has she been spying on us? " ..yup, this could be a scene from OUR kitchen too :lol: Thanks for the near pee- in- my- pants moment just now--- as you described some of our adventures in the kitchen to a tee. We also have a small ranch house country kitchen with a limited area to work. One... -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
You sound like us!! and working TOGETHER in the kitchen is still romantic and fun. BTW, nice looking piece O'cake, there lady!! (drool) looks YUMMY!!!!! -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
Here are some chicken tenders that look amazing-- Open Original Shared Link -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
Thata girl!!! and..there are ways to make chicken tenders, too!! Just have to use your imagination and creativity and hopefully, hubby will like them just as much. Have you checked the famous Glutenfreegirl's website? she may have a recipe for that. Really, there are so many good bloggers out there and I am betting someone has a good recipe. Someone may... -
ARCHIVED What Helps You Stay Positive?
IrishHeart replied to ewalker's topic in Coping with Celiac Disease
Hi and Welcome!! First, I want to say your very positive attitude is obvious in your words. Good for you!! You have not let Celiac "own" you all these years. Secondly, it is difficult sometimes when I am around GEs (gluten eaters ) but only because of the convenience factor. I NEVER, ever feel the urge to cheat because the horrifying symptoms... -
Good point AZIZA!!....I had gallbladder disease in my 20s, and had it removed... long before my celiac DX But again, we can only guess. I always experienced SHARP pain that doubled me over, made me sweat and nearly pass out when I was very ill before DX ....(whew, glad that nightmare is behind me!) so, it could just be a temporary thing.
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There is a member who is a doctor on site here, maybe she will see your post. But my hunch is she will just be guessing, too because there are many variables and it's too hard to say why you are having these symptoms right now. As I do not know how long you have been gluten-free, what you eat on a regular basis, or if you have secondary lactose intolerance...
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Sorry, did not mean to pry and hope that was not too personal a question, I was just wondering if they had the genes and/or symptoms, too. Well, kiddo, it sounds as if you have covered all your bases. Why you are having an increase in symptoms is perplexing, yet it really is an up and down healing path and I wish it would go faster --for all of us....
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Here's a helpful list of soy free foods this gal made up!! Open Original Shared Link
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ooh....Between your own family still being GEs...(gluten eaters ) and the little ones you deal with during the day, I fear, chances are you're being inadvertently glutened. Some people report even smooches from little (and big) GEs can cause issues. I know personally that I get glutened from CC while visiting family--last thanksgiving was a nightmare...
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Steph raises an excellent point---any chance of CC at home?? And like her, I am very sensitive to the slightest amount of accidental gluten, feeling it almost immediately in my brain (like I've been drugged) and then, suffering with SEVERAL symptoms for over a week--insomnia, anxiety, D or c, heart palps, blah blah blah. It was beyond frustrating and discouraging...
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ARCHIVED Good Days & Bad Days -- Is This Normal?
IrishHeart replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I echo Steph's suggestions. Stay the course--- as there will be ups and downs-----and if you are still experiencing symptoms in a few months, some testing for other health issues may be in order. The brain fog took a few months to lessen and frankly, I still have some pesky short term memory issues--but I was very sick for several years--and your experiences... -
Hon, I was not at all suggesting that you, personally, were trying to "spread paranoia" or be overly panicky. Not at all. I am saying that sometimes we become overly fearful because we are not doing as well as we would like and some people's suggestions can be alarming and even misinformed. I know, because I did it myself and learned the hard way. That...
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Kiddo, Given your symptoms and the fact that your brother has celiac disease AND the fact that you were blood tested while OFF gluten (so, of course it will be negative!)I think you need to find a doctor to test you appropriately--while ON gluten. You have many of the symptoms I had--and honestly, you really need a good celiac-savvy GI doc to look...
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First things first...celiac is a genetic autoimmune disease and so, YES, if your brother has it, you have an increased risk for developing it as well. Parents, siblings, children---all should be tested. From celic.org: "celiac disease occurs in 5-15% of the offspring and siblings of a person with celiac disease. In 70% of identical twin pairs, both...
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ARCHIVED Good Days & Bad Days -- Is This Normal?
IrishHeart replied to BabsV's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Several small meals is MUCH better on digestion and for keeping blood sugar stable. Try to balance your carbs with proteins. definitely eat Protein at breakfast. Eat as many greens as you can stand They really help! HYDRATE all day. May I tell you something ...so you see why healing the gut resolves many other problems? My story is long and complicated... -
Me Neither! You raise a good point. If you are intolerant to the SOY PROTEIN, though, it's still going to be an issue, don't you think? I am not sure! Soy is believed to be disruptive to hormonal balances (thyroid, estrogen) and I do not like the texture of tofu, etc.--- so I do not eat it anyway. (Read The Whole Soy Story if you want to be scared...
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Of course I don't mind --I am glad it helped. Gail, you speak wise words. Best to stick to simple, healing foods...slow and steady. The ones that cause the most trouble-- for many-- in the beginning are dairy, soy, acidic foods, beans, and high fat foods. Avoid dairy for as long as possible. Use digestive enzymes if necessary and probiotics. I,...
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I have a soy intolerance as well (I learned that through IgG testing) and my reactions to soy are similar to Ravenwood's. Lately, I have been able to tolerate small amounts of mayo on my sandwich. (yaaay!) And yes, soybean is a legume, not a grain. Why so many celiacs develop a secondary intolerance to soybean has never been explained to me and I cannot...
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I hope you find your answer soon and start to feel better. The only thing I was trying to say earlier when I suggested it would not be an issue (before I knew some people react to oat CC in the BRM products).....isn't Lundberg's solely a RICE company? If so, where exactly would the oats come from that would cause this CC issue? I'm a bit perplexed by...
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It is difficult feeding everyone and still getting enough nutrition and keeping gluten out. I sympathize with you, hon--as just feeding hubby and me took a year of figuring things out and revamping menus repeatedly as I negotiated various food sensitivities in addition to the celiac, which made me unbelievably sick and in chronic pain. Cooking was the LAST...