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mcc0523

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Everything posted by mcc0523

  1. mcc0523
    I would think about getting a new therapist. Yes, they "only" deal with emotional problems, but the good ones will recognize that physical illnesses can have things like depression and anxiety as symptoms, sometimes the only symptoms. In fact, it was a psychologist friend who first told me to consider vitamin deficiencies, perhaps caused by celiac or something...
  2. mcc0523
    I think that low cholesterol diet is a BAD idea long term... cholesterol is found in almost every cell in the human body, and it is what the myelin sheath which coats the nerves (and what is attacked in MS) consists of. If one doesn't consume cholesterol, then the liver makes it, so if the diet is low in cholesterol (or good fats in general) it can overtax...
  3. mcc0523
    Try Open Original Shared Link for a primal based diet. The "diet" (lifestyle or way of eating is more accurate) is meats, veggies, and healthy fats (coconut oil, butter, animal tallow are all great; processed vegetable oils {such as canola} and anything that has been hydrogenated is VERY bad). Fruits are a rare addition, although if someone is doing heavy...
  4. mcc0523
    What is ridiculous is your seemingly blind faith in the medical profession. Plus, what part of 30% false NEGATIVE rate of the "Gold Standard" tests don't you understand? That means that there are 30% of the people who have been tested for Celiac and told that they don't have it that ACTUALLY HAVE IT! Of course you can go around and trust the medical...
  5. mcc0523
    I am looking into getting a dorm fridge... However, I'm not sure if I want to buy one now, since I'm most likely to move out. I am an adult, who is keeping my parents from being in a financial pickle by paying them rent to live here. I would rather not move out, because I know that would be detrimental to them, but I can't handle being glutened at least...
  6. mcc0523
    I got glutened from my dad, who wiped his hands, but did not wash them (or even rinse thoroughly) after eating a doughnut before he reached into a bag of my almonds (that I later ate). I am working on my parents into making at least the kitchen gluten-free, and not physically interacting at all with my mom, as she insists upon wearing Aveno products (and...
  7. mcc0523
    I am a musician, currently training to be a church organist. I've previously had voice and piano training, plus 7 years of band in school. I don't know exactly what I want to do with music, but it is more important to me than most anything else. I'm especially fond of Gregorian Chant, and sing with a Gregorian Chant Schola every Sunday. I am a Trekkie...
  8. mcc0523

    ARCHIVED I Want To Smack My Doctor!

    mcc0523 replied to bonnie blue's topic in Doctors

    Get a new doctor. Doctors work for you, you (and/or your insurance) pay them. If they aren't providing the services that you are paying them for, fire them. I'm sorry you've seen such a jerk. They are many of them out there, unfortunately. Perhaps there is a local Celiac support group could give you the name of a good Celiac knowledgeable doctor.
  9. mcc0523
    I've had "possible MS" mentioned to me, by doctors and other MS patients. I had the "walk", stiff and shuffling of feet. I have a borderline-Chiari malformation, which can cause symptoms that are similar to Celiac/gluten-intolerance, and if I hadn't gone gluten-free, I would have probably had surgery by now. I'm so glad that I had others in my life talk...
  10. mcc0523
    I would like my whole kitchen to be gluten-free, but as I live with my parents, and they still eat gluten, I wash dishes now at least two or three times as I wash everything after I use it, and then before I use it again, as I don't trust my parents to yet not cc me, and they use the same dishes. I am feeling better and my gastric symptoms have pretty much...
  11. mcc0523
    Perhaps the times and sizes are a bit different, but this is very similar to my whole gain/lose history, too. I was anemic the last blood draw, with no niacin in my blood the last time it was tested (and many other things were really low). I have stopped weighing myself for the past few years, but I have had to keep a range of clothing sizes, from...
  12. mcc0523
    I'm grateful that I was able to hike earlier 2.5 hours in the woods. A feat that was impossible 2 months ago, that I had given up for good (that was such a horrible night when I told my best friend that I would never be able to do that again... I actually cried over that). I went gluten-free a month ago, and I can already tell such a difference in how I...
  13. mcc0523
    It is difficult to know which one is lucky... both of us are, I suppose, because we know what makes us sick and how to avoid it. I am hopeful for the future of gluten-free-beers... and you're right, cider is pretty awesome. I am also hopeful that in a few years, there will be at least one good gluten-free beer out there. If not, I can learn to...
  14. mcc0523
    I understand not having even a sip... *sigh* I guess I need to start looking into alternate grains, and use my current brewing knowledge and come up with a good alternative. I've been especially missing my IPA, so I could come up with something that uses A LOT of hops. I wonder how brown rice does in beer, too. I can't think of anything to take the place...
  15. mcc0523
    With Ehlers-danlos syndrome, which causes joint pain, it's not uncommon to also develop Celiac/gluten-intolerance (I'm a member of several chronic illness message boards, and it's surprising the people who have both EDS and Celiac). If you have a history of being hypermobile/flexible in your joints (even if they aren't now... ironically hypermobility can...
  16. mcc0523
    [rant] Before figuring out that gluten has been causing such horrible symptoms in me, I used to be a beer aficionado... as in, I had my own dedicated beer glass that was NEVER washed with detergent (as it affects head retention), I was able to detect undertones and high notes and all of the fancy terms "real" *snobs* use in describing the experience, and...
  17. mcc0523
    Have you had your vitamin levels checked? Low B vitamin levels can lead to numbness and tingling in the extremities.
  18. mcc0523
    Itching is a known side-effect of aspartame. It is number 16 of the FDA's list of known aspartame side-effects.
  19. mcc0523
    I'm the shortest one in my family, besides my mom. Dad is 6'2", Mom is 5'4", youngest brother is 5'10", oldest brother is 6'5", and my sisters are both 5'11". I was 5'6" at my tallest, but I'm now down to 5'5", and I'm only 25... I have osteoporosis, so the height loss scares me a bit. I hope that I'm able to reverse some of the bone loss just by being...
  20. mcc0523
    My gallbladder was taken out almost 5 years ago in October of 2006 at age 20. I, too, had no stones, but I had symptoms since I was at least 15 years old (throwing up constantly and horrible stomach pain... although that could have been from eating gluten my whole life at that time). However, according to all of the GI doctors I saw from age 15-20, I was...
  21. mcc0523
    Your recurring rash sounds like Dermatatis Herpetiform (DH), a skin manifestation of celiac disease. If, and only if, you WANT the diagnosis, you could eat enough gluten to cause the rash to come back, and then have a dermatologist biopsy NEXT TO (not on) a blister. How long have you been gluten-free? If it's fewer than 3 months, you MIGHT have enough...
  22. mcc0523
    Fruit ciders are another good substitute for beer. I know that Magner's Hard Cider is made from apples and is really good. Pear ciders are very nice, as well. Not all brands are gluten-free, so make sure to research beforehand... however, it seems more are than not. That's nice to know about the "gluten-free" beer. I shall make sure to avoid it.
  23. mcc0523
    I was first diagnosed with the POTS, a year ago. Then just this past November, it was EDS. In December, it was severe osteoporosis, and now, it's severely malnourished and gluten is a problem for me. I am sure I have at least one other food sensitivity, although I'm not sure what it is right now (although dairy is certainly out right now). I'm excited...
  24. mcc0523
    I just found Celi-Act, a Knoxville based celiac support group. There is an online google based group for members. They also meet in person every other month, and there is a Gluten Free Vendor's Fair coming up in March!!
  25. mcc0523
    It might be worthwhile for you to follow an elimination diet, after you get your vitamin levels checked out first, at the VERY least your Vitamin D and B Vitamins. In my case, I was tested to have no detectable niacin in my blood, a very low Vitamin D level, and a few other things that are low normal/borderline low, including the tTG IgG and IgA levels....
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