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Jungle

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Jungle

  1. Jungle
    Just diagnosed with Uveitis in one eye. I am already gluten-free since +blood test 2 years ago.
  2. Jungle
    When we were trying to conceive after 2 wonderful babies and then 3 consecutive miscarriages (likely celiac related I now know) I found another forum "bellybelly" to be, like here, a wealth of information. It really helps chatting with people who are in the same situation as you. And it was so cool to see people who were lamenting "is this ever going...
  3. Jungle
    They could choose to do the same thing with dairy, or eggs. No child is safe with the attitudes they had shown. I love your quote!
  4. Jungle
    Would this not be a case of abuse, or assault? Intentionally causing harm. You explained she couldn't have these things because it would hurt her and they then intentionally (although they agreed otherwise!) gave it to her. And now she is hurt! I am so mad for you!! The mommma bear in me wants to go tear a strip off them and make them understand...
  5. Jungle
    I do think you need the Dr to read these results again. It looks like pretty much all of them fall out (or almost) out of the normal ranges. You need to go back with test in hand to ask again. What any of it means is beyond me but the practice of getting copies of your tests is a smart one.
  6. Jungle
    When I meet "celiacs" who feel like they can cheat once in a while. I immediately wonder if their Dr actually told them that and when. If I had listened to the Dr who diagnosed me(4 1/2 months ago) I would have "continued eating gluten until the symptoms got worse, and not tested my kids until they were 12 because a gluten-free diet can effect growth" ...
  7. Jungle
    It seems more than a little extreme to expel you for being actually sick. Asking for a meeting with you, your parents, and administration to make sure that the school has a clear understanding of your health. (I'd paint a vivid picture of exactly why you can't be in class and exactly how hard you try to avoid gluten so they understand it is not because...
  8. Jungle
    We were whining that we haven't got any summer yet. And then I saw the news about the heat wave. I think I'll just put a sweater on and get over it. That looks too hot for me. But would one nice day be too much to ask for. For the last 6 weeks we haven't had anything over 20c and it has rained everyday. I keep expecting to see the leaves change colour...
  9. Jungle
    Yikes, I hate it when they don't do what they say they are going to do. I think because you've only been gluten-free for such a short time I'd eat gluten and lots of it for a week or so before testing. There is a good flow chart by the mayo clinic to diagnose celiacs on this forum. Print it and take it with you so you don't have any more problems at the...
  10. Jungle
    I gained 10 lbs in the first two months (and wasn't trying to gain or lose) Now after 4 months gluten-free we are back to normal again.
  11. Jungle
    If you are delaying gluten until a year you have delayed it about 5-7 months. So it takes the same amount of time just the child is a little older. It seems to me to be mostly the same. Only so many kids don't have gluten issues even in celiac predisposed kids.
  12. Jungle
    On the TTC front I found another forum "Bellybelly" to bet full of helpful people like here. It is nice to have support from people in the same situation as yourself. Wishing you much luck on your baby wishes!
  13. Jungle
    I have my own ice cream maker and the biggest problem is it tastes so awesome I eat way, way too much. My family has no idea how much it actually makes.
  14. Jungle
    Although not LDS, but Christian, I was bring a piece of bread and then bringing it out at the appropriate time for the past few months. Last week my pastor asked about how to make the communion bread for everyone gluten-free. I was surprised and happy to be included.
  15. Jungle
    Too bad we can't selectively choose where to lose the hair.
  16. Jungle
    My middlest used to hold her breath when she was crying. Her lips would turn blue. She always started to breathe on her own. Apparently, even if they pass out it is normal and they will breathe when they pass out and their brain resets.(not that she actually passed out I would freak) It was a bit weird at first but she did it all the time from about ...
  17. Jungle
    I'd bring my own food. I have a cool lunch kit that has room for all sorts of things. It is called a Goodbyn. I don't worry about looking different. It is just so much easier to know that your food is gluten-free. A buffet might contain foods that are gluten-free but they are most definatly contaminated. If someone uses the wrong spoon to dish out their...
  18. Jungle
    This issue goes so much deeper than gluten. These people are reacting this way because they do not respect you. Even if you think someone is off their rocker you would never say things like that in front of their children if you respected them. Trying to drive a wedge between a parent and a child. This has nothing to do with gluten/celiacs. To...
  19. Jungle
    I am also from Canada and the 6 month wait for the scope is what made me decide not to wait but just to get on with it. I went gluten-free after a Ttg of 193. Four months later I am doing better but not as much as I'd hoped. I keep thinking it takes adults 2-5 years to heal. So I can't expect to be all better right away.
  20. Jungle
    I'd have to agree with you, Takala. Kind of depressing. I have only been gluten-free for about 4 months. I don't feel FORCED into a gluten-free diet. I feel lucky that is all I have to do to heal myself. I am not dissatisfied with my diet. I have lots of options and variety. (I do miss some things but...) I am able to find lots of gluten-free junk...
  21. Jungle
    I spent about a week talking to my 8 and 6 year old before we went. Explaining why, and what it would feel like and that it would only pinch for a minute and then we'd go get a treat. I was not excited about testing my almost 3 year old because she is big and very strong. I decided to wait until she was a bit older so she would understand what we were...
  22. Jungle
    Everything I've read show that celiacs effects 1:133 in the general population. But every day it seems there is someone else who also has celiacs. So...are there more celiacs now or is that number still accurate?
  23. Jungle
    With my low bone density they just told me to up my calcium and Vit D for a year and then they'd do another scan to check and see if I had improved. I'm sure he has nothing to be concerned with. It will likely just be a visit with talking.
  24. Jungle
    I always tell the truth. "I can't eat that....because I have Celiacs Disease. When I eat gluten my body starts to attack itself." And to answer "Can't you just have a little or can't you eat around the crust/scrape it off?" I answer that any gluten I eat is doing damage and 10 years from now if I get cancer from this I'll wonder "Was it because I...
  25. Jungle
    Don't be discouraged. The process would be wonderful if it was instant but....no luck. It takes time, lots of time before we are all better. And gluten withdrawl is a real thing. I felt horrible for the first week and since then I have been up and down. It is hard to isolate all the sources of gluten and it is a learning process. I just think about...
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