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WhenDee

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by WhenDee

  1. WhenDee
    With it only improving things by 15-50%.... And knowing that EVERY MEDICATION has a side effect... I wouldn't bother with it. Before I went gluten-free I had vitamin deficiencies & frequent illness. Gluten was destroying my ability to absorb nutrition and it was KILLING me. Literally. There isn't one thing in the world I want to put in my...
  2. WhenDee
    Salad is your friend! I have dry salad all the time now, no croutons. That is my stand-by. Also, I've gotten really good at searching online for restaurants and which dishes are gluten-free. When you find a restaurant that has several good options, it's like heaven! To be able to eat somewhere & know what you can order. Right now I know of ONE...
  3. WhenDee
    Regarding the smell issue... It is possible that you are getting rid of toxins... BUT... If even your doctor said he didn't smell anything, I'm going to guess that you are oversensitive, picking up on behaviors that have nothing to do with you. I struggle with anxiety, and I can't handle it on my own. I recently tried again, hoping that being gluten...
  4. WhenDee
    The diet I went on to find out what was causing my trouble is the one that helps me most now. Plain rice for 1-2 days, then add back in raw salad vegetables slowly. Then back to regular food. I can do this because being glutened destroys my appetite anyway, so plain rice sounds pretty good to me when I'm sick. The tangerines might be too high in acid...
  5. WhenDee
    The very best cook I knew is a fellow Celiac. She always brings something she can eat, and she eats ahead of time, too. And her dishes are SO good that no one thinks about them being gluten free. Last time I went to a party at her house, she had about 8-10 different dishes out - the entire thing was gluten-free - and only those "in the know" would have even...
  6. WhenDee
    Nooooo! Not unless it's a company that has promised to list gluten (link in that great post above). Unless the company has gone to some length to be sure the food (and all the ingredients in that food) never touched gluten, you can't be sure. Your product may have nothing added, but perhaps ingredient #4 was produced on the same line that produces a...
  7. WhenDee
    My daughter had a big problem with cow's milk as a baby - she was getting the proteins through breast milk. Because the gluten problems are actually with certain proteins... it stands to reason these could pass through breast milk as well. If your doctor blows you off - find another one who will explore the problem. I was sick for 15 years because I...
  8. WhenDee
    Thank you for the replies. I thought the odds were only about 10%... if it's actually 50%, that is much more likely then. My daughter has shown signs of mild problems all her life - behavioral mostly. The triggering event here could be our move overseas. That was pretty hard. @srall... I totally understand. After I found this, I thought back to my sister...
  9. WhenDee

    ARCHIVED I'm Scared

    WhenDee replied to Poppi's topic in Coping with Celiac Disease

    ETA: the best cook I know is a fellow celiac. Since she can't cook breads, she cooks - literally - everything else! I am a celiac, live overseas, and travel frequently. This summer I will get to go to Paris for the first time. And as excited as I am, I cannot stop that little voice that says, "But I won't be able to eat even ONE REAL croissant!" I...
  10. WhenDee
    The only reliable gluten-free bakery place I've ever seen was in England. They cleared their kitchen for an entire day, baked nothing but gluten-free on that day, then PACKAGED the gluten-free items on-site in sealed plastic wrappers. So your gluten-free dessert may have been baked 2 days ago, but it was definitely gluten free. Have only ever seen this...
  11. WhenDee
    This post made me giggle. Because I was thinking of adding a tagline to my posts that says "you try to be a vegan celiac and see how cheerful YOU are!" LOL You cannot make any assumptions. I recently posted my frustration with American companies (so far Mars & Frito-Lay are the worst) not listing ingredients. F-L listed an item as being gluten-free...
  12. WhenDee
    I have undiagnosed Celiac's. We live in a country with third-world medicine and my husband begged me not to have the tests run. We have seen an expat die here from simple bone-setting, so I agreed. However, after doing a strict elimination diet under medical care & seeing a COMPLETE remission of several debilitating problems, I'm staying gluten-free....
  13. WhenDee
    Mine were growing over time, starting when I was a teen and until I found out (age 31). It become obvious & unmanageable after 1) I went on an accidentally gluten-free diet for a few weeks trying to improve my health, and then 2) went off the diet suddenly to make an overseas move. Between the stress of the move & the sudden de-glutening/re-glutening...
  14. WhenDee
    Yes, this is why I was upset. They say this & then do not label their packages properly, so that they appear to still be gluten-free here. I have found this to be true with everything made by Mars, as well. The real problem is that these companies do not care about the consumer & do the absolute bare minimum required in each location. Where I...
  15. WhenDee
    Oh, lovely. A doctor who knows FAR LESS than he THINKS he knows. Always a delight. Too bad this kind of doctor is so darned commonplace.
  16. WhenDee

    ARCHIVED I Am So Stupid

    WhenDee replied to MJ-S's topic in Coping with Celiac Disease

    You aren't stupid! I have done far stupid-er things than what you listed here, LOL.
  17. WhenDee
    How fantastic that you found out so early in his life! I am 32 and only found out 8 months ago. I am six inches shorter than my next-shortest sibling. What I did want to tell you is that during college I went through a period where I couldn't afford to eat much, and I ate mainly rice and frozen vegetables. I wan't totally gluten free but almost, just...
  18. WhenDee
    This post gives me the weepy glees. What a GREAT HUBBY you have. W
  19. WhenDee
    Is she watching for her protein intake? A really excellent way to make sure she completes her diet is quinoa. I haven't found a lot of different ways to prepare it, so I mostly chill it and add it to salads. It is a complete protein source & has B12 in it. The only other (edible) source of B12 in vegetables is bean sprouts. W
  20. WhenDee
    You've been given more good advice here already than I have, just adding this: This is definitely a condition where you have to be your own #1 advocate! My last US doctor was the first to take me seriously (not accuse me of making it all up in my head) and he sat in his office, completely stumped, saying, "I really think you have an autoimmune problem...
  21. WhenDee
    Don't even say it: every time I try to 'cheat' and find a good snack that is bad for me, I end up sorry. I should just stick to healthy food. That said: I knew I was getting gluten somewhere, because I was slowly getting pretty sick. I finally bought a large bag of Lay's Vinegar & Salt potato chips. Before I had been buying the very small bags so...
  22. WhenDee
    Hi Pondy, I can't remember if I have mentioned this before on this forum (my husband accuses me of being a paid spokesperson!)... I've had the big C to such an extreme that going to the bathroom 2x/month was not that unusual. I would frequently look 5-6 months pregnant. I've been hospitalized for it twice, when it got the point that I couldn't even...
  23. WhenDee

    ARCHIVED Snacks

    WhenDee replied to K8ling's topic in Coping with Celiac Disease

    Woah, baby! That was almost ALL sugar! Don't forget that any starch turns to sugar in your system. Editing because of your reply: I found that eating a very small snack with a bit of protein in it every HOUR, and any time I woke up through the night, helped my pregnancy sickness HUGELY. I got this recommendation from a pediatric nurse. It might be ...
  24. WhenDee
    Before I went gluten-free I had extreme constipation. Now my response to it depends on how clean my diet has been and how much or what type of gluten I get. I have an IRL celiac friend who has a much stronger & always-same response to it. Mine varies from a week of terrible constipation --> to being chained to the potty for a day or two. Honestly...
  25. WhenDee
    I just wanted to say you are a TERRIFIC husband to be so concerned that you are on this site and doing your own research - and mourning with her as well. Because you sound as sad as a newbie celiac yourself, LOL. Look for Bob's Red Mill chocolate cake mix. It tastes just like real cake. His flour mixes are the best I've tried (though admittedly my options...
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