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MitziG

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Everything posted by MitziG

  1. MitziG
    While you were eating gluten free, did you feel better? If so, then you have your answer. You do not need a dr to agree with you. Being gluten-free could have messed up the test, or he may not have done a full panel. OR, you might not have celiac. Doesn't mean you are at square one. Gluten intolerance would also cause the same symptoms, and the treatment...
  2. MitziG
    It seems this thread has gotten away a bit from the OP's question. My advice, if you can, is get a celiac blood panel done while you are eating gluten. Expect it to be negative, but do it anyway. Then, go gluten-free. Ipersonally feel no one is benefiting by eating it!
  3. MitziG
    I am dx Celiac, which is fortunate because has I just KtreidK the diet, I would have assumed it wasn't helping. Because I was forced to, I stuck with it, but it was not until around 6-7 mos that I noticed I wasn't feeling as lousy anymore. It has just gotten better every month since. IBS= something is irritating your bowels! Eliminate that "something"...
  4. MitziG
    Withdrawal. First 6 weeks can be tough for a lot of people. Stick with it, it gets better!
  5. MitziG
    It gets easier. Yes, reacting several days or a week later is a possibility, for the same reason that when some of us are glutened, we feel the effects for 1-3 weeks. Gluten takes awhile to get out of your body, and your body is in a major adjustment period. It is gonna be wacky for a few months!
  6. MitziG
    My reaction time is very consistent- 30-45 min after, which is helpful. I get The big D and vomiting. Foot pain and fatigue and depression follow up for the next few days. A few times I haven't had any digestive symptoms, just the foot pain and fatigue and depression. Not sure why but my guess is it has something to do with the amount of gluten I got....
  7. MitziG

    ARCHIVED Any Good Doctors In Tampa Fl

    MitziG replied to Jon64's topic in Doctors

    You are correct- your doctor doesn't have a clue. Wish I could point you to one that does! I had a huge, painful lymph node on my neck for 20 years that docs dismissed. Guess what went away when I went gluten-free? Doc also told me my 8 yr old "just didn't look like a celiac kid"- six months before his very positive biopsy. When I insisted on testing...
  8. MitziG
    Yes it seems bizarre, but it happens a lot. Different theories as to WHY. Some think it is because our body "hoards" calories as a survival mechanism when it is nutrient depleted. Others say that the body will store fat to insulate vital organs from "toxins"- or what it thinks are toxins. All I know is that with 30 years of celiac, frequent vomiting and...
  9. MitziG
    When I get glutened, my feet hurt so bad I can hardly stand it. My 8 yr old son also whined about his feet constantly before being dx. Now they don't bother him so much unless he gets glutened.
  10. MitziG
    Actually, Colgate won't guarantee their products are gluten free, wheras Crest does. Technicality, but I am done taking chances!
  11. MitziG
    Lol. Jestgar- I think you got it right. Sometimes what you need it a little pity, not practicality. Sorry Dani!
  12. MitziG
    Anabananakins- I know how you feel! I resisted it for a long time too. If I hadn't figured out the connection with my acne, I doubt I would have! I tell myself it isn't like celiac- I don't necessarily have to give up all dairy, forever. I am planning on a six month stretch, and then trying to see if I can tolerate a little bit. I really miss real cheese...
  13. MitziG
    Ravenwoodglass- oops! I apologize for not making that clear. That is what I meant!
  14. MitziG
    Oh, you might offend him! I asked my GI to take multiple biopsies and he got irate. "Young lady I have been doing this for 30 years!" Guess what? I pay the bill, so he works for me. I insisted, and he complied. Don't let your doctor bully you! Celiac is easily missed in a biopsy. Did you ever have bloodwork done on yourself?
  15. MitziG
    You can't be tested- and you know gluten is a problem for you, so dx yourself and go gluten free. As for the kids, I am not surprised your son was negative. Blood tests are notoriously innacurate in little kids, and if he had any antibodies, they likely disappeared in your 4 weeks gluten-free. A month back on it was likely not enough to rebuild them. ...
  16. MitziG
    I do. I rarely eat out, and I take my food most places. It takes time to get used to it, but you will come to not miss "real food" so much. It is just the straw we drew, and there are worse ones. You just have to accept it as your new way of life. The benefits of feeling fantastic after years of feeling miserable have made it well worth it for me...
  17. MitziG
    I agree with the above. You couldn't pay me to go back to eating gluten. I really believe that it is poison to all but a very few people. I had NO immunity for 30 years. Since going gluten-free, I have had exactly ONE minor viral thing in 14 months! I can't say if your boil is related, but when your immune system is occupied with attacking your villi...
  18. MitziG
    Dani, this is new to you- it is new to him too! He is not going to give as much thought to food as you- just isn't going to happen. He probably felt it made no difference as you weren't eating, and really- does it? What are the chances that ANY restaurant he eats at is not going to be serving him gluten? Intentionally or not... Now why exactly can't...
  19. MitziG
    You have celiac disease. The blood tests are very, very accurate. Now that you had the biopsy done to "confirm" what the blood test already said (I think the whole endoscopy thing is primarily about generating $) you need to go gluten free. Your life and your health will change. If by chance your biopsy is negative, disregard it. Biopsies frequently miss...
  20. MitziG
    Your doctor is like most, relying on what used to be considered "the gold standard" for dx celiac disease. Biopsy isn't really necessary in most cases, and celiac can still easily be missed. False positive blood tests are so rare they can basically be dismissed as non-existent. Coupled with your daughters symptoms, it is safe to say she definitely has...
  21. MitziG
    Your tests show you have celiac. The tests you had were specific for it, and you would not be showing positive for another reason. The biopsy may or may not show celiac. Depending on how severe the damage is, they may not biopsy the correct spot. Unfortunately, most drs will say you don't have celiac if the biopsy is negative. Which is unfortunate because...
  22. MitziG
    Tell your family your doctor has suggested you try the diet to see if it imptoves your IBS, leave it at that. Don't make a big issue out of it, and they won't either. If someone makes something you can't have, just say "no thank you" if they persist, tell them it upsets your stomach. Always bring a snack in your purse so you don't starve! If you have to avoid...
  23. MitziG

    ARCHIVED Family

    MitziG replied to MistyRG's topic in Coping with Celiac Disease

    The reality is, if you have celiac, one or more of your kids either has it too, or will get it down the road. After both kids and myself were dx, it was just easier to be a gluten free house. In the beginning I had regular bread and a few gluteny items for dh, but after he saw how sick our daughter (who is VERY sensitive to tiny bits of cross contamination...
  24. MitziG
    If it makes you feel better it was right around the 7 month mark when I actually NOTICED...hey...I dont think I am quite as exhausted as I used to be! My progress was agonizingly slow. i desperately wanted to be like those people who go off gluten for a week and suddenly feel 20 years younger! Which is why I am grateful for the celiac dx or I never would...
  25. MitziG
    Hmmmm, well that is kind of how I have been eating- though I haven't completely removed starches and sugars, I did quit refined sugars and I cont have a lot of starchy stuff, cuz when I eat any, rice, potatoes, a fruit-juice sweetened cookie, I feel worse. Yesterday I got a root beer cuz it was hot out and sounded good. A few sips in and I felt yucky, so...
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