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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by pmrowley
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ARCHIVED How Can The Cook Not Taste Her Own Food While Cooking On Thanksgiving?
pmrowley replied to Nuala's topic in Coping with Celiac Disease
I'll add my voice to the masses: cook Gluten-Free, and don't tell anyone. It'll be a healthier meal, and probably better tasting too! If someone voices an objection after the fact, it sounds like *they* just volunteered to cook next year (and then you get to provide your dietary requirements for the menu... they wouldn't make a vegetarian eat meat would they... -
ARCHIVED Cooking For My Fiance
pmrowley replied to mistyb5712's topic in Parents, Friends and Loved Ones of Celiacs
My wife is gluten-free to support my Celiac diet, and she hasn't looked back! I started her off by just cooking what I normally do; she decided that gluten-free pasta was tastier than wheat pasta, and over the years has come to realize that a gluten-free diet really is superior to a "standard" diet in a lot of ways. She has more energy than she ever did before... -
ARCHIVED Insensitive Family Members
pmrowley replied to cdfiance's topic in Parents, Friends and Loved Ones of Celiacs
I have found that sitting down and explaining the condition, along with all of the hard science behind it, tends to solve the issue. Fortunately for me, my Dx 28 years ago was the result of my mother's tenacity regarding my condition; I wasn't growing, and none of the doctors could figure it out, until I underwent a new biopsy procedure at UCSF medical center... -
My wife and I rely on a nice, natural sleep aid when we get insomnia: Rescue Remedy. It's flower essences, distilled into brandy alcohol. Totally gluten-free. A couple of drops under the tongue, and I'm off to sleepy-land in about 30 minutes. It doesn't tranquilize you; but it tends to de-stress you and lets you relax naturally. Works great for hyper doggies...
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ARCHIVED Gluten-free Doesn't Seem So Bad
pmrowley replied to amberleigh's topic in Coping with Celiac Disease
It is also far easier if your domestic partner (if you have one,) joins you in your diet. And I'm talking 100% all the way. When I started dating my wife, she started in on my gluten-free diet, simply because I don't cook for 2 different diets. So when she ate over, she got rice pasta (which she loved,) whole vegetables, meats seasoned with herbs, etc. Now... -
ARCHIVED Friends And Family Not Supporting You?
pmrowley replied to a topic in Coping with Celiac Disease
Unfortunately, there is no easy way to deal with this kind of thing. You'd expect family to be a little more understanding; hitting on the genetic side is always a good route with family. "Gee Dad, you keep teasing me about this, but YOU are 1/2 of the reason I have to live this way. By the way, have you been tested for this? You might be poisoning yourself... -
ARCHIVED Please Tell Me This Gets Better...
pmrowley replied to JustMeInMD's topic in Coping with Celiac Disease
It does get easier with time. I was diagnosed 28 years ago; I have had enough plain rice cakes over my childhood years to fill a container ship! We've come a long way in the last couple of decades. The trick is to find some gluten-free comfort foods and indulge yourself from time to time. My favorite store of all time is Trader Joe's. I have a couple where... -
Yeah, the BF is a jerk and doesn't get it. Does he tell people with broken legs to just "walk it off" too? With regard to the waiter, you should have demanded to see the manager. These days, it seems that "the customer is always right" is dying out, but there is never any need to deal with an abusive waiter, and you should NEVER have to pay for food that...
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ARCHIVED No One Understand What I Have!
pmrowley replied to moussyluv's topic in Coping with Celiac Disease
Wanda, Welcome to the boards! You'll find a TON of great information here. As for explaining/dealing with our condition, the key is to NEVER be embarassed about it, and don't apologize for it. You couldn't control inheriting this condition, any more than you could control your eye color. Sometimes, it's easier to explain the condition as a food allergy... -
ARCHIVED Top Three Worst Gf Products
pmrowley replied to anerissara's topic in Gluten-Free Foods, Products, Shopping & Medications
Personally, my wife and I LOVE the Quinoa pastas. Nice and nutty, very flavorful. You just have to make sure not to overcook them. They go from al dente to al soggy in about 30 seconds. Same with the Pastariso stuff (I don't like the angel hair though, it doesn't cook right.) I also recently found a great gluten-free rice spaghetti at Trader Joe's, at... -
You won't feel a thing. When I did the procedure 25 years ago, I was fully conscious, and the only unpleasant part was getting sick as the tube went down. The biopsy itself is painless, as there are no nerve endings in the lining of the intestine. Cheers, -Pat
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Whenever I am dealing with things like this, I always have a supply of gluten-free cookies and treats handy in my desk. When they start busting out snack cakes, I grab an EnviroKidz cereal bar! If it's cake, then I'll grab an Ener-G Gluten Free brownie! (Which are healthier and better tasting than most of the swill others jam in their faces. ) -Pat
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Oh yeah, forgot about that. Visiting this year is worth it, just for the fireworks display! -P
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Just thought I'd share a happy note: If you're ever planning a trip to Disneyland, I'm happy to report that they are VERY aware of celiac disease and its ramifications. In-park eating can be problematic, since it's all pre-made food, but the restaurants in the hotels are extremely accomodating, even to the point of making gluten-free waffles and...
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ARCHIVED Diagnosed When?
pmrowley replied to steadyed's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I was diagnosed about 25 years ago, by the then-experimental intestinal biopsy routine. At the time, I was about 4'11" and fluctuated around 95 pounds. Currently, at age 34, I'm 5'8", 135 pounds. Not a giant, but healthy and happy. -Pat -
ARCHIVED Emergency Room
pmrowley replied to lotusgem's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Just a note; if you DO end up in the ER in the United States, make damn sure they don't hook you up to a Dextrose drip. They do not monitor for gluten-based dextrose sources here. -Pat -
ARCHIVED Cd For Life?
pmrowley replied to jams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The other thing you might want to try, is describing the exact nature of celiac disease. Check out this topic; there's a very succinct description that another member uses to explain her condition (and now I do too!) With that description, people tend to realize that it's a serious condition, and that it doesn't just go away. Open Original Shared Link... -
ARCHIVED Which Is Starchier?
pmrowley replied to Eliza13's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Interesting that the chart that was linked to doesn't include GRAINS as part of the analysis! Rice is the highest-density carbohydrate of any grain. (Notice that Rice Krispies are at the top of the list.) However, the fiber and proteins contained in brown rice also make it one of the most healthful (remember, beans and rice provides all required amino... -
'Course, some of us are shy, so we use our cute doggies as avatars...
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ARCHIVED Mainstream Cereals...
pmrowley replied to pixiegirl's topic in Gluten-Free Foods, Products, Shopping & Medications
Incidentally, those Blue Corn Flakes are great! I got addicted to them! Envirokidz Koala Krisp cereal is also addictive and gluten-free... Open Original Shared Link -Pat -
ARCHIVED Was I Glutened By Flonase?
pmrowley replied to Emme999's topic in Gluten-Free Foods, Products, Shopping & Medications
Michelle, Flonase is on this site's gluten-free Drugs list, so I would speculate that your heartburn is from somewhere else. The acidic pH of the Flonase might be causing it, but the dosage is so slight that I doubt it. (Of course, Orange juice is highly acidic; I can't drink citrus at night for the same reason. How about switching to Grape Juice? ... -
ARCHIVED What Are The True Risks Of Eating Gluten?
pmrowley replied to Magnus's topic in Coping with Celiac Disease
As jknnej mentioned, you really should keep in mind: You *will* become more sensitive as your gut heals. If you look at the mechanics of the condition, a Celiac who consumes gluten regularly has suffered extensive damage to the absorptive layer of the small intestine. The surface area drops by over a factor of 100. So, consequently, you absorb less gluten... -
ARCHIVED Too Good To Be True?
pmrowley replied to connole1056's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I guess the biggest problem is, that people mistakenly associate lack of physical symptoms with a "remission" of the condition. Personally, before I was diagnosed, the ONLY symptom I showed was slow growth. My mother fought with several doctors before I was successfully diagnosed, and I went through batteries and batteries of tests before we finally hit... -
ARCHIVED Too Good To Be True?
pmrowley replied to connole1056's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Amazing that something like that can even be in business; the amount of misinformation on that website is appalling! celiac disease is caused by liver stones? Or lack of Pancreatic enzymes? Where do they get this crap???