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Medusa

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Medusa

  1. Medusa
    If it's any consolation my periods are way better since I went gluten free. They are less painful, shorter and best of all I have so much less PMS beforehand - it used to be awful and last up to two weeks before my period started. I used to feel like my hormones ruled my life - in a very negative way! They are not very regular now, but that could be because...
  2. Medusa
    Nobody ever got sick from gluten deficiency. Try the diet and see if it helps! Wait until after the tests though, since they are so soon anyway and going gluten-free now would mess them up according to the medics. A gluten-free diet is worth trying anyway though, even if you don't get a diagnosis - see all the other posts on these forums about that issue...
  3. Medusa
    Could also be a twisted kind of denial - some people are soo determined to "prove" that celiac is all in your head they will try and prove it to you by "testing" you - secretly or openly - by glutening you on purpose. If she is having to face the possibility that actually, she might need gluten free food too, but doesn't want to accept it, that can only make...
  4. Medusa
    Poor thing! That's horrible. Have you had your thyroid activity checked lately? How certain can you be about cc - some people are incredibly sensitive to even tiny amounts of gluten, maybe you are one of them? (Sharing a teflon coated pan with a non gluten-free cook could be enough). I tend to agree with the others - time to get checked up by a doctor...
  5. Medusa

    ARCHIVED Brain Fog

    Medusa replied to Harpgirl's topic in Coping with Celiac Disease

    No worries! I am so used to people thinking I am a nutter for believing my daughter's neurological symptoms are coeliac related I am probably just horribly over-sensitive! It did occur to me that I should have offered some sort of evidence for my statement - it does sound far out! This is a good summary: Open Original Shared Link You know...
  6. Medusa

    ARCHIVED Brain Fog

    Medusa replied to Harpgirl's topic in Coping with Celiac Disease

    I mentioned this because my daughter suffers seizures when she has been badly glutened which look like epilepsy (she falls unconcious and cramps violently) but according to the medics are something different as they last too long, up to a few hours at worst. Possibly extreme migraines as she gets a visual aura first. The attacks have continued even after...
  7. Medusa

    ARCHIVED Brain Fog

    Medusa replied to Harpgirl's topic in Coping with Celiac Disease

    Have you looked in the Gluten Intolerance and Behaviour Forum? There's loads of stuff there which strengthens the argument for a neurological connection. I've also heard of research on epilepsy which fails to respond to medication but is relieved by a gluten-free diet.
  8. Medusa
    It took ages for my insides to go back to normal after I quit gluten - not unreasonable, after a lifetime of damage! In fact, for a couple of weeks after an initial honeymoon period, I actually felt worse before getting better again. But I did get better! Hang in there! Depending upon how sensitive you are, cross contamination could be an issue, even...
  9. Medusa

    ARCHIVED Brain Fog

    Medusa replied to Harpgirl's topic in Coping with Celiac Disease

    Ha! Maybe I am just senile! Just remembered that there is some interesting stuff being done in Christchurch, NZ on the possibility that gluten has neurotoxic effects and isn't *just* a gastrointestinal issue... A very quick google revealed this: Open Original Shared Link I'm sure I remember reading something more recent in the paper though. Now where...
  10. Medusa

    ARCHIVED Brain Fog

    Medusa replied to Harpgirl's topic in Coping with Celiac Disease

    My daughter was getting cc problems from the so-called "gluten free" food at school which we found out about when she got physically sick. Talking to her teacher we discovered that she was way behind in school and was struggling to scrape in half marks in her weekly tests. Apparently she did no work at all after lunch. I started sending a lunch box from home...
  11. Medusa
    We found out my eldest was having problems concentrating in school after she got physically sick from cc in the school meals. Only then did her teacher say that no work got done after lunch and that she seemed to be in a dream all afternoon... I started sending a lunchbox with her and her weekly test results improved dramatically, from barely scraping through...
  12. Medusa
    A quick update - my daughter went from scraping through her weekly tests with half marks to getting full marks (even in maths) once she stopped eating the "gluten free" school lunches and just ate what I sent from home. Her teacher *was* surprised! Does that count as scientifically proven? Thanks again!
  13. Medusa
    I know when my eldest has been accidentally glutened because her behaviour gets so odd - she gets loud, agressive and hyper and this is wierd, makes loud sudden noises for no apparent reason. On the occaisions when she has been severely glutened she passes out and suffers convulsions - there's no doubt in my mind that gluten can have severe neurological side...
  14. Medusa
    It really sounds a lot like celiac - you won't necessarily get positive tests results though. I'd agree with Shadowicewolf that it's worth trying a gluten free diet - you could well see results pretty quickly, my kids improved literally overnight. It doesn't have to be super restrictive, there are a lot of options out there if you are prepared to spend time...
  15. Medusa
    My daughter gets eczema round the edges of her eyes, looks like she's been crying, or at worst like conjunctivitis - it clears up when she's gluten free. A recent problem with cc in school dinners seems to have brought it back on again, but it's going away again now she's taking a lunchbox. Must be a connection! I had huge dark rings under my eyes before...
  16. Medusa
    Hello Mushroom! We are moving to Oxford near Christchurch, at least to start with, as that is where my folks and my sister live. The house in Sweden is sold, the plane tickets are booked and we are on our way! All we have to do now is pack... We'll be arriving in Christchurch on the 13th August. School lunches do seem to be universally awful...
  17. Medusa
    Not sure where you are geographically, so not sure if you can get this, but I use a herbal supplement called "Dida" when I feel yeasty - it seems to be mostly cinnamon oil, oregano and garlic. I've seen similar supplements under different names outside of Europe too. Homeopathy can help with hormonal problems - Sepia might be worth a try, or better still...
  18. Medusa
    This is really fascinating. I notice big personality changes in my daughter when she's been glutened - sometimes that's the first warning sign I get that something is wrong. I think our spirituality must be influenced by so many factors - personality, family, community, state of health, that inevitably major changes to any of these will change our outlook...
  19. Medusa
    We had problems with a breadmaker, even though it was really thoroughly washed. Stands to reason if the teflon coating is porous, as it must have been fairly soaked in gluten! I'd recommend changing that if you can.
  20. Medusa
    My whole family do dramatically better on gluten free food, but all of us have had negative tests at some time. The tests just aren't that reliable, yet people put such great faith in them! I feel quite strongly that the most reliable test is going properly gluten free for a while and seeing if it helps - it may take some time to feel better if the damage...
  21. Medusa
    I would love to homeschool for a number of reasons besides the food issues, but unfortunately the authorities in Sweden have made it virtually illegal. (One kid ended up in care because his folks insisted on homeschooling him!) The good news is that we are moving to New Zealand soon where they have a much more humane attitude, everyone takes lunchboxes and...
  22. Medusa
    Many thanks! Those are great links.
  23. Medusa
    Oh, it gets worse! I got called in on Friday for the inevitable dressing down by the class teacher - it's not fair on the other kids that I send a lunchbox with my daughter, apparently. The teacher also took the opportunity to tick me and my daughter off about the fact she is getting so behind with her schoolwork. Apparently she just drifts off in the afternoons...
  24. Medusa
    That is a great idea! Yes I can. Thanks so much!
  25. Medusa
    Many thanks for all your comments! It looks like I'm going to have to send my daughter with a lunchbox again. I finally got hold of the person actually responsible for preparing the special meals and she really hadn't got a clue. First she told me no meatballs ever have gluten in (but we know they do, don't we? Even if they've just rolled them in flour.....
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