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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    Wow. Sounds hopeful. I will hunt for them and give them a try, thanks for the info! We only have one store that carries much from Rudi's, and I've never seen the tortillas. I'd about given up on tortillas. My husband is Mexican and loves his handmade flour tortillas, which I've always made for him. I hadn't made any in 6 months so did some for him...
  2. beachbirdie
    thanks much, squirmingitch! Wish I could find my way back to what I read
  3. beachbirdie
    I'm guessing your doctor tested for lupus, rheumatoid arthritis, other autoimmune conditions? Do you have results of any tests he did? Certainly with the difficulty you were having, something is going on. And I don't believe in fibromyalgia as a diagnosis, just like IBS. It's something I think they say because they don't know what's really going on.
  4. beachbirdie
    There are a couple of folks around here with positive IgG and negative IgA. Some have only the TtG IgG which they don't often test. At least two of those came back with serious intestinal damage on their biopsies.
  5. beachbirdie
    I think your doc called it well. He thinks it is all consistent with celiac but can't make an official diagnosis based on accepted criteria. I don't see a problem with joining the ranks of many here who have healed and thrived once they went gluten-free. The only other thing to do is get back on gluten and eat it until you are really, really sick....
  6. beachbirdie
    I think I recall reading somewhere (but don't have the time to go dig it up right now) that people with dermatitis herpetiformis often do not have severe intestinal damage. Do you know anything about that? It would mean that in this case, the OP might have a VERY high likelihood of celiac, considering the rash cleared up gluten free. Is that reasonable...
  7. beachbirdie
    First of all, welcome to the forum! You've found the best place for support and information!~ Also, my hat is off to your doc for doing the celiac tests based on liver function. Most people have a very hard time getting their docs to test them! So far, yours sounds like a real keeper! The positive test shows that your body is reacting to/attacking...
  8. beachbirdie
    Hmmm...I'm with Bubba's Mom, I think I see a DQ 2.2 in there. That, along with the very positive Gliadin IgG antibodies looks pretty suspicious. That IgG means your son's body IS reacting to gluten and not in order to like it better. It doesn't just take a 2.5 to be vulnerable to celiac. There are some celiacs, though smaller in number, who are only...
  9. beachbirdie
    Yes! It is wonderful to have you share such a positive story! This is a very happy thing! {{{{{{{{{APPLAUSE::CHEERS::APPLAUSE::CHEERS::}}}}}}}}}
  10. beachbirdie
    Great article. Thanks for posting the link. I was very interested in the long list of other conditions people might have that should prompt celiac testing. It is too often difficult to get doctors to consider testing for celiac!
  11. beachbirdie
    Ugh. Well, false negatives ARE common. Don't take a negative test as a recommendation to continue eating gluten! I hate to see you say "maybe I am just intolerant". Non-celiac gluten intolerance is a very real condition and should not be discounted. The symptoms/reactions can be as bad as a person who is celiac, the only difference is that the...
  12. beachbirdie
    I was confused at first by Rudi's because for some reason, probably because theirs were the first products I had heard about on this forum that I was able to find in a local store. I thought EVERYTHING they made was gluten-free. I did not know that they were first a regular bakery. I was in the store looking for breads and picked up a package of Rudi's...
  13. beachbirdie
    Have you had your thyroid tested recently? Sometimes people with celiac also have thyroid problems that come and go. My first dance with thyroid issues was around the time I was 20. A lot of your issues go along with thyroid problems. I highly recommend looking into that soon. If it is thyroid, you'll want to get that settled down before starting college...
  14. beachbirdie
    I'm so glad for you, that you had doctors who were so responsive! As for the rash, maybe they didn't do the biopsy correctly...I hear they often biopsy the inflamed tissue rather than the tissue near it, and that invalidates the testing. Anyway, glad to hear you are having such a quick response to the diet! Woo-hoo!
  15. beachbirdie
    Some people have found it can take weeks to months before feeling better on the diet. I just started gluten-free in mid-May, and for 3 weeks I was depressed, angry, irritable, moody, achy and very fatigued. Not so much now! Some people DO experience very real withdrawal symptoms, which makes sense since gluten acts in similar fashion to opioid drugs in...
  16. beachbirdie
    I haven't quite started saying it yet. I have only had one positive blood test, and it's not the most specific one. No endoscopy. I did have a rash that looked like DH but no biopsy. So, my doc was willing to call it celiac based on circumstantial evidence (gene, Hashimoto's, mild symptoms), but since it's not proven beyond a reasonable doubt, I am...
  17. beachbirdie
    Actually it's a great place to ask a question! Otherwise you might not know what's really going on. So...you've gotten several good suggestions; Malwarebytes is an excellent tool, I highly recommend. I also second the suggestion for NoScript if you are using Firefox, or something similar if you have other browsers. If you are not sure about looking...
  18. beachbirdie
    Something in your browser? Maybe you need a script blocker.
  19. beachbirdie
    Well, the doc is right, the two tests you had for celiac don't in any way say celiac. Big problem is (as was said on your other thread) they simply didn't do enough tests. You need: Deamidated gliadin peptides, both IgA and IgG version anti-endomysial antibodies (anti-EMA) and they might, in a pinch, run the TtG IgG I saw also that...
  20. beachbirdie
    Non-alcoholic cirrhosis is a frequent companion to celiac. It is (as other posters have already said) highly likely that many of your family have celiac, even if they do not have "classic" symptoms. The biopsy is not perfect and misses a lot of people. Your positive test is plenty of evidence that gluten is dangerous for you.
  21. beachbirdie
    Welcome! Glad you found this place, you will find a lot of support and help here. Sorry you got sick after getting off the diet. Sadly, celiac does not "go away", it's for life! And doctors are NOT very good at helping people deal with it. Hope you will be feeling better before too long.
  22. beachbirdie
    We like Schar and Bio-Nature, but bio-nature has soy so I don't use it much. If you don't care about soy, it's like wheat pasta. Also, a lot of the time for spaghetti, we use spaghetti squash instead of starchy noodles, it's really good and even my picky "traditional" husband accepts and loves it! Takes up the flavor of the sauce very nicely and our...
  23. beachbirdie
    Hi, Seattle-ites! I was in Spokane for a long time, now just south of you across the Oregon border. DH travels to Seattle area a lot. Beautiful up there. Lots of wonderful people here, glad you found us!
  24. beachbirdie
    Do you eat a lot of garlic? My daughter's father-in-law cannot eat garlic, it makes him get a very strong odor.
  25. beachbirdie
    The Vitamin D is another red flag for celiac. Very common for celiacs to have low D. You do not need a prescription for liquid vitamin d. Many brands are Open Original Shared Link, and I wouldn't go with the cheapest. I would trust Pure Encapsulations (worked GREAT for me), Xymogen, Carlson, Source Naturals, Solgar. There are probably a few others...
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