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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    I've been struggling to help my mom for two years now, she has unusual blood work and mental ups and downs that act like dementia but her neurologist says not Alzheimer's. And she doesn't have it all the time. She is getting brushed off by some of her docs because she is 84 years old. She has had persistent mouth ulcers, leg swelling that requires...
  2. beachbirdie
    For me, yes. Hashimoto's is a condition in which antibodies attack the thyroid or the hormone-carrying proteins, and the end result is hypothyroid. Also, hypothyroid can present with symptoms some might associate with hyper-thyroid. I suffered terrible palpitations, anxiety, insomnia, yet was hypothyroid. Oops! Thanks, Mushroom! ...
  3. beachbirdie
    I also tested "normal" for TSH and T4, though my results for Free T4 were at the very bottom of the range. My TSH was at the top of the range. I couldn't get anyone to listen for symptoms for years. When my new doc tested my Free T3 is was well below the range. Free T3 is the one your cell receptors pick up and use for metabolism, Free T4 is the form...
  4. beachbirdie
    Elevated liver enzymes can be related to thyroid issues. And, as another poster stated, Hashimoto's thyroiditis and celiac are common companions.
  5. beachbirdie
    You might try going completely grain-free/lactose-free. Something like the Open Original Shared Link or the Open Original Shared Link. They are very restrictive, but they can help control the sugar that feeds the yeast.
  6. beachbirdie
    Yes...deficiency in B vitamins can be one cause of this.
  7. beachbirdie
    Open Original Shared Link makes a good one, and Open Original Shared Link (by Anheuser-Busch) is another good one! They are sorghum-based, and not at all bad. I enjoy a good beer once in a while, and these come so close to the wheat-based beers!
  8. beachbirdie
    Dietary changes can definitely affect your blood pressure, as can a well-treated thyroid. Hypertension is a documented side-effect of hypothyroid. Be sure to stay well hydrated, as well. I just learned earlier this year that dehydration will cause elevated blood pressure! As mentioned by others, Hashimoto's causes destruction of the thyroid gland...
  9. beachbirdie
    Testing might be very helpful. If nothing else, it will take away all hesitation about doing a serious dietary change. Some people need an "official" diagnosis to help keep them on track with good eating. On the other hand, you could just do a trial (several weeks to a few months) of the diet and see how you feel. The "proof is in the pudding" so to...
  10. beachbirdie
    Fingers crossed! Good luck tomorrow. beachbirdie
  11. beachbirdie
    Hashimoto's and celiac are very frequent companions. There is an article referring to a Dutch study posted here at celiac.com that makes a good case for people with Hashi's to try eating gluten free. I have even seen it suggested that Hashimoto's mmight be a facet of gluten sensitivity, because the antibodies that form against the thyroid often (not always...
  12. beachbirdie
    Here's one more question for you...have you, by chance, had a recent round of antibiotic therapy? With a fluoroquinolone? I know it's a stretch, and I wouldn't have thought to ask except this happened to me early this year. Had a round with ciprofloxacin/flagyl combo, and it gave me tendinitis, tinnitus, fatigue/brain fog, stomach upset,and a lot of other...
  13. beachbirdie
    Hi, Cpl. Klinger (big M*A*S*H fan here!), Welcome! I do hope you will be feeling great soon, and that you get things sorted out okay. I can only say what many have said on this forum, if the diet is contributing to improved well-being, keep at it, it's worth it! beachbirdie
  14. beachbirdie
    Thank you very much! Your explanation makes testing much more understandable, that is exactly what I was looking for and couldn't figure out!
  15. beachbirdie
    Thanks so much for your thoughts. It's almost like researchers stopped thinking when they discovered the effects of gluten on some people, and moved to finding a "cure" or a way for celiac/gluten sensitive people to go back to eating it. That seems to be a big mindset; how to allow people to continue with behavior/diet that hurts them, by drugging away...
  16. beachbirdie
    Do non-celiac/non-gluten sensitive people make any of the antibodies generally associated with celiac? How much is found in the "normal" population? Do "normals" always test out to "zero"? Even though the lab ranges always say "positive" is above a certain threshold, wouldn't it make sense that someone with low levels of all the antibodies has some...
  17. beachbirdie

    ARCHIVED Is This?

    beachbirdie replied to jcolding's topic in Dermatitis Herpetiformis

    Iodine is NOT good for people with Hashimoto's. There is information about it at thyroidmanager.org in Open Original Shared Link, the Hashi's chapter. For those not familiar with it, thyroidmanager is an online textbook written by endocrinologists FOR endocrinologists. There is thinking that it is too much iodine, not too little, that can help precipitate...
  18. beachbirdie
    I'm reasonably certain that my son has had DH, but he never went to the doctor for a diagnosis. When he would mention it to the Army docs, they just told him he had eczema and gave him creams that didn't help. He had what seemed like poison oak all over his hands, itchy and awful. When my daughter was experimenting to find out why she was having so...
  19. beachbirdie
  20. beachbirdie
    The more I've been thinking about this, the more I realize just how true it is that "formula-based" thinking leaves a lot of people very sick. There is a similar matrix for the diagnosis of thyroid disease, and I didn't fit into it at all. I was awfully darned sick and facing a lifetime of several terrible medications before I met the doc who helped me...
  21. beachbirdie
    It can make the transition easier if you just think about eating "whole foods", foods that are least processed, foods that don't come from the freezer department at the warehouse store. Easier to go all the way, "whole hog", "cold turkey", no easing. Fresh fruits and vegetables, fresh lean meats, nuts and nut butters with apples or celery, eggs if not...
  22. beachbirdie
    You have a wonderful sense of humor! You got me ROFL! It was hard enough to get a doc to think "outside the box" for thyroid care, celiac is ten times trickier! Please, do stay away from that Big Mac!
  23. beachbirdie
    Thank you so much for the link. Makes it a little easier to reach information that gets used a lot! I don't know what happened to my thyroid antibodies, I was only ever tested once, and both my anti-TPO and anti-thyroglobulin were sky high. Scary high. Not that it is an indicator of the severity of disease, but it does indicate a lot of inflammation...
  24. beachbirdie
    Your GI sounds like a doll! Does the probiotic supplement include Saccharomyces boulardii? That one is supposed to be very good for intestinal issues that have caused inflammation. Your Vitamin D issue may not be a result of going off dairy. It is very common to be deficient in Vit D when you have celiac or other issues that cause malabsorption from...
  25. beachbirdie
    I see! How old is your son? The next doctor will probably do more testing. Maybe more complete blood testing, possibly including the genetic test, and maybe recommend the biopsy. You do have a somewhat clear answer just in the observation that a gluten-free diet sent those symptoms packing! Regardless of what the tests turn up, if it were me, I'd...
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