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beachbirdie

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Everything posted by beachbirdie

  1. beachbirdie
    Yes, there is a very clear connection between autoimmune thyroid and gluten. If you have high thyroid antibodies, you'll definitely want to consider being gluten free. Crud, I keep running into the need to post information about this but haven't saved citation links to the articles that support this! But the gluten can cause the body to generate many organ...
  2. beachbirdie
    Your GI doc sounds like he is on top of things. The question about Irish? Spot on! High incidence of celiac in northern European types! Your surgeon doesn't know anything if he thinks he can dismiss the celiac possibility without seeing a biopsy. They should test you for bacterial overgrowth...maybe a C.diff infection (Clostridium Difficile). Benefiber...
  3. beachbirdie
    To answer your first question, they use TSH because that's what they are taught in medical school and it's in their literature. Wish it were deeper than that. Because TSH is a good tool for diagnosing thyroid in the untreated individual, they think it works in a treated person the same way. As for the dual Hashi/Graves thing, I don't know anything...
  4. beachbirdie
    I don't really have an answer for your question, just another question. What are your son's symptoms? Not all celiac symptoms are digestive, that's the reason I ask. A positive TTG is a sign for more testing needed. A poster in another thread posted an Open Original Shared Link from the Mayo Clinic, showing what the response should be to differing test...
  5. beachbirdie
    That is interesting to look at. Makes it easy to think one's way through the puzzles. By the Mayo Clinic chart, I should be asking for more testing since I had more than 4 units of TTG IgA. Wonder if my doc will do the Deamidated Gliadin antibody...
  6. beachbirdie
    About the suppressed TSH, I don't have a citation at hand but it's out "there" somewhere in the vast reaches of the Internet. What I meant to say is, if a person has Hashimoto's, there are knowledgeable endocrine people who have written that the TSH should effectively be as close to zero as one can get. That is accomplished by gradually increasing the dose...
  7. beachbirdie
    Good creamy gravy is one of my favorite things to eat! If you have a recipe for country gravy, just substitute "glutinous rice flour" (no, it's not got forbidden gluten) also known as "sweet rice flour" for the flour in your regular recipe. If you can't find it anywhere else, look in the Asian section of your market and get "Mochiko". That is the same...
  8. beachbirdie
    There is some thinking that viruses can trigger many autoimmune conditions, that somehow the body responds to the virus, and when the virus is gone the body turns on itself because the anti-virus thing doesn't turn off The body can't distinguish "self" from "invader" (that's very simplistic but hopefully helpful). That is where it is interesting to have...
  9. beachbirdie
    Hi cmost, and welcome to the forum! Yes. TSH can fluctuate even in one day, however your result is simply a response to the drop in Armour dose. The key to getting a good thyroid test is to have it done consistently at the same time of day, and also to make sure (especially with Armour) that you do NOT take your pill before testing. It causes a T3 spike...
  10. beachbirdie
    Just another idea, you don't specify if they named what bacteria are causing the overgrowth. If it IS a C.diff bacteria, then after the course of antibiotics you might get your hands on Open Original Shared Link (I offer only one brand, there are others)...it has been shown very effective in helping heal the intestinal lining. Avoid, at least for a time...
  11. beachbirdie
    Have they tested your thyroid? Thyroid is notorious for causing fatigue and "brain fog". Sorry to say but from others I know in UK, the NHS is not great about thyroid care...but do make sure they have tested you and you can personally see the results. They will tell you "normal" even if you are a 100th of a point away from being out of range. I want to...
  12. beachbirdie
    Celiac is not an allergy. It is a "disorder" (I don't really like that word - perhaps it is more a "difference"!) in the way the cells of your intestine handles gluten. In some people, it is handled fine, in others it is not. I won't go into the detailed biology of it, but over time the villi get flattened and can no longer absorb nutrients the body needs...
  13. beachbirdie
    **poof** thanks, looks like it worked!
  14. beachbirdie
    You might find useful stuff at Open Original Shared Link or Open Original Shared Link. You can Google terms like "GAPS Diet recipes" or "GAPS diet blogs" (or use some not-so-annoying search engines like Open Original Shared Link or Open Original Shared Link or Open Original Shared Link...I have some philosophical issues with Google ) You might find...
  15. beachbirdie
    I don't know anything about "SIBO", but I can tell you that my daughter-in-law has been struggling with intestinal health for a while and it turns out she has a clostridium difficile infection. She has had a hard time getting rid of it, and is now on the Open Original Shared Link. She is improving greatly. The principle of the diet is to starve the bad...
  16. beachbirdie
    Low TSH along with low thyroid hormones is an interesting problem! That leans more toward pituitary/hypothalamus. Hopefully you will get a decent endo, many are notoriously poor thyroid docs but you don't have a common thyroid situation going on.
  17. beachbirdie
    If you have Hashimoto's, it is a VERY good idea to be gluten free. There are studies showing a significant connection, one is discussed here at celiac.com. Open Original Shared Link showed how 3.4% of a group of study subjects with Hashimoto's were found to have celiac, while only .6% and .25% were found to have celiac in the control groups. That is significant...
  18. beachbirdie
    Makes sense. I like the idea of "gluten syndrome" or something like that. If I think about "thyroid disease", it covers a lot of territory! You can have autoimmune thyroid disease (like Graves or Hashimoto's), you can have different types of thyroid cancer, you can have idiopathic low or high thyroid, even thyroid problems that are not because the thyroid...
  19. beachbirdie
    Is the blood fresh and bright? Has anyone told you whether you have perhaps a hemorrhoid or fissure or possibly diverticulosis? I have experienced the stripe of blood, never been sure if it's the little internal hemorrhoid they found, or related to diverticulosis. Are you getting plenty of fiber/fresh fruits and veggies? Not necessarily saying that...
  20. beachbirdie
    Do you have the results of your lab tests? The information can be helpful. When the doctor's office says you are "perfectly normal" what do they mean? You could be at the very edge of their normal range, and that may not be the place that works for your body. When I first got sick with thyroid, they told me I was "perfectly normal". But I had a high...
  21. beachbirdie
    Thank you Nora, I appreciate the information. I was wondering about the DQ7, one of the Wikipedia articles says that the DQ7 mediates celiac disease in the DQ2.2. That being the case, it would explain why there are a lot of DQ2.2 people here, who have celiac, yet only have the one "low-risk" gene. Maybe their other gene is the one no one looks for. Golly...
  22. beachbirdie
    Yes, simple blood test, looking for antibodies. Hopefully they will also check your levels of free thyroid hormone, or else they are only getting part of the picture. Are you currently on any thyroid meds? You really need a good going over for this. A low TSH, by itself, does not necessarily indicate hyperthyroid. You have something going on with...
  23. beachbirdie
    I am sorry this happened to you. It is very disconcerting. I will NEVER trust my thyroid care to an endocrinologist. The worst care I ever had was from an endo, and many of my friends in a thyroid community agree. It is soooo easy to get the thyroid messed up! Even docs who use Armour aren't always "on the ball". I am so happy with my doc, she worked...
  24. beachbirdie
    My brother is Type 2 diabetic and he says rice is one of the big killer foods on blood sugar. He NEVER eats rice, EVER. If you love rice, try substituting quinoa. It does not spike the blood sugar like rice does. And it cooks just like rice and tastes good! Soda is terribly hard on your pancreas. A Open Original Shared Link shows the dangers of even...
  25. beachbirdie
    I am very glad you will have your husband going along with a trial. It can make all the difference in the world to help you succeed! As the poster above said, be really strict and watch the cross contamination. It wouldn't actually hurt to put the whole family on the trial! We have done it, and it was only hard for a very short time until we learned there...
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