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beachbirdie

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Latest Celiac Disease News & Research:

Everything posted by beachbirdie

  1. beachbirdie
    Panic attacks can accompany Hashimoto's...the only panic attacks I ever had were during the time I was getting sick with my thyroid issue, but hadn't yet been diagnosed or treated. I also had a hard time exercising, my heart would take off racing even with a lower-level exercise. Once I got treated for hypo, the panic went away and heart rhythms became...
  2. beachbirdie
    If serum IgA is really only 17, it is too low and will cause inaccurate results on the celiac tests. Your daughter needs more testing. Is your daughter having symptoms that might point to celiac? If symptoms go away on a gluten free diet, that tells you as much as any tests.
  3. beachbirdie
    You are right, thyroid issues are as challenging to deal with as celiac issues. A thyroid patient does well to get very educated on their condition. I have Hashimoto's, it wasn't easy to get diagnosed. There is some connection between celiac and thyroid, so it's not surprising a thyroid issue might have come up for your daughter. I would make sure...
  4. beachbirdie
    Vitamin Levels - B12, Vit. D Thyroid Tests - TSH, Free T3 and Free T4 (others can be asked for if these are out of line), also thyroid antibodies (usually anti-TPO and TgAb for starters - can add antibodies for Graves if TSH is way low) Iron level - Serum Ferritin (a regular anemia check isn't good enough here) I'd also let them run a general metabolic...
  5. beachbirdie
    Is there anyone out there who has had Prometheus DQ2/DQ8 testing that has succeeded in getting the information on their "non-risk" alleles? My test said I had DQ2.2 (DQA1*0201, DQB1*0202 and "other non-risk alleles"). I'd really like to know what those are, given that I have another autoimmune disease closely associated with celiac. One of the...
  6. beachbirdie
    Forgive me butting in, but I've been skimming your thread and saw a couple of things I just wanted to drop a quick comment on. I don't have Graves, so don't know much about it. However, Graves is not the only thing that causes anxiety! The only panic attacks I ever had in my life were when I was struggling before my diagnosis of hypothyroid. I had terrible...
  7. beachbirdie
    Did they tell you whichgenes you had? There is such an array of them. You can read some about the genes Open Original Shared Link, and in the table that is about halfway down the page you can click links to each separate DQ type. The presence of the gene does not confirm a diagnosis, but it does point to a genetic predisposition to getting celiac...
  8. beachbirdie
    Be careful when using Tom's toothpaste. Read the label closely because they make both fluoride and non-fluoride versions. I use one without silica and without foaming agents. Weleda makes some good ones. beachbirdie
  9. beachbirdie
    Sorry I have more questions than answers...could be a lot of things. Have you ever been checked for Sjogren's? That family of things (lupus, sjogren's, rheumatoid arthritis) can possibly contribute according to Open Original Shared Link from the Mayo Clinic. GERD, Pituitary problem, lots of things. Are you using a mouthwash or tooth whitener that...
  10. beachbirdie
    My family has experimented a lot with cream sauces and they have all come to prefer one that we make with "sweet rice flour". This is NOT the same as white rice or brown rice flours, it can also be found under the name of "mochi" in the Asian foods section of most groceries. You just use your regular sauce recipe and sub this flour. It doesn't brown though...
  11. beachbirdie
    You have lupus. There is a genetic connection between that and other autoimmune conditions like autoimmune thyroid (Grave's and Hashimoto's) and celiac. I would see about getting genetic test and endoscopic biopsy done, it is in the realm of possibility that you have a gluten issue. You do need to have been eating gluten for a while to get a "real" result...
  12. beachbirdie
    I am curious to know a little more about antibody testing. If a person has low levels of antibodies, though not high enough to bring a diagnosis of celiac, does that still mean a person is gluten-intolerant? Or that a person is "on their way" to increasing trouble with gluten? Do "normal" people show any gluten antibodies ever? Or do they usually...
  13. beachbirdie
    How old are you? A colonoscopy is not necessarily a waste of time, but it won't give you a celiac diagnosis. As Sylvia said, that test is done from the other end, they go down through your stomach to the beginning of your small intestine. Do you have other symptoms besides upper left quadrant pain? They will also be wanting to rule out colitis/inflammatory...
  14. beachbirdie
    No money in it for big pharma means research WILL be difficult to fund. When I think back ten years ago to the time I was so sick I could not function, it was a nightmare getting anyone to take me and my thyroid symptoms seriously.My labs, after all, were "normal". No one bothered to look at my thyroid antibodies because my hormone levels were "fine". ...
  15. beachbirdie
    I'm curious that your doctor ordered the HLA typing after you had a positive biopsy. The genes don't matter so much, the biopsy gives you a definite answer. As does your response to being gluten free. What were your symptoms? beachbirdie
  16. beachbirdie
    Eating a gluten-free diet for a month or so is such a low-cost way to test your body, I would give that a go. Doctors can mess around guessing for a very long time, and you can get sicker and sicker while they go through their elimination routine. Basically what they do is start with the condition that is most common, and guess that you have it. They won...
  17. beachbirdie
    Many thanks to all of you for your replies! beachbirdie
  18. beachbirdie
    LOL! I just mention the Irish/German thing because so many say there is a strong connection of celiac and northern European. More reading last night tells me my husband and I probably gave our kids a double gene whammy, two of them have strong reactions to gluten and my husband's Latin heritage probably contributed another gene. I'm convinced...
  19. beachbirdie
    When my doctor did a celiac panel a few weeks ago, I had been eating wheat for only a month or so. Is that long enough to give a good result? I just found out I have a DQ2.2, which is "low risk" for celiac, and my celiac panel showed low enough levels of antibodies to be considered negative. Doc didn't test for DQ1, though I have much northern European...
  20. beachbirdie
    There are some doctors who believe that once a person has been diagnosed with Hashimoto's, they should start treatment. I'm not a medical professional, so I can't opine in one way or another, just saying that's some of the wisdom that's out there. Are you having anything you might think is thyroid related? I have Hashimoto's and had hypothyroid symptoms...
  21. beachbirdie
    Ugh. And one more question that I forgot! If I have this gene, DQ2.2, what are the chances of my kids possibly getting genes from my husband that increase THEIR chances of having celiac? Given their symptoms, I'm still suspicious that my children might have this. Thanks. Sorry if the multiple posts are a trouble. beachbirdie
  22. beachbirdie
    Forgot to add, the gene test was the "Prometheus Genetics" which only looks for the DQ2 and DQ8. beachbirdie
  23. beachbirdie
    Thanks Ravenwoodglass. We eat a lot of gluten free, but have not been firm about it. It's so easy to play around "off the reservation" when not having a definitive diagnosis. I just got my gene test back, it says "Low Risk". Here's the gene, I don't know what it really means! DQ2.2 (HLA DQA1*0201 : DQB1*0202) and other non-risk alleles beachbirdie
  24. beachbirdie
    Thank you both for your replies. I should have known better and posted the ranges. Sorry I forgot. The range for TTG IgA and the two gliadin antibodies is "less than or equal to 19.9" and I didn't have higher than 6.6 on any of them. So, it's looking pretty weak. However, I did not look carefully at the report and it looks like the HLA is NOT there...
  25. beachbirdie
    Yes, most definitely hyperthyroid can cause these symptoms. Hyperthyroid sends your metabolism into overdrive. Marilyn
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