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Jenniferxgfx

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Everything posted by Jenniferxgfx

  1. Jenniferxgfx
    I didn’t say I took a multivitamin, I said I’m taking my B’s. I agree that multivit’s don’t do the trick when you’re dealing with specific deficiencies. I appreciate the time you took to write all this out, and I hope someone finds it helpful. I’m aware of this information, but in my specific case, my potassium levels are quite low and I am regu...
  2. Jenniferxgfx
    Yep, I do take my B’s, thanks. I also don’t eat enough so I’m not getting enough dietary potassium or magnesium.
  3. Jenniferxgfx
    Wow, thanks for sharing this! This post was super validating. I've been glutened by oats so many times, I can't trust them at all any more and I just assume that I'm one of the celiacs who can't tolerate any oats. (Maybe someday I'll grow my own and find out for sure.)
  4. Jenniferxgfx
    Yeah, that's what I've been doing, it's just a bit tedious, and I'm not as exact as a manufacturer would (or should) be. It'd just be nice to have something I can pull off a shelf and dump into some water. I'm already cooking almost everything I eat from scratch, and I'm very tired.
  5. Jenniferxgfx
    Holy moly, Sandoz sounds evil. Really appreciate the heads up. Also really glad you’re on the mend— what a doozy of a reaction. appreciate the B1 tip, too. My spouse has HBP and is always looking for ways to reduce meds when possible or treat occasional bouts of higher than usual BP. (Life is so stressful right now, it’s tough to avoid stress.) ...
  6. Jenniferxgfx
    I have POTS, which significantly worsened after I had covid 4 months ago. Keeping my electrolytes up is one of the ways symptoms are managed. I’m on an extremely low dose of a beta blocker to manage tachycardia (the T in POTS). My need for potassium & other electrolytes isn’t in question… I’m just looking for SAFE gluten-free electrolytes. In gen...
  7. Jenniferxgfx
    Hi there, I’m in desperate need of electrolytes, preferably a blend with a generous amount of potassium (many of them are loaded with sodium and don’t have much potassium to balance it out)… there’s a lot on the market but I’m overwhelmed. I really liked Liquid IV, and I used that for a few months fine, but then I changed flavors and got glutened really ba...
  8. Jenniferxgfx
    Do you kind saying what you were taking that glutened you? I’m on a low dose beta blocker (metoprolol) to control tachycardia and I’m actually here looking for potential sources of cc because I’m feeling so awful rn. Is your potassium checked regularly? Low potassium can increase BP. There are supplements and electrolytes but potassium rich food ...
  9. Jenniferxgfx
    Nope. I’ve been glutened by certified stuff, and if you have celiac reactions to oats (like I do), the gluten-free certification is kinda worthless if the company is also making gluten-free oat products. I will say that I trust certified stuff over non certified, and if you’re in doubt, contact the mfg and ask if their raw ingredients are gluten-fre...
  10. Jenniferxgfx
    I’ve had it “figured out” for about a year... but I’ve had a couple flare ups (due to bobs red mill trials and other oat contamination) since then. But the reactions aren’t as severe (it seems dose-dependent: since I’m militant about it all, any exposures have been small) and i only try one new food at a time— I test it with one package/serving/meal/whatever...
  11. Jenniferxgfx
    I’m glad you’ve found some relief! I’ll try to answer your questions: 1. IMO it’s personal... for me, if I’m still waking up with new lesions, or the old ones aren’t getting any smaller, then I need to avoid iodine. Once they’re completely gone, I can eat iodine with wild abandon again. I’ve tried iodine-rich foods when everything is smaller/near...
  12. Jenniferxgfx
    I have really severe DH and I’ve finally (after 9 years gluten-free) recently been feeling like I have a handle on things. Here’s a few things I’ve found: I can’t trust oats. Every single kind of gluten-free oat had triggered a DH reaction. Even if I don’t have GI problems, gluten-free oats are simply not gluten-free Enough for me. I can’t tru...
  13. Jenniferxgfx
    i'm actually very well read on the topic, and i apologize for not finding a more suitable. but i came here looking for razor suggestions, not to defend my diagnoses. i am well aware that "gluten allergy" is a false term, which is why i didn't use it. perhaps mentioning my allergist made things confusing. it just so happens that my allergist (who i started...
  14. Jenniferxgfx
    Open Original Shared Link
  15. Jenniferxgfx
    i've had this happen too! people get so confused about celiac alongside all the different allergens their customers are concerned about. i was surprised how adamant one restaurant was about this, too.
  16. Jenniferxgfx
    oh, man.... number 4. i've had several restaurant employees and owners ask me what happens when i eat gluten. this is not the time or the place for that discussion, my new friend. not the time or the place.
  17. Jenniferxgfx
    i'm convinced those stupid moisture strips on disposable razors i've tried may not be glutenfree enough for me. i usually react when the razors are new, but once they're old and the strip is worn out, my skin is fine. shaving with a dull worn out razor should NOT be easier on my skin than a fresh new one! since there's so many options out there, i don...
  18. Jenniferxgfx
    seconding the posters above. i also take pain medication for chronic pain, and i've called several manufacturers (in the US, the manufacturer, even of generics, should be listed on your bottle, then google the customer service number for that company). You may have to be persistent, and ask for a list of ALL The ingredients in the medication. Then ask again...
  19. Jenniferxgfx
    no, she will not be forgiven. she was poisoning me for a year, knowing full well what she was doing all along, and lying to my face about it when she would see me reacting. all the while, she was pretending her illness was so debilitating that she needed me to care for her, even while I was feeling glutened and miserable. in addition to poisoning me, she...
  20. Jenniferxgfx
    hi everyone. i haven't been around here for a couple years i think, but i still search the forums for info and i sent new or questioning celiacs here... you guys are the best. i admit i feel some guilt that i haven't been around to pay it forward. you guys are, quite literally, life savers. i thought i'd post a little update in case it's helpful to anyone...
  21. Jenniferxgfx
    I went gluten-free a month before you and I haven't had this situation yet but I've thought about it. I think it must have been so awkward for you to be talking about your private life when you were networking and socializing professionally. :/ I had a friend who'd gotten sick and discovered celiac when I was working and everyone (including me) asked her...
  22. Jenniferxgfx
    Whey protein is from milk which he may not tolerate right now if it's indeed celiac.
  23. Jenniferxgfx
    I get reflux symptoms a few hours later in some cases (certain foods). It's usually soon after but sometimes my dinner will wake me in the night. :/
  24. Jenniferxgfx
    This post is timely for me! We're takin our first trip since going gluten-free next month, driving to Arizona from CA. we decided to rent an RV because of all our health problems and concerns about privacy.... And it should be fun! I'm really not sure what to pack that I/we won't get sick of after a couple days. We'll be gone for 7 and spending 2 with my...
  25. Jenniferxgfx
    My celiac symptoms worsened and became severe when I live in SE mich. the Livonia Family Practice and the hospital they use (Beaumont I think? It's been awhile) treated me horribly and flat out said more than once I couldn't possibly have celiac. They tagged me with the fibromyalgia dx, blamed all symptoms on that, and put me on dangerous Reglan, while blaming...
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